Let me reword this...here is a lady with CF that needs our voices to be heard...

Z

zoe4life

New member
They are starting the cuts....it will only get worse. This is very sad for this girl and any other cf patients.

<a target=_blank class=ftalternatingbarlinklarge href="http://azstarnet.com/news/science/health-med-fit/article_c8288a3a-8135-5cc9-bf0d-0745071bd74a.html">http://azstarnet.com/news/scie...bf0d-0745071bd74a.html</a>

It makes me furious to think that in the future all states could think like this....pretty much saying cf'ers aren't worth transplant!

Yes, the information is wrong!! CF does NOT reinfect new lungs.
Here are some contacts below to e-mail letters letting Az. know what we think of their horrible decision!

The Honorable Governor Jan Brewer
1700 West Washington

Phoenix, Arizona 85007

Telephone: 602-542-4331/800-253-0883

Fax : 602-542-1381



The Honorable Senator Bob Burns
Arizona State Senate President

1700 West Washington, Room 204

Phoenix, Arizona 85007

Telephone: 602-926-5993

Fax : 602-417-3225

Email: rburns@azleg.gov



The Honorable Senator Chuck Gray
Arizona State Senate Majority Leader

1700 West Washington, Room 212

Phoenix, Arizona 85007

Telephone: 602-926-5288

Fax : 602-417-3161

Email: cgray@azleg.gov



The Honorable Senator Steve Pierce
Arizona State Senate Majority Whip

1700 West Washington, Room 212

Phoenix, Arizona 85007

Telephone: 602-926-5584

Fax : 602-926-3429

Email: spierce@azleg.gov



The Honorable Senator Barbara Leff
Arizona State Senate President Pro Tempore

1700 West Washington, Room 302

Phoenix, Arizona 85007

Telephone: 602-926-4486

Fax : 602-417-3270

Email: bleff@azleg.gov



The Honorable Congressman Kirk Adams
Arizona State Speaker Of The House

1700 West Washington, Room 221

Phoenix, Arizona 85007

Telephone: 602-926-5495

Fax : 602-417-3019

Email: kadams@azleg.gov



The Honorable Congressman John McComish
Arizona State House Majority Leader

1700 West Washington, Room 206

Phoenix, Arizona 85007

Telephone: 602-926-5898

Fax : 602-417-3020

Email: jmccomish@azleg.gov



The Honorable Congressman Andrew M. Tobin
Arizona State House Majority Whip

1700 West Washington, Room 217

Phoenix, Arizona 85007

Telephone: 602-926-5172

Fax : 602-417-3085

Email: atobin@azleg.gov



The Honorable Congressman Steven B. Yarbrough
Arizona State House Speaker Pro Tempore

1700 West Washington, Room 218

Phoenix, Arizona 85007

Telephone: 602-926-5863

Fax : 602-417-3121

Email: syarbrough@azleg.gov





















Thomas Betlach **

Director, AHCCCS

801 East Jefferson Street, MD 4100

Phoenix, Arizona 85034

Telephone: 602-417-4000/800-654-8713

Fax : 602-252-6536

Email: thomas.betlach@azahcccs.gov



Monica Coury **

Assistant Director Governmental Relations (AHCCCS)

1700 West Washington, Room 300

Phoenix, Arizona 85007

Telephone: 602-542-3464

Fax :

Email: monica.coury@azahcccs.gov



Will Humble

Interim Director Department Of Health Services

150 North 18th Avenue

Phoenix, Arizona 85007

Telephone: 602-542-1025

Fax : 602-542-1062/0883

Email: will.humble@azahcccs.gov
 
Z

zoe4life

New member
They are starting the cuts....it will only get worse. This is very sad for this girl and any other cf patients.

<a target=_blank class=ftalternatingbarlinklarge href="http://azstarnet.com/news/science/health-med-fit/article_c8288a3a-8135-5cc9-bf0d-0745071bd74a.html">http://azstarnet.com/news/scie...bf0d-0745071bd74a.html</a>

It makes me furious to think that in the future all states could think like this....pretty much saying cf'ers aren't worth transplant!

Yes, the information is wrong!! CF does NOT reinfect new lungs.
Here are some contacts below to e-mail letters letting Az. know what we think of their horrible decision!

The Honorable Governor Jan Brewer
1700 West Washington

Phoenix, Arizona 85007

Telephone: 602-542-4331/800-253-0883

Fax : 602-542-1381



The Honorable Senator Bob Burns
Arizona State Senate President

1700 West Washington, Room 204

Phoenix, Arizona 85007

Telephone: 602-926-5993

Fax : 602-417-3225

Email: rburns@azleg.gov



The Honorable Senator Chuck Gray
Arizona State Senate Majority Leader

1700 West Washington, Room 212

Phoenix, Arizona 85007

Telephone: 602-926-5288

Fax : 602-417-3161

Email: cgray@azleg.gov



The Honorable Senator Steve Pierce
Arizona State Senate Majority Whip

1700 West Washington, Room 212

Phoenix, Arizona 85007

Telephone: 602-926-5584

Fax : 602-926-3429

Email: spierce@azleg.gov



The Honorable Senator Barbara Leff
Arizona State Senate President Pro Tempore

1700 West Washington, Room 302

Phoenix, Arizona 85007

Telephone: 602-926-4486

Fax : 602-417-3270

Email: bleff@azleg.gov



The Honorable Congressman Kirk Adams
Arizona State Speaker Of The House

1700 West Washington, Room 221

Phoenix, Arizona 85007

Telephone: 602-926-5495

Fax : 602-417-3019

Email: kadams@azleg.gov



The Honorable Congressman John McComish
Arizona State House Majority Leader

1700 West Washington, Room 206

Phoenix, Arizona 85007

Telephone: 602-926-5898

Fax : 602-417-3020

Email: jmccomish@azleg.gov



The Honorable Congressman Andrew M. Tobin
Arizona State House Majority Whip

1700 West Washington, Room 217

Phoenix, Arizona 85007

Telephone: 602-926-5172

Fax : 602-417-3085

Email: atobin@azleg.gov



The Honorable Congressman Steven B. Yarbrough
Arizona State House Speaker Pro Tempore

1700 West Washington, Room 218

Phoenix, Arizona 85007

Telephone: 602-926-5863

Fax : 602-417-3121

Email: syarbrough@azleg.gov





















Thomas Betlach **

Director, AHCCCS

801 East Jefferson Street, MD 4100

Phoenix, Arizona 85034

Telephone: 602-417-4000/800-654-8713

Fax : 602-252-6536

Email: thomas.betlach@azahcccs.gov



Monica Coury **

Assistant Director Governmental Relations (AHCCCS)

1700 West Washington, Room 300

Phoenix, Arizona 85007

Telephone: 602-542-3464

Fax :

Email: monica.coury@azahcccs.gov



Will Humble

Interim Director Department Of Health Services

150 North 18th Avenue

Phoenix, Arizona 85007

Telephone: 602-542-1025

Fax : 602-542-1062/0883

Email: will.humble@azahcccs.gov
 
Z

zoe4life

New member
They are starting the cuts....it will only get worse. This is very sad for this girl and any other cf patients.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://azstarnet.com/news/science/health-med-fit/article_c8288a3a-8135-5cc9-bf0d-0745071bd74a.html">http://azstarnet.com/news/scie...bf0d-0745071bd74a.html</a>
<br />
<br />It makes me furious to think that in the future all states could think like this....pretty much saying cf'ers aren't worth transplant!
<br />
<br />Yes, the information is wrong!! CF does NOT reinfect new lungs.
<br />Here are some contacts below to e-mail letters letting Az. know what we think of their horrible decision!
<br />
<br />The Honorable Governor Jan Brewer
<br />1700 West Washington
<br />
<br />Phoenix, Arizona 85007
<br />
<br />Telephone: 602-542-4331/800-253-0883
<br />
<br />Fax : 602-542-1381
<br />
<br />
<br />
<br />The Honorable Senator Bob Burns
<br />Arizona State Senate President
<br />
<br />1700 West Washington, Room 204
<br />
<br />Phoenix, Arizona 85007
<br />
<br />Telephone: 602-926-5993
<br />
<br />Fax : 602-417-3225
<br />
<br />Email: rburns@azleg.gov
<br />
<br />
<br />
<br />The Honorable Senator Chuck Gray
<br />Arizona State Senate Majority Leader
<br />
<br />1700 West Washington, Room 212
<br />
<br />Phoenix, Arizona 85007
<br />
<br />Telephone: 602-926-5288
<br />
<br />Fax : 602-417-3161
<br />
<br />Email: cgray@azleg.gov
<br />
<br />
<br />
<br />The Honorable Senator Steve Pierce
<br />Arizona State Senate Majority Whip
<br />
<br />1700 West Washington, Room 212
<br />
<br />Phoenix, Arizona 85007
<br />
<br />Telephone: 602-926-5584
<br />
<br />Fax : 602-926-3429
<br />
<br />Email: spierce@azleg.gov
<br />
<br />
<br />
<br />The Honorable Senator Barbara Leff
<br />Arizona State Senate President Pro Tempore
<br />
<br />1700 West Washington, Room 302
<br />
<br />Phoenix, Arizona 85007
<br />
<br />Telephone: 602-926-4486
<br />
<br />Fax : 602-417-3270
<br />
<br />Email: bleff@azleg.gov
<br />
<br />
<br />
<br />The Honorable Congressman Kirk Adams
<br />Arizona State Speaker Of The House
<br />
<br />1700 West Washington, Room 221
<br />
<br />Phoenix, Arizona 85007
<br />
<br />Telephone: 602-926-5495
<br />
<br />Fax : 602-417-3019
<br />
<br />Email: kadams@azleg.gov
<br />
<br />
<br />
<br />The Honorable Congressman John McComish
<br />Arizona State House Majority Leader
<br />
<br />1700 West Washington, Room 206
<br />
<br />Phoenix, Arizona 85007
<br />
<br />Telephone: 602-926-5898
<br />
<br />Fax : 602-417-3020
<br />
<br />Email: jmccomish@azleg.gov
<br />
<br />
<br />
<br />The Honorable Congressman Andrew M. Tobin
<br />Arizona State House Majority Whip
<br />
<br />1700 West Washington, Room 217
<br />
<br />Phoenix, Arizona 85007
<br />
<br />Telephone: 602-926-5172
<br />
<br />Fax : 602-417-3085
<br />
<br />Email: atobin@azleg.gov
<br />
<br />
<br />
<br />The Honorable Congressman Steven B. Yarbrough
<br />Arizona State House Speaker Pro Tempore
<br />
<br />1700 West Washington, Room 218
<br />
<br />Phoenix, Arizona 85007
<br />
<br />Telephone: 602-926-5863
<br />
<br />Fax : 602-417-3121
<br />
<br />Email: syarbrough@azleg.gov
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />Thomas Betlach **
<br />
<br />Director, AHCCCS
<br />
<br />801 East Jefferson Street, MD 4100
<br />
<br />Phoenix, Arizona 85034
<br />
<br />Telephone: 602-417-4000/800-654-8713
<br />
<br />Fax : 602-252-6536
<br />
<br />Email: thomas.betlach@azahcccs.gov
<br />
<br />
<br />
<br />Monica Coury **
<br />
<br />Assistant Director Governmental Relations (AHCCCS)
<br />
<br />1700 West Washington, Room 300
<br />
<br />Phoenix, Arizona 85007
<br />
<br />Telephone: 602-542-3464
<br />
<br />Fax :
<br />
<br />Email: monica.coury@azahcccs.gov
<br />
<br />
<br />
<br />Will Humble
<br />
<br />Interim Director Department Of Health Services
<br />
<br />150 North 18th Avenue
<br />
<br />Phoenix, Arizona 85007
<br />
<br />Telephone: 602-542-1025
<br />
<br />Fax : 602-542-1062/0883
<br />
<br />Email: will.humble@azahcccs.gov
 
G

Giggles

New member
This is sad...but what we have to look forward to with Gov't. healthcare

I did not read the whole article cause it was making me FURIOUS. But the part where it stated that with "a lung transplant it is not a cure cause CF will infect the new lung eventually." I was always under the impression once you got new lungs then they would be CF FREE for as long as you live. What is the deal, is that wrong? If they are wrong and that is how they based their decision then I am even MORE FURIOUS!!!!!



Jennifer 38 with CF and CFRD
 
G

Giggles

New member
This is sad...but what we have to look forward to with Gov't. healthcare

I did not read the whole article cause it was making me FURIOUS. But the part where it stated that with "a lung transplant it is not a cure cause CF will infect the new lung eventually." I was always under the impression once you got new lungs then they would be CF FREE for as long as you live. What is the deal, is that wrong? If they are wrong and that is how they based their decision then I am even MORE FURIOUS!!!!!



Jennifer 38 with CF and CFRD
 
G

Giggles

New member
This is sad...but what we have to look forward to with Gov't. healthcare

I did not read the whole article cause it was making me FURIOUS. But the part where it stated that with "a lung transplant it is not a cure cause CF will infect the new lung eventually." I was always under the impression once you got new lungs then they would be CF FREE for as long as you live. What is the deal, is that wrong? If they are wrong and that is how they based their decision then I am even MORE FURIOUS!!!!!
<br />
<br />
<br />
<br />Jennifer 38 with CF and CFRD
 
Z

zoe4life

New member
This is sad...but what we have to look forward to with Gov't. healthcare

EXACTLY Jennifer! They are saying that! Which is NOT true! You are right, cf will not infect the new lungs. When the gov't is making decisions for US about OUR healthcare.....it is scary!!
 
Z

zoe4life

New member
This is sad...but what we have to look forward to with Gov't. healthcare

EXACTLY Jennifer! They are saying that! Which is NOT true! You are right, cf will not infect the new lungs. When the gov't is making decisions for US about OUR healthcare.....it is scary!!
 
Z

zoe4life

New member
This is sad...but what we have to look forward to with Gov't. healthcare

EXACTLY Jennifer! They are saying that! Which is NOT true! You are right, cf will not infect the new lungs. When the gov't is making decisions for US about OUR healthcare.....it is scary!!
 
C

Cherylwithone

Guest
This is sad...but what we have to look forward to with Gov't. healthcare

This is wrong on so many levels. They won't get the organs
anyways. Please...what made them the expert on organ transplants. Another thing since they pissed me off, why are they playing God.

I would like to slap the poop out of them!
 
C

Cherylwithone

Guest
This is sad...but what we have to look forward to with Gov't. healthcare

This is wrong on so many levels. They won't get the organs
anyways. Please...what made them the expert on organ transplants. Another thing since they pissed me off, why are they playing God.

I would like to slap the poop out of them!
 
C

Cherylwithone

Guest
This is sad...but what we have to look forward to with Gov't. healthcare

This is wrong on so many levels. They won't get the organs
<br />anyways. Please...what made them the expert on organ transplants. Another thing since they pissed me off, why are they playing God.
<br />
<br />I would like to slap the poop out of them!
 
C

colinmaydahl

New member
This is sad...but what we have to look forward to with Gov't. healthcare

This is cut in coverage is from a loss of state tax income. AZ is in the hole, and they are having to cutting funds from everywhere. This story has nothing to do with the federal health care bill that was passed.

If You want to be able to get a TX and live in AZ, get private insurance. Oh wait, private insurance wont cover You because of a pre existing condition. It sucks they are cutting TX's from the state insurance, but they are having to take most of the burden of people that have CF in AZ BECAUSE PRIVATE INSURANCE wont cover them. Every American needs reform of our health care system, it is in our country's health.

Colin
27m/cf and I have government funded health insurance! (It could be better, but I can't get insurance anywhere else)
 
C

colinmaydahl

New member
This is sad...but what we have to look forward to with Gov't. healthcare

This is cut in coverage is from a loss of state tax income. AZ is in the hole, and they are having to cutting funds from everywhere. This story has nothing to do with the federal health care bill that was passed.

If You want to be able to get a TX and live in AZ, get private insurance. Oh wait, private insurance wont cover You because of a pre existing condition. It sucks they are cutting TX's from the state insurance, but they are having to take most of the burden of people that have CF in AZ BECAUSE PRIVATE INSURANCE wont cover them. Every American needs reform of our health care system, it is in our country's health.

Colin
27m/cf and I have government funded health insurance! (It could be better, but I can't get insurance anywhere else)
 
C

colinmaydahl

New member
This is sad...but what we have to look forward to with Gov't. healthcare

This is cut in coverage is from a loss of state tax income. AZ is in the hole, and they are having to cutting funds from everywhere. This story has nothing to do with the federal health care bill that was passed.
<br />
<br />If You want to be able to get a TX and live in AZ, get private insurance. Oh wait, private insurance wont cover You because of a pre existing condition. It sucks they are cutting TX's from the state insurance, but they are having to take most of the burden of people that have CF in AZ BECAUSE PRIVATE INSURANCE wont cover them. Every American needs reform of our health care system, it is in our country's health.
<br />
<br />Colin
<br />27m/cf and I have government funded health insurance! (It could be better, but I can't get insurance anywhere else)
 
J

JustDucky

New member
This is sad...but what we have to look forward to with Gov't. healthcare

Wow...this really sucks! So many things were glaringly wrong in this article....they are basically saying that since there aren't so many on the list, that it was the most logical cut. They are messing with the right to live! I have heard of some people who are 10 plus years out of transplant and are doing fine, who definitely would not be here if it weren't for their transplants. I feel terrible for those who are on the tx list in AZ and are on state help....actually, it is a tragedy. I hope that with enough uproar and petitioning, that the state changes their minds.

Jenn
 
J

JustDucky

New member
This is sad...but what we have to look forward to with Gov't. healthcare

Wow...this really sucks! So many things were glaringly wrong in this article....they are basically saying that since there aren't so many on the list, that it was the most logical cut. They are messing with the right to live! I have heard of some people who are 10 plus years out of transplant and are doing fine, who definitely would not be here if it weren't for their transplants. I feel terrible for those who are on the tx list in AZ and are on state help....actually, it is a tragedy. I hope that with enough uproar and petitioning, that the state changes their minds.

Jenn
 
J

JustDucky

New member
This is sad...but what we have to look forward to with Gov't. healthcare

Wow...this really sucks! So many things were glaringly wrong in this article....they are basically saying that since there aren't so many on the list, that it was the most logical cut. They are messing with the right to live! I have heard of some people who are 10 plus years out of transplant and are doing fine, who definitely would not be here if it weren't for their transplants. I feel terrible for those who are on the tx list in AZ and are on state help....actually, it is a tragedy. I hope that with enough uproar and petitioning, that the state changes their minds.
<br />
<br />Jenn
 
C

colinmaydahl

New member
This is sad...but what we have to look forward to with Gov't. healthcare

This article had nothing to do with federal health care, it is the state that is having to make the cuts because of their budget problems. Arizona has never done a good job prioritizing anything from education to immigration. It is all backwards.I grew up in Arizona, i watch the state make cut after cut. I have had AHCCCS and frankly i was surprised that the offer of transplants were even covered by the state's health care. I have had AHCCS and they always seemed to find some loop hole that screwed over those they claimed to insure. My heart goes out to Tate and her family and loved ones. There should be some another way. California offers State Government healthcare service known as GHPP Genetically Handicap person's program that does cover most needs of those born with a genetic disease. It is has not been cut from the government provided services since the federal healthcare overhall occurred. California is even in a worse state economically than Arizona.It is a shame that Arizona would do such a thing and a disgrace. and after Oct 1 it will be tragic.

Robyn

former Arizona resident, CF partner
 
C

colinmaydahl

New member
This is sad...but what we have to look forward to with Gov't. healthcare

This article had nothing to do with federal health care, it is the state that is having to make the cuts because of their budget problems. Arizona has never done a good job prioritizing anything from education to immigration. It is all backwards.I grew up in Arizona, i watch the state make cut after cut. I have had AHCCCS and frankly i was surprised that the offer of transplants were even covered by the state's health care. I have had AHCCS and they always seemed to find some loop hole that screwed over those they claimed to insure. My heart goes out to Tate and her family and loved ones. There should be some another way. California offers State Government healthcare service known as GHPP Genetically Handicap person's program that does cover most needs of those born with a genetic disease. It is has not been cut from the government provided services since the federal healthcare overhall occurred. California is even in a worse state economically than Arizona.It is a shame that Arizona would do such a thing and a disgrace. and after Oct 1 it will be tragic.

Robyn

former Arizona resident, CF partner
 
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