Some of what lisaV posted makes me think. I agree because CF has affected how I think about life. I've posted this a few times before, but it's been a while and it's always nice to remind myself.
When I realized the reality of Mark's life, that sure he'll die, just like I will-Just like any of my other loved ones, BUT that he MIGHT die sooner, and more painfully makes me just want to live.
I think it's what drove us to just jump in the car one day and drive from Eastern Washington into Idaho in search of a waterpark. When we arrived and the waterpark was closed, we decided to just live for the moment and keep driving. We ended up driving all the way though Idaho and up to Montana. What a beautiful and fun day that was (thank God for all those Boost shakes in the backseat <img src="i/expressions/face-icon-small-smile.gif" border="0">).
We didn't really have an excess of money, but Mark wanted to go to vegas so bad for his birthday, so guess where we went.
We try to cherish all the time we have togther, even on those days where we are just disagreeing or it's been a bad day. We do all we can to arrange our schedules so we gt as much time together as possible. I switched to the late shift at work because it was more condusive to Mark's schedule (I got up later, thus waking him up later and allowing him to sleep more) PLUS, we got to spend more time in the evening together without him having homework to do, because I worked later so he got it all done before I got home.
To me, these things are somewhat driven by the though that maybe we won't have as much time together in this life as we want, or as others get. And sure, it's unfair- but I really don't see how dwelling on it helps us, or anyone else in our lives for that matter. I won't deny that we've both talked about it, and have definately thought about it. But then, we do something about it so we've got all sorts of things to keep our mind off of it AND so we each have memories.
Thanks for this thread Steve
