Happy Sunday!!!
I am so frustrated. I have had the worst year ever. I just want answers. I will give everyone a quick overview of the past year. Everything started getting complicated last summer. My breathing test started to decline with no explanation, base line FEV1 in 80's. After 6 months(October)I was diagnosed with Aspergillus. In hosptial twice from May to October<img src="i/expressions/face-icon-small-sad.gif" border="0"> The steroids for the aspergillus took my borderline CFRD into CFRD. Put me the hospital in December. So 5th time for the year. In my lifetime I have been in 4 times EVER. Ok, so another week in the hospital. The back in the hospital in March. Huge cyst about the size of a tennis ball on my spleen...removed the cysts and most of my spleen. My breathing test continue to be out of check. I was back to "normal" in June with FEV1. Went to clinic last week....numbers horrible again. Went to ER last week with really bad stomach pain...possible pancreas. I just feel like I am on this horrible rollercoaster! My doctor keeps saying he has never seen a patient that has all these thing going on and can't really explain. He really hasn't a clue of what is wrong. The latest thing that is really putting me over the edge is this rash. I get a rash every time is gets hot. I don't have to been in the sun. The heat makes my arms, chest, and thighs break out, nothing else. So within a five minutes on being outside I look like I am covered in hives. So I told my dr this he said he will check my iron...maybe that is why I am having all these problems. I am so frustrated. I feel like every week it is something. Has anyone every had a bad year?!? How did you get through?!? Is there something I am missing? Is there a tests or medicine I should ask my dr for?!? So frustrated..any words of wisdom would be great<img src="i/expressions/face-icon-small-smile.gif" border="0">
Pepsi
31-CF-CFRD-Cleveland, Oh
I am so frustrated. I have had the worst year ever. I just want answers. I will give everyone a quick overview of the past year. Everything started getting complicated last summer. My breathing test started to decline with no explanation, base line FEV1 in 80's. After 6 months(October)I was diagnosed with Aspergillus. In hosptial twice from May to October<img src="i/expressions/face-icon-small-sad.gif" border="0"> The steroids for the aspergillus took my borderline CFRD into CFRD. Put me the hospital in December. So 5th time for the year. In my lifetime I have been in 4 times EVER. Ok, so another week in the hospital. The back in the hospital in March. Huge cyst about the size of a tennis ball on my spleen...removed the cysts and most of my spleen. My breathing test continue to be out of check. I was back to "normal" in June with FEV1. Went to clinic last week....numbers horrible again. Went to ER last week with really bad stomach pain...possible pancreas. I just feel like I am on this horrible rollercoaster! My doctor keeps saying he has never seen a patient that has all these thing going on and can't really explain. He really hasn't a clue of what is wrong. The latest thing that is really putting me over the edge is this rash. I get a rash every time is gets hot. I don't have to been in the sun. The heat makes my arms, chest, and thighs break out, nothing else. So within a five minutes on being outside I look like I am covered in hives. So I told my dr this he said he will check my iron...maybe that is why I am having all these problems. I am so frustrated. I feel like every week it is something. Has anyone every had a bad year?!? How did you get through?!? Is there something I am missing? Is there a tests or medicine I should ask my dr for?!? So frustrated..any words of wisdom would be great<img src="i/expressions/face-icon-small-smile.gif" border="0">
Pepsi
31-CF-CFRD-Cleveland, Oh