Love and CF

anonymous

New member
<blockquote>Quote<br><hr>To paraphrase a song I heard somewhere: Love isn't something that you find, it's something that you do.<hr></blockquote>


What a great quote - I heard that at a wedding! I think it was the father of the groom that said it <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

WinAce

New member
Don't miss out on love, if you can at all help it. If there's anything that can make everything you've ever gone through unabashedly, undeniably worth it, it's being close to another person in every way imaginable, sharing their hopes and dreams, wanting to make them the happiest they've ever been, and having that feeling reciprocated in a way that seems surreal; like the two of you have known each other for millions of years, continually meeting up in the oddest places, and falling for each other, all over again, better each time. I've had my share of doubts about it in my situation--with the whole dying, sickness, unemployment, etc. stuff--and trust me, someone who really loves you won't care, and above all, you'll know they don't when it happens.

<a target=new class=ftalternatingbarlinklarge href="http://users.rcn.com/rostmd/winace/poetry/playwright_view.htm">A Playwright's View</a> on love... (it inspires you to be rhymey, too!)
 

anonymous

New member
I hardly ever have time to read, let alone write on this chat line. My wife of 24 years, [Our Aniversary is today!] reads, and tries to stay on top of my disease for me. I was diagnosed at birth, and had my first surgery when I was 36 hours old, and a second a few days later. I grew up trying to live as normal a life as possible. But as many of you, I have had several surgeries (adhesions/bowel obstructions) along the way.

I was called to preach when I was in 7th grade, but wondering if I would ever get the chance to preach. I grew up with my high school sweet heart attending the same church and youth activities. I broke it off many times fearing that we were getting to close, and I didn't want her to go thru the pain of loosing a boy- friend, later a fiancee, and husband!

I took my fiancee to my physician in hopes that he would set her straight about my future. But to my surprise, he told be a thing or two. He reminded me that I had already lived beyond my life expectancy and I shouldn't shorten the hand of God now! While in college we got married, and have lived a very fulfilling life together.

I am presently on the lung transplant list for Indiana [Indy]. I am waiting for a bi-lateral donor. It is my plan to continue my quest for happiness, in Christ, in my marriage, in my family and in my church. I thank God regularly for giving me the gift of life. [Both eternal and physical ] My wife is truly a saint! She has had to bear a huge part of the family responsibilities lately. It takes just about all the strength I have to pastor. She is very supportive of my ministry.

Once during a hospital stay a nurse asked me if I knew just how fortunate I was!? I answered yes, but wanted further dialouge. She told me of those who bring their loved ones to the hospital, and then walk away for life. I thank the Lord each day!

Now I know there will be those skeptical about our spiritual relationship with Jesus Christ, but I am living proof, [or better yet, my wife and I ] that there is strength in Christ.

Standing In the Gap
Greg
 

Bubbalove

New member
I guess that also leads back to the question "is it better to have love and lost, than never to have loved at all?"- ya know? I met my love-of-my-life about 4 years ago- he didnt tell me he had CF until after I had been chasing him for 2 years :) When I found out, of course I was freeked! I was crying and didn't know what to expect (of course- I expected the worst since I read about it online and read all of the stats..) but I am so glad I didnt run away because he is worth it all- with or without CF. I think there are many people out there who will love you for you- and not let CF get in the way.. you need to make yourself happy because that's all that matters.. NO REGRETS!
 

anonymous

New member
I just moved in with my boyfriend of almost a year and a half (23 with CF). It was quick but I just knew he was the one. I knew about the CF from the first day I met him and although at first it seemed a bit intimidating and scary I did some research, asked tons of questions and I found that the more I knew about his treatments (the meds and why he's taking them etc.) the less scary it was. I don't pretend he's not sick or think he's lazy because he works less than I do or anything, (actually the working less pat stresses him more than it stresses me), the CF is there and I can't change it that no matter what I do, accepting it and deal with it is the only thing I can do! He is definetely worth it, I wouldn't change a thing in our lives. If CF is an obstacle to the person you are with then maybe that person, as much as it hurts to admit, might not be the one for you.

Amélie
 

anonymous

New member
Oh yes There are many people out there with who Understand. The guy Im with now knew from the beginning. He actually said something that kind of made me laugh in the beginning of our relationship, He said "you'll be going to the hospital every 4 months? That means I'll have time apart to go have fun!" Which I know is kind of messed up, but he was just trying to make light of the situation, I guess. Little did he know, my lung function went way up while we were together and I only go in a minimum of once a year. (HE THINKS ITS THE SEX, BY THE WAY)
To the original poster:
Weve been together for 3 years now and have an 8 month old baby girl together. I figure Ill be there for her for a significant part of her life, and yes I may go before she turns 18, but who's to say I wont jump in my car after I log off and die in a car accident. Death is just something to deal with, and lots of people around the world deal with it everyday. Basically, what Im saying is I thought like you once. That I would never get someone to love me because of my CF and I was also set on believing that I would never have children. But life just took a weird turn, I guess. Dont put your life on hold anymore, have more confidence in yourself!<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

anonymous

New member
Hi,

I'm 20 and my boyfriend (who has CF) is 21. We've been together for 2 years now and I feel sure he's 'the one' and hope to marry in a couple of years or so.

He was upfront about having CF from the beginning. I'm studying physiotherapy at uni and have sometimes found the statistics overwhelming. I often find myself wondering whether we will be able to have a family together, as I have never imagined not being a mum and think my boyfriend would make an excellent dad. However, family or not, I would be unhappy without him and am grateful for meeting him!

I hope this is helpful from a different perspective.
 

anonymous

New member
for males with Cf and fatherhood, check out this site- www.cysticfibrosismaleinfertility.com In case you weren't aware what your options are (I am sure you are with your major though), you can get that info on this site. It's also important to hear stories from others who have been in your position, and I should have some more stories on the "success stories" link in a few weeks.


Julie (wife to Mark 24 w/CF)
 

JazzysMom

New member
I have been fortunate to find a few guys that truly loved me. Only I dont know if all of them loved CF & all because some didnt see the worst part of my CF. My high school sweetheart saw it & wanted to marry me right after graduation, but I felt like I needed to explore. I recently saw him & his wife who ironically has many similiar features as me. My first husband dealt with it, but not as well as I would have hoped for an older man. He was good about visiting if I was in the hospital or letting me rest when necessary, but not good about supporting me with treatments &/or weight gain. My current (and final) husband got a crash course about CF when our daughter was 1 1/2. He has stepped up to the plate, but still has to be reminded of things. My whole point is that my being sick never disallowed me to have someone in my life. I was always upfront about it because my size & cough would have said something is up & I didnt want people making things up.i
 

cutierocker891

New member
Hi! I just joined this because my boyfriend has CF. I was really scared and nervous when he told me but through a lot of prayer and thought i decided that if he can accept me being sick(asthma,thyroglossal duct cyst, and unable to have kids) then i can accept him. The truth of the matter is that even though i am scared of losing him, together we face our fears. And even though kids are out of the question, having someone that knows exactly what thats like is amazing. We know that our times together are precious and with him i feel like the future is brighter than ever, whatever that future may be.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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