This is sad...but what we have to look forward to with Gov't. healthcare
If anyone is interested in e-mailing some letters to try and help get this decision reversed....we (Scott and myself) have them listed below. Scott and my father have written many already today.
Yes, we are aware that was a state decision due to budget cuts....if one state is hurting with it's deficit so badly that it is cutting lives...what do you think is going to happen when our gov't (who as a nation is extremely in debt)trys to provide healthcare to the entire country? This could be just the beginning, and we aren't willing to sit by without trying to do something about it. That's all. We truly do understand why people have to use state funded healthcare. Like someone said, without it, many of our adult cf'ers would have nothing. So, let's protect it. Let's make our voices heard before this cf'er loses her battle.
Thomas Betlach: Director of the Arizona Health Care Cost Containment
System ....... he's the main one in charge.... along with the Governor...
in this issue
Email: thomas.betlach@azahcccs.gov
Eileen Klein: Chief of Staff Office of Economic Recovery
Email: azrecovery@az.gov
Laura Oxley, PIO: Arizona Department of Health Services
Email: oxleyl@azdhs.gov
It will also help to email the legislature.... both the Senate and the
House.......
Also, if anyone is interested, here are the letters my husband and father wrote.
Monica,
Thank you for your response.... I do appreciate it! Please, please do take
the time to visit Zoe's web page and view her video montage.
I urge you to please consider our plea on behalf of Tiffany and so many,
many others out there, to not withhold Medicaid funding for cystic fibrosis
sufferers seeking lung transplants. After receipt of "new" lungs they very
well have the possibility of a long and much healthier life...... with
lungs free from CF.
I will let you know that I am forwarding faxes and emails etc. to Governor
Brewer, Tom Betlach, Laura Oxley and several others.... to include both
Senate and House members. I would suspect that other individuals are doing
the same thing.
As I wrote in my letter to the governor, I completely understand budgetary
concerns, but I am sure that there are many, many different areas where
waste is prevalent and prominent. Withholding funding for lung transplants
is the same as sentencing someone to death. I don't want that for my little
girl.... for Zoe... even if she was 27 years-old. Watch Zoe's video and, if
you have a child, imagine it was them and and imagine how you would feel.
Monica, I am only 44 and actually quite healthy. I have a large and
wonderful family and an incredible wife whom I adore, but I would give my
life in an instant for a cure for CF....... so that Zoe would live. But we
all do not know how soon a cure may be discovered and, if it's years later
and Zoe develops lung problems common to all CFer's, there is a very real
possibility that she may require a transplant and I want her to be able to
obtain one if needed. If your measure is instituted, it will indeed set a
very dangerous and life threatening precedent. I urge you to re-visit the
issue and have the decision reversed...... please!
Kind Regards,
Scott
This one is from my father, retired Navy Commander:
I have sent 4 emails to Arizona in support of stopping this madness.
"I have been watching Arizona and the difficult situations your state is facing with great interest and compassion. I have totally committed myself to supporting Arizona in their stand against Illegal immigration. I pass emails in support of the Governor's actions daily to my email friends. You are doing the right thing and I believe America supports you.
However the news article in the Arizona Daily Star about "Transplant dream fading" does not receive my support nor that, I believe, of any other Human. Depriving this population from a chance to life sounds very familiar to what Hitler had in mind during his regime. This news article struck close to home as we have a Granddaughter, Zoe with CF. We have witnessed for the past seven years the challenges Zoe faces to live a normal life, a chance she deserves. Her parents have given 100% of their time and resources to insuring their daughter Zoe, has a life. There are no easy challenges with CF and unfortunately a lung transplants can be a possibility in their future. These families fight this insidious disease daily with vigor and conviction - to have the hope of a decent life for their daughter destroyed by this piece of legislation is inhuman.
To ever say that a life will be sacrificed in the interest of a budget in beyond my comprehension. I urge Arizona to reconsider its position on this health issue
ps
I spent 21 years in the US Navy, I have worked in our school systems ,private business and state government. I can say without reservation that the waste I have seen in each of these organizations is of such a magnitude as to fund health care. How America has ever gotten to our present state is unbelievable. I think the era of "professional politicians" is rapidly drawing to a close. We need to put real people back into politics, we need Statesmen. I hope Arizona has some."
