Liver functions

[mom2leila]

Hi Nicole -

We know all about the liver stuff here, but I don't think it's common. I've heard 15-20% as well. Our daughter became jaundiced with enlarged liver at 2 months. We were also put on actigal twice a day. Her liver enzymes never returned to normal. We get ultrasounds every 6 months. We've also had two liver biopsies. Our last u/s was a couple weeks ago and showed she has early portal hypertension. Eventually she will require a liver transplant. Our doctor has told us he doesn't know how much time she has - it will depend on how her liver disease progresses. The biggest factor they will look at is growth. On the ultrasound they look for how the blood flows. Our daughter has enough constriction to make both her liver and spleen large. I think we're a more unusual case, though. I haven't heard of lots of other kids as young as ours with this much trouble. <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[mom2leila]

Hi Nicole -

We know all about the liver stuff here, but I don't think it's common. I've heard 15-20% as well. Our daughter became jaundiced with enlarged liver at 2 months. We were also put on actigal twice a day. Her liver enzymes never returned to normal. We get ultrasounds every 6 months. We've also had two liver biopsies. Our last u/s was a couple weeks ago and showed she has early portal hypertension. Eventually she will require a liver transplant. Our doctor has told us he doesn't know how much time she has - it will depend on how her liver disease progresses. The biggest factor they will look at is growth. On the ultrasound they look for how the blood flows. Our daughter has enough constriction to make both her liver and spleen large. I think we're a more unusual case, though. I haven't heard of lots of other kids as young as ours with this much trouble. <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[mom2leila]

Hi Nicole -

We know all about the liver stuff here, but I don't think it's common. I've heard 15-20% as well. Our daughter became jaundiced with enlarged liver at 2 months. We were also put on actigal twice a day. Her liver enzymes never returned to normal. We get ultrasounds every 6 months. We've also had two liver biopsies. Our last u/s was a couple weeks ago and showed she has early portal hypertension. Eventually she will require a liver transplant. Our doctor has told us he doesn't know how much time she has - it will depend on how her liver disease progresses. The biggest factor they will look at is growth. On the ultrasound they look for how the blood flows. Our daughter has enough constriction to make both her liver and spleen large. I think we're a more unusual case, though. I haven't heard of lots of other kids as young as ours with this much trouble. <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[mom2leila]

Hi Nicole -

We know all about the liver stuff here, but I don't think it's common. I've heard 15-20% as well. Our daughter became jaundiced with enlarged liver at 2 months. We were also put on actigal twice a day. Her liver enzymes never returned to normal. We get ultrasounds every 6 months. We've also had two liver biopsies. Our last u/s was a couple weeks ago and showed she has early portal hypertension. Eventually she will require a liver transplant. Our doctor has told us he doesn't know how much time she has - it will depend on how her liver disease progresses. The biggest factor they will look at is growth. On the ultrasound they look for how the blood flows. Our daughter has enough constriction to make both her liver and spleen large. I think we're a more unusual case, though. I haven't heard of lots of other kids as young as ours with this much trouble. <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[mom2leila]

Hi Nicole -
<br />
<br /> We know all about the liver stuff here, but I don't think it's common. I've heard 15-20% as well. Our daughter became jaundiced with enlarged liver at 2 months. We were also put on actigal twice a day. Her liver enzymes never returned to normal. We get ultrasounds every 6 months. We've also had two liver biopsies. Our last u/s was a couple weeks ago and showed she has early portal hypertension. Eventually she will require a liver transplant. Our doctor has told us he doesn't know how much time she has - it will depend on how her liver disease progresses. The biggest factor they will look at is growth. On the ultrasound they look for how the blood flows. Our daughter has enough constriction to make both her liver and spleen large. I think we're a more unusual case, though. I haven't heard of lots of other kids as young as ours with this much trouble. <img src="i/expressions/face-icon-small-sad.gif" border="0">
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[NFitzgerald]

Thanks for the information... I was just a little surprised when the doctor told me that his liver tests were abnormal at such a young age. Thank you for the information, I really do appreciate it. I will post again once I get the ultrasound results.

Thanks again

 

[NFitzgerald]

Thanks for the information... I was just a little surprised when the doctor told me that his liver tests were abnormal at such a young age. Thank you for the information, I really do appreciate it. I will post again once I get the ultrasound results.

Thanks again

 

[NFitzgerald]

Thanks for the information... I was just a little surprised when the doctor told me that his liver tests were abnormal at such a young age. Thank you for the information, I really do appreciate it. I will post again once I get the ultrasound results.

Thanks again

 

[NFitzgerald]

Thanks for the information... I was just a little surprised when the doctor told me that his liver tests were abnormal at such a young age. Thank you for the information, I really do appreciate it. I will post again once I get the ultrasound results.

Thanks again

 

[NFitzgerald]

Thanks for the information... I was just a little surprised when the doctor told me that his liver tests were abnormal at such a young age. Thank you for the information, I really do appreciate it. I will post again once I get the ultrasound results.
<br />
<br />Thanks again
<br />
<br />

 

[purplemartin]

Briceton was diagnosed with CF related liver disease about 6 months ago. He is followed up with a liver specialist at GI clinic. We also attend a CF/GI combine clinic every 12 weeks. He will be followed closely and he has annual liver scans/labs done as well.

Many CFers have elevated liver enzymes but do not have liver disease, so depending on the results of the ultrasound, make sure he is seen by a liver specialist. Although CF docs deal with CF and many of its complications, they are not liver specialist in any way.

Wishing for the best.....

 

[purplemartin]

Briceton was diagnosed with CF related liver disease about 6 months ago. He is followed up with a liver specialist at GI clinic. We also attend a CF/GI combine clinic every 12 weeks. He will be followed closely and he has annual liver scans/labs done as well.

Many CFers have elevated liver enzymes but do not have liver disease, so depending on the results of the ultrasound, make sure he is seen by a liver specialist. Although CF docs deal with CF and many of its complications, they are not liver specialist in any way.

Wishing for the best.....

 

[purplemartin]

Briceton was diagnosed with CF related liver disease about 6 months ago. He is followed up with a liver specialist at GI clinic. We also attend a CF/GI combine clinic every 12 weeks. He will be followed closely and he has annual liver scans/labs done as well.

Many CFers have elevated liver enzymes but do not have liver disease, so depending on the results of the ultrasound, make sure he is seen by a liver specialist. Although CF docs deal with CF and many of its complications, they are not liver specialist in any way.

Wishing for the best.....

 

[purplemartin]

Briceton was diagnosed with CF related liver disease about 6 months ago. He is followed up with a liver specialist at GI clinic. We also attend a CF/GI combine clinic every 12 weeks. He will be followed closely and he has annual liver scans/labs done as well.

Many CFers have elevated liver enzymes but do not have liver disease, so depending on the results of the ultrasound, make sure he is seen by a liver specialist. Although CF docs deal with CF and many of its complications, they are not liver specialist in any way.

Wishing for the best.....

 

[purplemartin]

Briceton was diagnosed with CF related liver disease about 6 months ago. He is followed up with a liver specialist at GI clinic. We also attend a CF/GI combine clinic every 12 weeks. He will be followed closely and he has annual liver scans/labs done as well.
<br />
<br />Many CFers have elevated liver enzymes but do not have liver disease, so depending on the results of the ultrasound, make sure he is seen by a liver specialist. Although CF docs deal with CF and many of its complications, they are not liver specialist in any way.
<br />
<br />Wishing for the best.....
<br />