looking for parents with CF children to talk with

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rose2wood

Guest
We have two boys/young men. 21 years old, does not have CF and 22yr old Dx 4 years old, Delta 508. The first four years of his life was so frustrating, he was constantly on antibiotic. I took him to a Allergist, Infection Specialist yet he was misdiagnosed. I am sure his chart said "neurotic mom".
 
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rose2wood

Guest
We have two boys/young men. 21 years old, does not have CF and 22yr old Dx 4 years old, Delta 508. The first four years of his life was so frustrating, he was constantly on antibiotic. I took him to a Allergist, Infection Specialist yet he was misdiagnosed. I am sure his chart said "neurotic mom".
 
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mumof1

Guest
reply to DeborahAnn1

Hello Deborah
Im new too and would be happy to talk to you anytime from Australia. Our son is nearly 15 with cf and is well at the moment, although we'll see what his lung function is at clinic next week. He is having some emotional problems at the moment dealing with cf and we are going to get him some counselling. Its hard enough being a teenager without extra complications of having cf dont you think?
My best wishes to you and your family<img title="Cool" src="include/wysiwyg/tinymce/jscripts/tiny_mce/plugins/emotions/img/smiley-cool.gif" alt="Cool" border="0" />
 
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mumof1

Guest
reply to DeborahAnn1

Hello Deborah
Im new too and would be happy to talk to you anytime from Australia. Our son is nearly 15 with cf and is well at the moment, although we'll see what his lung function is at clinic next week. He is having some emotional problems at the moment dealing with cf and we are going to get him some counselling. Its hard enough being a teenager without extra complications of having cf dont you think?
My best wishes to you and your family<img title="Cool" src="include/wysiwyg/tinymce/jscripts/tiny_mce/plugins/emotions/img/smiley-cool.gif" alt="Cool" border="0" />
 
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bbell420

New member
Hi,
My Name is Brooke, I am new to this site as well. I have a 14 month old son with CF. He has the Delta508 and 1717-1G->A mutations. I would love to talk and hear how you handled things like PT and medications with your child. My son, Nick Tony, is starting his terrible 2's early, I think. He now has no desire to let myself or his dad do his nebulizer treatments or chest PT. Any advise would be appreciated.
Thanks!
 
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bbell420

New member
Hi,
My Name is Brooke, I am new to this site as well. I have a 14 month old son with CF. He has the Delta508 and 1717-1G->A mutations. I would love to talk and hear how you handled things like PT and medications with your child. My son, Nick Tony, is starting his terrible 2's early, I think. He now has no desire to let myself or his dad do his nebulizer treatments or chest PT. Any advise would be appreciated.
Thanks!
 
2

242wuu

New member
Hi, I'm Angela. My 5 yr. old was diagnossed w/ cf in 05 . His health is so good right now I have time to share my experience, strength and hope w/ other parents of newbies or anybody else who wants contact or support. Currently, we are selling CF hearts at our restaurant to fundraise for the CF Foundation. My hearts desire is to see a cure for cf in our lifetime and I'm pretty sure we will. I'm on facebook, Angela Hunt Jannetty and my email is find-a-cure@live.com
 
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242wuu

New member
Hi, I'm Angela. My 5 yr. old was diagnossed w/ cf in 05 . His health is so good right now I have time to share my experience, strength and hope w/ other parents of newbies or anybody else who wants contact or support. Currently, we are selling CF hearts at our restaurant to fundraise for the CF Foundation. My hearts desire is to see a cure for cf in our lifetime and I'm pretty sure we will. I'm on facebook, Angela Hunt Jannetty and my email is find-a-cure@live.com
 
2

242wuu

New member
Hi, I'm Angela. My son was diagnosed w/cf in 05. He was 5 . His health is so good right now, I have time to share my experience, strength and hope with other parents of newbies or anyone else who wants contact or support. My hearts desire is to pass along what was so freely given to me by a cf'er friend I met, Lauren, who sadly lost her fight. She was my living angel before she died. I learned so much from her. I'm on fb, Angela Hunt Jannetty and email is find-a-cure@ live.com
 
2

242wuu

New member
Hi, I'm Angela. My son was diagnosed w/cf in 05. He was 5 . His health is so good right now, I have time to share my experience, strength and hope with other parents of newbies or anyone else who wants contact or support. My hearts desire is to pass along what was so freely given to me by a cf'er friend I met, Lauren, who sadly lost her fight. She was my living angel before she died. I learned so much from her. I'm on fb, Angela Hunt Jannetty and email is find-a-cure@ live.com
 
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care4u

New member
I would really like to talk with you I have a 7 year old boy with cf and have some questions I would like to ask that pertain to his future. you could e-mail me @ bestmom213@aol.com.
 
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care4u

New member
I would really like to talk with you I have a 7 year old boy with cf and have some questions I would like to ask that pertain to his future. you could e-mail me @ bestmom213@aol.com.
 
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care4u

New member
I didn't know how this would post so.... I am trying again. I would like to speak to somene that has a c.f. child in their 20's that was diagnosed early like their first few month of life. I have questions that I would love to have answered. my e-mail address is bestmom213@aol.com thank-you
 
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care4u

New member
I didn't know how this would post so.... I am trying again. I would like to speak to somene that has a c.f. child in their 20's that was diagnosed early like their first few month of life. I have questions that I would love to have answered. my e-mail address is bestmom213@aol.com thank-you
 
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