Life Without CF

I

ihatecf

New member
For a normal healthy person its taken for granted, but what if a cfer suddenly wakes up with no cf. No congestions in the morning, no bronchodilators, no enzymes with food, no hospital stays, no more coughing, no breathless moments upon any effort ( for low fevs), no worries about tommorow, future plans, its freedom.

However, its too silly to think that if I dont have cf I would be a happy person because people outthere vent and get depressed for the silliest of reasons.

Unfortunately, now that I would appreciate life without cf I cant have it. I know it will be like heaven.

If everyone on earth just spends a month with cf, his life would change.

I myself didnt know I had cf during my teenage years and my health was quite good ( except for the frequent diarrhea which made me avoid fatty foods). So I didnt do any treatments or took any pills, but i made a mess out of my life. I wasted my time doing silly things and was unhappy for most of the time.

I had my best moments during the time CF was already in control and my pfts were already under 40.

I dont want to be born again free of CF because I'll waste it. I just want a new life without CF remembering and differentiating between life with cf and without it. That is impossible, unless they cure cf ( that wont happen in the near future) but imagine it happening...

Just bored and venting
 
I

ihatecf

New member
For a normal healthy person its taken for granted, but what if a cfer suddenly wakes up with no cf. No congestions in the morning, no bronchodilators, no enzymes with food, no hospital stays, no more coughing, no breathless moments upon any effort ( for low fevs), no worries about tommorow, future plans, its freedom.

However, its too silly to think that if I dont have cf I would be a happy person because people outthere vent and get depressed for the silliest of reasons.

Unfortunately, now that I would appreciate life without cf I cant have it. I know it will be like heaven.

If everyone on earth just spends a month with cf, his life would change.

I myself didnt know I had cf during my teenage years and my health was quite good ( except for the frequent diarrhea which made me avoid fatty foods). So I didnt do any treatments or took any pills, but i made a mess out of my life. I wasted my time doing silly things and was unhappy for most of the time.

I had my best moments during the time CF was already in control and my pfts were already under 40.

I dont want to be born again free of CF because I'll waste it. I just want a new life without CF remembering and differentiating between life with cf and without it. That is impossible, unless they cure cf ( that wont happen in the near future) but imagine it happening...

Just bored and venting
 
I

ihatecf

New member
For a normal healthy person its taken for granted, but what if a cfer suddenly wakes up with no cf. No congestions in the morning, no bronchodilators, no enzymes with food, no hospital stays, no more coughing, no breathless moments upon any effort ( for low fevs), no worries about tommorow, future plans, its freedom.

However, its too silly to think that if I dont have cf I would be a happy person because people outthere vent and get depressed for the silliest of reasons.

Unfortunately, now that I would appreciate life without cf I cant have it. I know it will be like heaven.

If everyone on earth just spends a month with cf, his life would change.

I myself didnt know I had cf during my teenage years and my health was quite good ( except for the frequent diarrhea which made me avoid fatty foods). So I didnt do any treatments or took any pills, but i made a mess out of my life. I wasted my time doing silly things and was unhappy for most of the time.

I had my best moments during the time CF was already in control and my pfts were already under 40.

I dont want to be born again free of CF because I'll waste it. I just want a new life without CF remembering and differentiating between life with cf and without it. That is impossible, unless they cure cf ( that wont happen in the near future) but imagine it happening...

Just bored and venting
 
A

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ihatecf</b></i>

For a normal healthy person its taken for granted, but what if a cfer suddenly wakes up with no cf. No congestions in the morning, no bronchodilators, no enzymes with food, no hospital stays, no more coughing, no breathless moments upon any effort ( for low fevs), no worries about tommorow, future plans, its freedom.



However, its too silly to think that if I dont have cf I would be a happy person because people outthere vent and get depressed for the silliest of reasons.



Unfortunately, now that I would appreciate life without cf I cant have it. I know it will be like heaven.



If everyone on earth just spends a month with cf, his life would change.



I myself didnt know I had cf during my teenage years and my health was quite good ( except for the frequent diarrhea which made me avoid fatty foods). So I didnt do any treatments or took any pills, but i made a mess out of my life. I wasted my time doing silly things and was unhappy for most of the time.



I had my best moments during the time CF was already in control and my pfts were already under 40.



I dont want to be born again free of CF because I'll waste it. I just want a new life without CF remembering and differentiating between life with cf and without it. That is impossible, unless they cure cf ( that wont happen in the near future) but imagine it happening...



Just bored and venting</end quote></div>



You are the antithesis of me, I barely know I have CF. I work out every day and recently ran a half marathon. I inhale my meds and take enzymes w/ every meal but I don't think twice about it nor complain.

One of my goals in life is to not die from CF. I am 23 and my pft's are getting better w/ age. They used to be in the high 80's, now they are in the high 90's because I have started running (I used to just lift weights). I refuse to sit around and complain, "why me!" I take it as a goal to beat CF and I know I will.
 
A

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ihatecf</b></i>

For a normal healthy person its taken for granted, but what if a cfer suddenly wakes up with no cf. No congestions in the morning, no bronchodilators, no enzymes with food, no hospital stays, no more coughing, no breathless moments upon any effort ( for low fevs), no worries about tommorow, future plans, its freedom.



However, its too silly to think that if I dont have cf I would be a happy person because people outthere vent and get depressed for the silliest of reasons.



Unfortunately, now that I would appreciate life without cf I cant have it. I know it will be like heaven.



If everyone on earth just spends a month with cf, his life would change.



I myself didnt know I had cf during my teenage years and my health was quite good ( except for the frequent diarrhea which made me avoid fatty foods). So I didnt do any treatments or took any pills, but i made a mess out of my life. I wasted my time doing silly things and was unhappy for most of the time.



I had my best moments during the time CF was already in control and my pfts were already under 40.



I dont want to be born again free of CF because I'll waste it. I just want a new life without CF remembering and differentiating between life with cf and without it. That is impossible, unless they cure cf ( that wont happen in the near future) but imagine it happening...



Just bored and venting</end quote></div>



You are the antithesis of me, I barely know I have CF. I work out every day and recently ran a half marathon. I inhale my meds and take enzymes w/ every meal but I don't think twice about it nor complain.

One of my goals in life is to not die from CF. I am 23 and my pft's are getting better w/ age. They used to be in the high 80's, now they are in the high 90's because I have started running (I used to just lift weights). I refuse to sit around and complain, "why me!" I take it as a goal to beat CF and I know I will.
 
A

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ihatecf</b></i>

For a normal healthy person its taken for granted, but what if a cfer suddenly wakes up with no cf. No congestions in the morning, no bronchodilators, no enzymes with food, no hospital stays, no more coughing, no breathless moments upon any effort ( for low fevs), no worries about tommorow, future plans, its freedom.



However, its too silly to think that if I dont have cf I would be a happy person because people outthere vent and get depressed for the silliest of reasons.



Unfortunately, now that I would appreciate life without cf I cant have it. I know it will be like heaven.



If everyone on earth just spends a month with cf, his life would change.



I myself didnt know I had cf during my teenage years and my health was quite good ( except for the frequent diarrhea which made me avoid fatty foods). So I didnt do any treatments or took any pills, but i made a mess out of my life. I wasted my time doing silly things and was unhappy for most of the time.



I had my best moments during the time CF was already in control and my pfts were already under 40.



I dont want to be born again free of CF because I'll waste it. I just want a new life without CF remembering and differentiating between life with cf and without it. That is impossible, unless they cure cf ( that wont happen in the near future) but imagine it happening...



Just bored and venting</end quote></div>



You are the antithesis of me, I barely know I have CF. I work out every day and recently ran a half marathon. I inhale my meds and take enzymes w/ every meal but I don't think twice about it nor complain.

One of my goals in life is to not die from CF. I am 23 and my pft's are getting better w/ age. They used to be in the high 80's, now they are in the high 90's because I have started running (I used to just lift weights). I refuse to sit around and complain, "why me!" I take it as a goal to beat CF and I know I will.
 
S

Scarlett81

New member
I never thought about having it/not having it, or being different when I was younger. Since I came to this site, the reality of it smacked me in the face more often and in the beginning that was a good thing-it got me out of my denial phase and I started taking better care of myself.

But to be honest-now I try to make a concious effort to not be concious of it. For me, if I get too absorbed in wishing for CF free days I find that I can't enjoy anything in life b/c everything is tainted with Cf. I'll have a great day, laughing, bubbly and then in the middle of my laughter, I stop and think oh yeah, wait, I have Cf. Well that's not healthy and I try not to do that anymore. It's useless and destructive.

But, we all have those days. It's normal to have them. But maybe try to just let yourself feel that momentarily if you have to , then let it go.
 
S

Scarlett81

New member
I never thought about having it/not having it, or being different when I was younger. Since I came to this site, the reality of it smacked me in the face more often and in the beginning that was a good thing-it got me out of my denial phase and I started taking better care of myself.

But to be honest-now I try to make a concious effort to not be concious of it. For me, if I get too absorbed in wishing for CF free days I find that I can't enjoy anything in life b/c everything is tainted with Cf. I'll have a great day, laughing, bubbly and then in the middle of my laughter, I stop and think oh yeah, wait, I have Cf. Well that's not healthy and I try not to do that anymore. It's useless and destructive.

But, we all have those days. It's normal to have them. But maybe try to just let yourself feel that momentarily if you have to , then let it go.
 
S

Scarlett81

New member
I never thought about having it/not having it, or being different when I was younger. Since I came to this site, the reality of it smacked me in the face more often and in the beginning that was a good thing-it got me out of my denial phase and I started taking better care of myself.

But to be honest-now I try to make a concious effort to not be concious of it. For me, if I get too absorbed in wishing for CF free days I find that I can't enjoy anything in life b/c everything is tainted with Cf. I'll have a great day, laughing, bubbly and then in the middle of my laughter, I stop and think oh yeah, wait, I have Cf. Well that's not healthy and I try not to do that anymore. It's useless and destructive.

But, we all have those days. It's normal to have them. But maybe try to just let yourself feel that momentarily if you have to , then let it go.
 
I

ihatecf

New member
I cant 4get about CF when I'm bombarded by treatments everyday and everytime I go upstairs it takes 5 minutes to regain my breath. I'm talikng of a 25% fev perspective.
 
I

ihatecf

New member
I cant 4get about CF when I'm bombarded by treatments everyday and everytime I go upstairs it takes 5 minutes to regain my breath. I'm talikng of a 25% fev perspective.
 
I

ihatecf

New member
I cant 4get about CF when I'm bombarded by treatments everyday and everytime I go upstairs it takes 5 minutes to regain my breath. I'm talikng of a 25% fev perspective.
 
A

anonymous

New member
i think the struggle is as it infiltrates your life more and more its harder and harder to not think about it.

it is great if all you have to do is your meds and go about your day, i dont think any of us really DESPISE the med treatments, its the getting sick and feeling sick and worrying.

i was totally aware of myself as a person with CF when I had good pft's and did whatever I wanted, but I aware of it in a completely different way now that I am not as healthy.

i think there is a big difference between 90% FEV1 and 25% FEV1....mindsets cant even possibly be the same
 
A

anonymous

New member
i think the struggle is as it infiltrates your life more and more its harder and harder to not think about it.

it is great if all you have to do is your meds and go about your day, i dont think any of us really DESPISE the med treatments, its the getting sick and feeling sick and worrying.

i was totally aware of myself as a person with CF when I had good pft's and did whatever I wanted, but I aware of it in a completely different way now that I am not as healthy.

i think there is a big difference between 90% FEV1 and 25% FEV1....mindsets cant even possibly be the same
 
A

anonymous

New member
i think the struggle is as it infiltrates your life more and more its harder and harder to not think about it.

it is great if all you have to do is your meds and go about your day, i dont think any of us really DESPISE the med treatments, its the getting sick and feeling sick and worrying.

i was totally aware of myself as a person with CF when I had good pft's and did whatever I wanted, but I aware of it in a completely different way now that I am not as healthy.

i think there is a big difference between 90% FEV1 and 25% FEV1....mindsets cant even possibly be the same
 
L

Lance2020x

New member
Life without CF? Yeah. I've thought about that.<br>
You know whats interesting? I've though about the fact of, with as
much as we take care of ourselves, and some of us, when we're
REALLY healthy have PFT's of a normal person. If we just woke up
without CF, would be be like superhumans? Aside from CF related
sickness, I NEVER get sick.<br>
<br>
I know exactly what you mean, and I also know what
<strong>Rutgersnyy</strong> means.<br>
When I'm healthy, I just kind of forget that I have CF. But then
somedays when I'm on inhalers and all kind of crap I just get
really, really worn out. I just start to get really tired of
medications.<br>
<br>
But I just have to figure, heck, there are SO many people worse off
than me. I've been dancing since I was 7 years old, and I'm more
physically fit than most non-CFers.<br>
<br>
But I do agree, I think that CFers are so far emotionally ahead of
most people who haven't faced the thought of death their whole
lives.<br>
Maybe so many other peoples problems DO seem trivial in comparison
to some of ours. But like I tell people who know about my CF (I
don't let many people know, I don't want to be looked at
differently). You may THINK that your problems are trivial to mine,
but what I've been through has trained me to be able to handle
more. So your problems are just as stressing as mine, becuase you
just haven't been through the same things. So your worse problems
are just different than mine, not less important.<br>
<br>
Okay sorry, it's late, I'm just typing out my thoughts. But I'm
afraid I've ended up babbling.<br>
 
L

Lance2020x

New member
Life without CF? Yeah. I've thought about that.<br>
You know whats interesting? I've though about the fact of, with as
much as we take care of ourselves, and some of us, when we're
REALLY healthy have PFT's of a normal person. If we just woke up
without CF, would be be like superhumans? Aside from CF related
sickness, I NEVER get sick.<br>
<br>
I know exactly what you mean, and I also know what
<strong>Rutgersnyy</strong> means.<br>
When I'm healthy, I just kind of forget that I have CF. But then
somedays when I'm on inhalers and all kind of crap I just get
really, really worn out. I just start to get really tired of
medications.<br>
<br>
But I just have to figure, heck, there are SO many people worse off
than me. I've been dancing since I was 7 years old, and I'm more
physically fit than most non-CFers.<br>
<br>
But I do agree, I think that CFers are so far emotionally ahead of
most people who haven't faced the thought of death their whole
lives.<br>
Maybe so many other peoples problems DO seem trivial in comparison
to some of ours. But like I tell people who know about my CF (I
don't let many people know, I don't want to be looked at
differently). You may THINK that your problems are trivial to mine,
but what I've been through has trained me to be able to handle
more. So your problems are just as stressing as mine, becuase you
just haven't been through the same things. So your worse problems
are just different than mine, not less important.<br>
<br>
Okay sorry, it's late, I'm just typing out my thoughts. But I'm
afraid I've ended up babbling.<br>
 
You must log in or register to reply here.
Top