looking for friends with CF

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ladybuggirl

New member
Hi there. Im new here not sure what im doing. Im 33 and i have Cf. I was diagnosed when i was 10. Looking for people to talk to dont really know that many people with CF.
Hope to talk to u soon.
 
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ladybuggirl

New member
Hi there. Im new here not sure what im doing. Im 33 and i have Cf. I was diagnosed when i was 10. Looking for people to talk to dont really know that many people with CF.
Hope to talk to u soon.
 
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atamplin07

New member
Hi Melissa! My name is Amy. I am 24 and was diagnosed when I was 4 months old. Where are you from? I am originally from Ohio but my hubby's in the navy so we live in San Diego. I have been in and out of the hospital A LOT!! So I like to think I know the ropes pretty well but as you probably already know CF has it's way of throwing curve balls every now and then. I don't think my pft's are too awful they run about 55-60% when I'm well. I don't know if you'd be interested but here is my email if you ever want to chat. atamplin07@yahoo.com
 
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atamplin07

New member
Hi Melissa! My name is Amy. I am 24 and was diagnosed when I was 4 months old. Where are you from? I am originally from Ohio but my hubby's in the navy so we live in San Diego. I have been in and out of the hospital A LOT!! So I like to think I know the ropes pretty well but as you probably already know CF has it's way of throwing curve balls every now and then. I don't think my pft's are too awful they run about 55-60% when I'm well. I don't know if you'd be interested but here is my email if you ever want to chat. atamplin07@yahoo.com
 
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nocode

New member
Hi Melissa, welcome to the site. I also didn't know anyone with CF until I joined this website back in 2005 (just as well, since we shouldn't be together in person anyway) and I've learned more about CF here, through other CFers, than any other way before.

I was diagnosed at 15 and my FEV1 has been around 35% for almost 10 years.. pretty low but stable. I have only been hospitalized once. CF really is different for everyone and one of the most valuable lessons I've learned is that we cannot generalize and each case is unique.

Good luck and see you around here! PM if you'd like.
 
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nocode

New member
Hi Melissa, welcome to the site. I also didn't know anyone with CF until I joined this website back in 2005 (just as well, since we shouldn't be together in person anyway) and I've learned more about CF here, through other CFers, than any other way before.

I was diagnosed at 15 and my FEV1 has been around 35% for almost 10 years.. pretty low but stable. I have only been hospitalized once. CF really is different for everyone and one of the most valuable lessons I've learned is that we cannot generalize and each case is unique.

Good luck and see you around here! PM if you'd like.
 
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beleache

New member
Hi Melissa,
Welcome to the site, you will find plenty of support/info here.
Im joni, 60 y/o f w/ cf. I was dxd @ 44 y/o. I have been married 22 yrs , have 4 sons & 3 grandchildren. My fev1 is sitting about 57 right now, but I am trying to get that # up by doing Pulmonary Rehab.. I am loving the Pulmonary Rehab program <img src="i/expressions/face-icon-small-smile.gif" border="0">
We try to CHAT on wednesday evenings 8PM EST, maybe you can join us..
Take care <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 
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beleache

New member
Hi Melissa,
Welcome to the site, you will find plenty of support/info here.
Im joni, 60 y/o f w/ cf. I was dxd @ 44 y/o. I have been married 22 yrs , have 4 sons & 3 grandchildren. My fev1 is sitting about 57 right now, but I am trying to get that # up by doing Pulmonary Rehab.. I am loving the Pulmonary Rehab program <img src="i/expressions/face-icon-small-smile.gif" border="0">
We try to CHAT on wednesday evenings 8PM EST, maybe you can join us..
Take care <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 
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ladybuggirl

New member
thanks so much for writing back and thanks so much for the invite i would love to CHAT on wednesday night this may sound silly but how do u do that?LOL
 
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ladybuggirl

New member
thanks so much for writing back and thanks so much for the invite i would love to CHAT on wednesday night this may sound silly but how do u do that?LOL
 
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ladybuggirl

New member
Hi Amy thanks so much for writing me back. Im from St.Catharines near Toronto. I havent in the hospital that much. everythings been going ok. Lung function is at about 61% right now but it has gone up just trying to get there is the hard part. Im very stubborn and sometimes dont do my treatment the way im supposed to. I also have diabeties do u? Sugars are all over the place ive been chosen to go on the pump so ive been going to pump clinics just waiting for my own pump to come in and than hopefully i will be pumping and sugars should stabalize.
 
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ladybuggirl

New member
Hi Amy thanks so much for writing me back. Im from St.Catharines near Toronto. I havent in the hospital that much. everythings been going ok. Lung function is at about 61% right now but it has gone up just trying to get there is the hard part. Im very stubborn and sometimes dont do my treatment the way im supposed to. I also have diabeties do u? Sugars are all over the place ive been chosen to go on the pump so ive been going to pump clinics just waiting for my own pump to come in and than hopefully i will be pumping and sugars should stabalize.
 
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janice11

New member
Hi Melissa,
I'm Janice & I'm 33 (will be 34 in July) with CF. I was diagnosed at 25.
My FEV 1 is currently around 51% but battling an episode of ABPA right now, so I'm hoping I can increase my lung function once we get that under control.
I have a healthy 6 year old son & live in Orange County, CA. And getting married (2nd time) in September to a wonderful man.
Would love to chat. This disease has such a variety of issues & concerns, but yet the willingness & encouragement of these sites it really goes a long way.
My email is: janice.mcclanahan@yahoo.com
 
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janice11

New member
Hi Melissa,
I'm Janice & I'm 33 (will be 34 in July) with CF. I was diagnosed at 25.
My FEV 1 is currently around 51% but battling an episode of ABPA right now, so I'm hoping I can increase my lung function once we get that under control.
I have a healthy 6 year old son & live in Orange County, CA. And getting married (2nd time) in September to a wonderful man.
Would love to chat. This disease has such a variety of issues & concerns, but yet the willingness & encouragement of these sites it really goes a long way.
My email is: janice.mcclanahan@yahoo.com
 
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ladybuggirl

New member
Thanks for writing me back im very excited that i found this i actually just bought a computer not to long ago and its the best thing i did. I also seen that u had sweats and u used something called Vasiliki where did u get that. Im having sweating problems really bad its awful and i dont want to do botox i cant afford it.
 
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ladybuggirl

New member
Thanks for writing me back im very excited that i found this i actually just bought a computer not to long ago and its the best thing i did. I also seen that u had sweats and u used something called Vasiliki where did u get that. Im having sweating problems really bad its awful and i dont want to do botox i cant afford it.
 
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ladybuggirl

New member
Hi Janice thanks so much for writing back.
Thats crazy that you were diagnosed at 25. Did u not have any symptoms, did they think it was something else. Does your son have CF?
Congradulations on u getting married thats awesome.
 
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ladybuggirl

New member
Hi Janice thanks so much for writing back.
Thats crazy that you were diagnosed at 25. Did u not have any symptoms, did they think it was something else. Does your son have CF?
Congradulations on u getting married thats awesome.
 
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