You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
A
Aspiemom
Guest
Remember all of those crazy songs she used to make up about medicines and sputum and cf? lol
A
Aspiemom
Guest
Remember all of those crazy songs she used to make up about medicines and sputum and cf? lol
A
Aspiemom
Guest
Remember all of those crazy songs she used to make up about medicines and sputum and cf? lol
Life with CF (from LightNLife's Blog)
Mornings start with a crackle, or maybe a wheeze;
it's all just a part of this nasty disease.
I spent my night upright just to breathe in and out;
For me that's what life with CF is about.
Cystic fibrosis, the monster within
steals time and steals breath again and again.
My level-best efforts to keep it at bay
require dozens of pills and inhalers each day.
I budget my time so I'm not always tired
but some days CF leaves me quite uninspired.
I do what I can to be as normal as you,
I work when I can and write a bit too.
Try as I might, I can't put on weight
don't tell me you're envious, that's something I hate.
I eat like a horse, or some other large beast
a meal made for 2 looks more like a feast!
I've made online friends who share my same fate
they're almost like family and that sure is great!
Daily I check their blogs and their rants,
their triumphs, their failures, they're "I wills" and "I can'ts."
The best part of my life is a man I adore,
we've had five years together and I want 50 more.
He loves and supports me each day without fail,
Having found him is like having found the Holy Grail.
We savor the moments when the monster's asleep
we tiptoe around it, making nary a peep.
But once in a while (too often it seems)
The reality of CF changes our dreams.
Each day is a blessing, in spite of CF
I treasure the seasons I hopeI have left.
I never expected that I would grow old,
but the life-span's increasing is what we've been told.
With hope for the future and faith as our light,
we hold onto Jesus and fear not the night.
When God says it's time, I'll go willingly;
my life with CF will finally cease to be.
Mornings start with a crackle, or maybe a wheeze;
it's all just a part of this nasty disease.
I spent my night upright just to breathe in and out;
For me that's what life with CF is about.
Cystic fibrosis, the monster within
steals time and steals breath again and again.
My level-best efforts to keep it at bay
require dozens of pills and inhalers each day.
I budget my time so I'm not always tired
but some days CF leaves me quite uninspired.
I do what I can to be as normal as you,
I work when I can and write a bit too.
Try as I might, I can't put on weight
don't tell me you're envious, that's something I hate.
I eat like a horse, or some other large beast
a meal made for 2 looks more like a feast!
I've made online friends who share my same fate
they're almost like family and that sure is great!
Daily I check their blogs and their rants,
their triumphs, their failures, they're "I wills" and "I can'ts."
The best part of my life is a man I adore,
we've had five years together and I want 50 more.
He loves and supports me each day without fail,
Having found him is like having found the Holy Grail.
We savor the moments when the monster's asleep
we tiptoe around it, making nary a peep.
But once in a while (too often it seems)
The reality of CF changes our dreams.
Each day is a blessing, in spite of CF
I treasure the seasons I hopeI have left.
I never expected that I would grow old,
but the life-span's increasing is what we've been told.
With hope for the future and faith as our light,
we hold onto Jesus and fear not the night.
When God says it's time, I'll go willingly;
my life with CF will finally cease to be.
Life with CF (from LightNLife's Blog)
Mornings start with a crackle, or maybe a wheeze;
it's all just a part of this nasty disease.
I spent my night upright just to breathe in and out;
For me that's what life with CF is about.
Cystic fibrosis, the monster within
steals time and steals breath again and again.
My level-best efforts to keep it at bay
require dozens of pills and inhalers each day.
I budget my time so I'm not always tired
but some days CF leaves me quite uninspired.
I do what I can to be as normal as you,
I work when I can and write a bit too.
Try as I might, I can't put on weight
don't tell me you're envious, that's something I hate.
I eat like a horse, or some other large beast
a meal made for 2 looks more like a feast!
I've made online friends who share my same fate
they're almost like family and that sure is great!
Daily I check their blogs and their rants,
their triumphs, their failures, they're "I wills" and "I can'ts."
The best part of my life is a man I adore,
we've had five years together and I want 50 more.
He loves and supports me each day without fail,
Having found him is like having found the Holy Grail.
We savor the moments when the monster's asleep
we tiptoe around it, making nary a peep.
But once in a while (too often it seems)
The reality of CF changes our dreams.
Each day is a blessing, in spite of CF
I treasure the seasons I hopeI have left.
I never expected that I would grow old,
but the life-span's increasing is what we've been told.
With hope for the future and faith as our light,
we hold onto Jesus and fear not the night.
When God says it's time, I'll go willingly;
my life with CF will finally cease to be.
Mornings start with a crackle, or maybe a wheeze;
it's all just a part of this nasty disease.
I spent my night upright just to breathe in and out;
For me that's what life with CF is about.
Cystic fibrosis, the monster within
steals time and steals breath again and again.
My level-best efforts to keep it at bay
require dozens of pills and inhalers each day.
I budget my time so I'm not always tired
but some days CF leaves me quite uninspired.
I do what I can to be as normal as you,
I work when I can and write a bit too.
Try as I might, I can't put on weight
don't tell me you're envious, that's something I hate.
I eat like a horse, or some other large beast
a meal made for 2 looks more like a feast!
I've made online friends who share my same fate
they're almost like family and that sure is great!
Daily I check their blogs and their rants,
their triumphs, their failures, they're "I wills" and "I can'ts."
The best part of my life is a man I adore,
we've had five years together and I want 50 more.
He loves and supports me each day without fail,
Having found him is like having found the Holy Grail.
We savor the moments when the monster's asleep
we tiptoe around it, making nary a peep.
But once in a while (too often it seems)
The reality of CF changes our dreams.
Each day is a blessing, in spite of CF
I treasure the seasons I hopeI have left.
I never expected that I would grow old,
but the life-span's increasing is what we've been told.
With hope for the future and faith as our light,
we hold onto Jesus and fear not the night.
When God says it's time, I'll go willingly;
my life with CF will finally cease to be.
Life with CF (from LightNLife's Blog)
<br />
<br />Mornings start with a crackle, or maybe a wheeze;
<br />it's all just a part of this nasty disease.
<br />I spent my night upright just to breathe in and out;
<br />For me that's what life with CF is about.
<br />
<br />Cystic fibrosis, the monster within
<br />steals time and steals breath again and again.
<br />My level-best efforts to keep it at bay
<br />require dozens of pills and inhalers each day.
<br />
<br />I budget my time so I'm not always tired
<br />but some days CF leaves me quite uninspired.
<br />I do what I can to be as normal as you,
<br />I work when I can and write a bit too.
<br />
<br />Try as I might, I can't put on weight
<br />don't tell me you're envious, that's something I hate.
<br />I eat like a horse, or some other large beast
<br />a meal made for 2 looks more like a feast!
<br />
<br />I've made online friends who share my same fate
<br />they're almost like family and that sure is great!
<br />Daily I check their blogs and their rants,
<br />their triumphs, their failures, they're "I wills" and "I can'ts."
<br />
<br />The best part of my life is a man I adore,
<br />we've had five years together and I want 50 more.
<br />He loves and supports me each day without fail,
<br />Having found him is like having found the Holy Grail.
<br />
<br />We savor the moments when the monster's asleep
<br />we tiptoe around it, making nary a peep.
<br />But once in a while (too often it seems)
<br />The reality of CF changes our dreams.
<br />
<br />Each day is a blessing, in spite of CF
<br />I treasure the seasons I hopeI have left.
<br />I never expected that I would grow old,
<br />but the life-span's increasing is what we've been told.
<br />
<br />With hope for the future and faith as our light,
<br />we hold onto Jesus and fear not the night.
<br />When God says it's time, I'll go willingly;
<br />my life with CF will finally cease to be.
<br />
<br />Mornings start with a crackle, or maybe a wheeze;
<br />it's all just a part of this nasty disease.
<br />I spent my night upright just to breathe in and out;
<br />For me that's what life with CF is about.
<br />
<br />Cystic fibrosis, the monster within
<br />steals time and steals breath again and again.
<br />My level-best efforts to keep it at bay
<br />require dozens of pills and inhalers each day.
<br />
<br />I budget my time so I'm not always tired
<br />but some days CF leaves me quite uninspired.
<br />I do what I can to be as normal as you,
<br />I work when I can and write a bit too.
<br />
<br />Try as I might, I can't put on weight
<br />don't tell me you're envious, that's something I hate.
<br />I eat like a horse, or some other large beast
<br />a meal made for 2 looks more like a feast!
<br />
<br />I've made online friends who share my same fate
<br />they're almost like family and that sure is great!
<br />Daily I check their blogs and their rants,
<br />their triumphs, their failures, they're "I wills" and "I can'ts."
<br />
<br />The best part of my life is a man I adore,
<br />we've had five years together and I want 50 more.
<br />He loves and supports me each day without fail,
<br />Having found him is like having found the Holy Grail.
<br />
<br />We savor the moments when the monster's asleep
<br />we tiptoe around it, making nary a peep.
<br />But once in a while (too often it seems)
<br />The reality of CF changes our dreams.
<br />
<br />Each day is a blessing, in spite of CF
<br />I treasure the seasons I hopeI have left.
<br />I never expected that I would grow old,
<br />but the life-span's increasing is what we've been told.
<br />
<br />With hope for the future and faith as our light,
<br />we hold onto Jesus and fear not the night.
<br />When God says it's time, I'll go willingly;
<br />my life with CF will finally cease to be.
One of the three people we've lost recently who were major parts of this forum, sort of like the furniture, It's just not the same without them <img src="i/expressions/brokenheart.gif" border="0">
I miss them all, a thought and prayer for our missing friends, hard to believe it's been around a year or so for all of them now
LightNLife
JazzysMom
Dianne
<img src="i/expressions/face-icon-small-sad.gif" border="0">
<img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0">
I miss them all, a thought and prayer for our missing friends, hard to believe it's been around a year or so for all of them now
LightNLife
JazzysMom
Dianne
<img src="i/expressions/face-icon-small-sad.gif" border="0">
<img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0">
One of the three people we've lost recently who were major parts of this forum, sort of like the furniture, It's just not the same without them <img src="i/expressions/brokenheart.gif" border="0">
I miss them all, a thought and prayer for our missing friends, hard to believe it's been around a year or so for all of them now
LightNLife
JazzysMom
Dianne
<img src="i/expressions/face-icon-small-sad.gif" border="0">
<img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0">
I miss them all, a thought and prayer for our missing friends, hard to believe it's been around a year or so for all of them now
LightNLife
JazzysMom
Dianne
<img src="i/expressions/face-icon-small-sad.gif" border="0">
<img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0">
One of the three people we've lost recently who were major parts of this forum, sort of like the furniture, It's just not the same without them <img src="i/expressions/brokenheart.gif" border="0">
<br />
<br />I miss them all, a thought and prayer for our missing friends, hard to believe it's been around a year or so for all of them now
<br />
<br />LightNLife
<br />JazzysMom
<br />Dianne
<br />
<br /><img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br /><img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0">
<br />
<br />I miss them all, a thought and prayer for our missing friends, hard to believe it's been around a year or so for all of them now
<br />
<br />LightNLife
<br />JazzysMom
<br />Dianne
<br />
<br /><img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br /><img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0"> <img src="i/expressions/rose.gif" border="0">
Thanks for reminding us of Lauren, Debbi. Hard to believe it has been a year already.
I think of Lauren often. Like LouLou, I found Lauren's faith inspiring and learned so much from her about life, love, marriage, and faith.
I hope people caught Brad's post in the partners section a couple weeks ago. I'm glad to hear he is doing so well.
I think of Lauren every time I eat a cheddar bay biscuit at Red Lobster! We shared a love for them. I also can't see a bunny without thinking of Lauren's beloved bunnies!<img src="i/expressions/face-icon-small-wink.gif" border="0">
I think of Lauren often. Like LouLou, I found Lauren's faith inspiring and learned so much from her about life, love, marriage, and faith.
I hope people caught Brad's post in the partners section a couple weeks ago. I'm glad to hear he is doing so well.
I think of Lauren every time I eat a cheddar bay biscuit at Red Lobster! We shared a love for them. I also can't see a bunny without thinking of Lauren's beloved bunnies!<img src="i/expressions/face-icon-small-wink.gif" border="0">