Hi Gammaw. Thank you again for your support. The Sacramento Center is where I am getting the Mapping testing done. My situation is way more complicated, then just find a other doctor, or go to a other center. My health is declined so bad, and now a major insurance issue. Not only am I trying to get diagnosed, things changed in Dec. Any and all the specialty Ok, this is something else, I just see on my records. I am seeing are not in my area. (Northern CA) Redding area. Now I need a pre approval for any Dr out of my network. Ok. I am Tehama County. Only a few medical centers. Seems I am in a never ended battle over all of this mess.. So the Cardio, the CF center, Seeing a arrhythmia Cardio dr , the gastro, are all pre approved Dr's!! As far as I know, a approval is for a few appointments, 6 months or? Your PCP, has to be the one to refer you also. So I just landed in a nightmare. If things where smooth, the travel has been a issue, expense and all of it. I just keep going back words in everyway. Get me going and I can go on and on. the network I am in, there are only 6 internist. Most are not taken any new patients, including the pcp or there is a very long wait. Ok. I have to stay in the network unless I get the referral. SO imagine with this crap, Like the pulmonist here, Which is booked out 6 months, the one I had to see, who told me nothing. Puts down everything is fine, and forget the test from the ER he did not even look at. SO then do you think in this small rural town , the PCP, is going to give me a referral , out of the network? When he looks at records and the one I just seen, that says She IS FINE!! Call it a medical nightmare,, Call it small town corruption, I just don't have other options. I had to basically get into the UC Davis center ON MY OWN< with faxing my own records, and doing my own referral for a month. even when My Dr had the positive sweat test in his hands, and told his nurse to call me, and say, I DONT HAVE CF!! No matter what , and I have lived here for 24 yrs and sorry I have every seen this place. I need to find a way to move. that is the only way I have a chance at any kind of good overall medical care. My hopes are still out, for UC Davis , maybe that Dr will have change of heart, and I can start getting care down there. that is where the New Heart dr is. She is willing to help me, said on the Heart end she knows what is wrong with me, etc. But still when I hardly even drive a 15 trip to town, I cant drive there myself. I was hoping finally if I would have got the diagnose of the CF, I have suspected for yrs, that Dr could see me at a center, and I would get overall care. At least what affects the CF? I need a multi- system, type Dr no matter what. This is not working for me, diet, medications, symptom's, etc, when one dr does not talk with the other! I have been on my own now for yrs, and it is scary. this is why I became such a activist for myself, and getting records, speaking up, researching, Calling all over, trying to find help , begging to get into Drs out of my area, or I think I might be dead. I have been on the phone also with the new insurance, and they are suppose to get me a Nurse coordinator to help me. they are aware that I am in a very rural area, and not many Drs, and they also said they know this would not work for someone chronically ill. So that is a plus. I am just sick of fighting. You know when you are sick , it is hard enough and by yourself. You should not have to fight like this at all. I have been feeling now since 2010, I wish they would just admit me in the hospital, and figure this all out, and some Dr help me! Maybe the heart Dr will be my prayers to figuring out why I am so SOB, and with Dyspnea. it is ridiculous. Under this Health care program also, you know there is one Cardio Dr under Tehama county and the wait is over a year!! I have a pace maker and have had major trips to the Er by ambulance, on going chest pain ,and other heart problems. Bottom line, I am in a horrible place for care, and not good insurance. My husband and I moved here 24 yrs ago. (He left in 2000) We ran a auto mechanic business, And I always wondered why middle aged and elder people always said, Don't let the Drs touch you around here, they all went to Sacramento or San Francisco! they also had good insurance and or money. This is a depressed area, drug infested, un educated pit of CA! I can only take one day at a time. I feel like this place has taken every thing out of me. Like no fight left anymore. You can only take so much. I have known and watched many people from there mid 30's to 60's die here. TO many. I have tried to figure this out for yrs. So have my kids. I have wondered if something is in the water or what. I know a lot of it is a lack of care, period. I came from the bay area up here. Looking for a more peaceful life. It has hurt me in this town, asking Drs anything about my condition. I have said, your treated as if it is not your right to know anything. they don't listen, they don't talk to each other, they wont speculate on anything out of there expertise, they do not tell you about blood test elevated, condition's you have, mistakes in the records, I don't get it. Just need to find a way to move out of here. Sorry to vent, but It is so hard to explain to anyone, when things are just impossible . I don't have much options but am trying.. I have had enough of the medical up in this town, so you can understand as to why, It is so hard when you fight to get as far as you have for a diagnose, and get out of here, to why I am so upset about the Sacramento Center! Not what I expected. A test is a test, if a Dr wants to say to me, Unlikely, or I don't think so, OK then, when I have multitude of symptom's, and a positive test, tell me what I do have?? Or get on the Phone with the Other PCP, someone figure out, either rule in other disease or out. Just don't leave me hanging. AGAIN, this had been the way, up here where I live for yrs.. they are always passing the buck! Could all be about the insurance. Money is money, and if a Dr does not get paid enough, there are many other patients out there. For a CF diagnose, I really really expected a lot more from a Center then what happened. If I did not pursue it with this Dr, I just would be no where. My Dr has no interest in running any other test, or finding out why it came out high. I got the Referral also myself in Sac. I happened to get these referral also prior to the Insurance change in December or I would not be getting in to any of these drs. My Dr has said, there is nothing wrong with your heart. I had a Clear Left cath. Ok. Did not see it. told it was clear. (There where also very bad reviews on the Dr who did my cath) That concerns me, it all does, and I have a right to be concerned if you even knew a part of what I have gone through up here and over my health. I have a lot of conditions listed related to my heart. For a Dr to say this to you, when you are going by ambulance, have a pace maker, valve problems, A hole in my heart, Prior MI, CAD, and I also seen a a eco back in 2011, refers to Cardiomyopathy, and enlarged left and right atrium? Ok, this is something else, I see on my records. I have diastolic dysfunction. I only reach 63% of predicted HR , with the stress test. (I have read that makes it useless) I show a defect n my heart. (Prior MI) I have high Arterial Heart rates, SVT's, and Rare PVC's. I have been dealing with heart palpations and racing heart for over the last year. when I ask, any of them up here , It is minuet, Don't think that is what is causing my symptom's, etc etc. EKG'S can read , Prior MI, everyone's does, Part of the aging process. this is the kind of answers I get when I ask. So sorry to go on here, but see what I am dealing with. A nightmare. Nothing would change up here, Unless I had money and could go to a whole other group of Drs. But if I had money, I would be the heck out of here for sure. I am hoping to live long enough, to write a book. This is a issue that needs addressed, and hopefully that could change someone else's life. By the way, Yes Standford is the Center which is willing to see me. They deal in a lot of Adults. In fact I found, most of the people from Northern CA, (up where I am at) Travel to that center. But not only trying to get there, the insurance change in DEC, changed that. So I have to wait. . It will take work now and something done with this Insurance, working with them to figure out how to get there. Like you said, at a center , it is every three months or travel. I am traveling out of here now for all the specialty Dr's, for appointments. Even where I live, My Dr, it is a 50 mile round trip for me, and that is because I am in the country . The Cardio issue is very important to me, and as you know even with this new Dr, Wanting to treat me , which is great, I can finally get answers. But does not help if you have a emergency or hospitalized, and don't have your own Cardio dr. Really, what has gone on with me here, Would not want most of them to touch me. That is initially what happened back in late 90's, could not get a Cardio Dr to help me here, and traveled to Sacramento. He put me on meds, right away when I Faxed him my Stress test. He diagnosed me with premetal angina. I was on heart meds for 6 yrs. Now that diagnose is totally forgotten, and no one will talk about it? That Cardio, felt I could continue care where I live and needed a Dr where I live. So there you go. Hugs
),immediatelly i ordered a full DNA analysis.