I request a copy of the sputum culture report, good idea to have just in case. They should be able to mail you a copy, it will tell you the bacteria that was cultured, which in your son's case was staph and the sensitivitys. That will tell you which antibiotics will work against that bacteria. I try to have copy of the report, in case my daughter's CF pulmo is away. I do not trust other docs to make the correct choice of meds without knowing what my daughter is growing.
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low fever
- Thread starter mom2owen
- Start date
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2owen</b></i>
well, interesting. Our doctor just called and Owen cultured staph. He is going on Bactrum. AND, she agreed it's not asthma causing this....
In a daze, not sure what to think. Off to get med to give him ASAP.</end quote></div>
I'm glad you got some answers, hopefully the bactrim will kick the staph. Honestly, I would be very concerned if Piper was productively coughing and they told me to take her OFF nebs. I would seriously question the Dr the next time you have an appointment. 5 weeks of a mucus producing cough is never a good thing for a CFer, it means something is going on. The ideal baseline cough is NO cough, especially for kids. Is he on any inhaled antibiotics? That's something else I would ask about if he's not.
Unfortunately you really have to stay on top of things with our kids, they tend to get worse, not better. I could not tell you the last time Piper got a cold or virus that it did not turn into an exacerbation. Sometimes they can be taken care of with just oral antibiotics, but more often than not in the past 3 yrs or so, she ends up on IVs. Not saying that will happen with Owen, or that it's the norm (it's not for most CF kids), but I hate to think how much more quickly things would have progressed for her if something like a productive cough was not treated for over a month. Sorry if I made you worry more and not less, not my intention at all, but just the thoughts I got from reading your posts.
well, interesting. Our doctor just called and Owen cultured staph. He is going on Bactrum. AND, she agreed it's not asthma causing this....
In a daze, not sure what to think. Off to get med to give him ASAP.</end quote></div>
I'm glad you got some answers, hopefully the bactrim will kick the staph. Honestly, I would be very concerned if Piper was productively coughing and they told me to take her OFF nebs. I would seriously question the Dr the next time you have an appointment. 5 weeks of a mucus producing cough is never a good thing for a CFer, it means something is going on. The ideal baseline cough is NO cough, especially for kids. Is he on any inhaled antibiotics? That's something else I would ask about if he's not.
Unfortunately you really have to stay on top of things with our kids, they tend to get worse, not better. I could not tell you the last time Piper got a cold or virus that it did not turn into an exacerbation. Sometimes they can be taken care of with just oral antibiotics, but more often than not in the past 3 yrs or so, she ends up on IVs. Not saying that will happen with Owen, or that it's the norm (it's not for most CF kids), but I hate to think how much more quickly things would have progressed for her if something like a productive cough was not treated for over a month. Sorry if I made you worry more and not less, not my intention at all, but just the thoughts I got from reading your posts.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2owen</b></i>
well, interesting. Our doctor just called and Owen cultured staph. He is going on Bactrum. AND, she agreed it's not asthma causing this....
In a daze, not sure what to think. Off to get med to give him ASAP.</end quote>
I'm glad you got some answers, hopefully the bactrim will kick the staph. Honestly, I would be very concerned if Piper was productively coughing and they told me to take her OFF nebs. I would seriously question the Dr the next time you have an appointment. 5 weeks of a mucus producing cough is never a good thing for a CFer, it means something is going on. The ideal baseline cough is NO cough, especially for kids. Is he on any inhaled antibiotics? That's something else I would ask about if he's not.
Unfortunately you really have to stay on top of things with our kids, they tend to get worse, not better. I could not tell you the last time Piper got a cold or virus that it did not turn into an exacerbation. Sometimes they can be taken care of with just oral antibiotics, but more often than not in the past 3 yrs or so, she ends up on IVs. Not saying that will happen with Owen, or that it's the norm (it's not for most CF kids), but I hate to think how much more quickly things would have progressed for her if something like a productive cough was not treated for over a month. Sorry if I made you worry more and not less, not my intention at all, but just the thoughts I got from reading your posts.
well, interesting. Our doctor just called and Owen cultured staph. He is going on Bactrum. AND, she agreed it's not asthma causing this....
In a daze, not sure what to think. Off to get med to give him ASAP.</end quote>
I'm glad you got some answers, hopefully the bactrim will kick the staph. Honestly, I would be very concerned if Piper was productively coughing and they told me to take her OFF nebs. I would seriously question the Dr the next time you have an appointment. 5 weeks of a mucus producing cough is never a good thing for a CFer, it means something is going on. The ideal baseline cough is NO cough, especially for kids. Is he on any inhaled antibiotics? That's something else I would ask about if he's not.
Unfortunately you really have to stay on top of things with our kids, they tend to get worse, not better. I could not tell you the last time Piper got a cold or virus that it did not turn into an exacerbation. Sometimes they can be taken care of with just oral antibiotics, but more often than not in the past 3 yrs or so, she ends up on IVs. Not saying that will happen with Owen, or that it's the norm (it's not for most CF kids), but I hate to think how much more quickly things would have progressed for her if something like a productive cough was not treated for over a month. Sorry if I made you worry more and not less, not my intention at all, but just the thoughts I got from reading your posts.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2owen</b></i>
<br />
<br />well, interesting. Our doctor just called and Owen cultured staph. He is going on Bactrum. AND, she agreed it's not asthma causing this....
<br />
<br />In a daze, not sure what to think. Off to get med to give him ASAP.</end quote>
<br />
<br />I'm glad you got some answers, hopefully the bactrim will kick the staph. Honestly, I would be very concerned if Piper was productively coughing and they told me to take her OFF nebs. I would seriously question the Dr the next time you have an appointment. 5 weeks of a mucus producing cough is never a good thing for a CFer, it means something is going on. The ideal baseline cough is NO cough, especially for kids. Is he on any inhaled antibiotics? That's something else I would ask about if he's not.
<br />
<br />Unfortunately you really have to stay on top of things with our kids, they tend to get worse, not better. I could not tell you the last time Piper got a cold or virus that it did not turn into an exacerbation. Sometimes they can be taken care of with just oral antibiotics, but more often than not in the past 3 yrs or so, she ends up on IVs. Not saying that will happen with Owen, or that it's the norm (it's not for most CF kids), but I hate to think how much more quickly things would have progressed for her if something like a productive cough was not treated for over a month. Sorry if I made you worry more and not less, not my intention at all, but just the thoughts I got from reading your posts.
<br />
<br />
<br />
<br />well, interesting. Our doctor just called and Owen cultured staph. He is going on Bactrum. AND, she agreed it's not asthma causing this....
<br />
<br />In a daze, not sure what to think. Off to get med to give him ASAP.</end quote>
<br />
<br />I'm glad you got some answers, hopefully the bactrim will kick the staph. Honestly, I would be very concerned if Piper was productively coughing and they told me to take her OFF nebs. I would seriously question the Dr the next time you have an appointment. 5 weeks of a mucus producing cough is never a good thing for a CFer, it means something is going on. The ideal baseline cough is NO cough, especially for kids. Is he on any inhaled antibiotics? That's something else I would ask about if he's not.
<br />
<br />Unfortunately you really have to stay on top of things with our kids, they tend to get worse, not better. I could not tell you the last time Piper got a cold or virus that it did not turn into an exacerbation. Sometimes they can be taken care of with just oral antibiotics, but more often than not in the past 3 yrs or so, she ends up on IVs. Not saying that will happen with Owen, or that it's the norm (it's not for most CF kids), but I hate to think how much more quickly things would have progressed for her if something like a productive cough was not treated for over a month. Sorry if I made you worry more and not less, not my intention at all, but just the thoughts I got from reading your posts.
<br />
<br />
Thanks for the ideas. I will most definitely request the culture report. I reposted some info in the newly diagnosed section as well as an on-going saga to our undiagnosed journey. I am very curious how this might affect the ability to diagnose.
But, more importantly, I am pretty scared and will be vigilant. I have read only a little about Staph and felt like it wasn't a major infection at first. However, his symptoms and length of time that he has been sick causes concern. And, of course, I wonder if we are getting the full blown treatment needed since we are still undiagnosed. Funny thing is that the CF doctor had once told us that if he cultures a CFbug, it would help lead to a dx. But, nothing yet.
I will keep on top of things and I appreciate the warnings. I think our doctor is doing the right thing but I realize ultimately, it is my responsibility to stay on it. The pharmacist told me it would take 2-3 days before we would see improvement. Does that seem right?
Thanks again, I am feeling very lost and overwhelmed.
But, more importantly, I am pretty scared and will be vigilant. I have read only a little about Staph and felt like it wasn't a major infection at first. However, his symptoms and length of time that he has been sick causes concern. And, of course, I wonder if we are getting the full blown treatment needed since we are still undiagnosed. Funny thing is that the CF doctor had once told us that if he cultures a CFbug, it would help lead to a dx. But, nothing yet.
I will keep on top of things and I appreciate the warnings. I think our doctor is doing the right thing but I realize ultimately, it is my responsibility to stay on it. The pharmacist told me it would take 2-3 days before we would see improvement. Does that seem right?
Thanks again, I am feeling very lost and overwhelmed.
Thanks for the ideas. I will most definitely request the culture report. I reposted some info in the newly diagnosed section as well as an on-going saga to our undiagnosed journey. I am very curious how this might affect the ability to diagnose.
But, more importantly, I am pretty scared and will be vigilant. I have read only a little about Staph and felt like it wasn't a major infection at first. However, his symptoms and length of time that he has been sick causes concern. And, of course, I wonder if we are getting the full blown treatment needed since we are still undiagnosed. Funny thing is that the CF doctor had once told us that if he cultures a CFbug, it would help lead to a dx. But, nothing yet.
I will keep on top of things and I appreciate the warnings. I think our doctor is doing the right thing but I realize ultimately, it is my responsibility to stay on it. The pharmacist told me it would take 2-3 days before we would see improvement. Does that seem right?
Thanks again, I am feeling very lost and overwhelmed.
But, more importantly, I am pretty scared and will be vigilant. I have read only a little about Staph and felt like it wasn't a major infection at first. However, his symptoms and length of time that he has been sick causes concern. And, of course, I wonder if we are getting the full blown treatment needed since we are still undiagnosed. Funny thing is that the CF doctor had once told us that if he cultures a CFbug, it would help lead to a dx. But, nothing yet.
I will keep on top of things and I appreciate the warnings. I think our doctor is doing the right thing but I realize ultimately, it is my responsibility to stay on it. The pharmacist told me it would take 2-3 days before we would see improvement. Does that seem right?
Thanks again, I am feeling very lost and overwhelmed.
Thanks for the ideas. I will most definitely request the culture report. I reposted some info in the newly diagnosed section as well as an on-going saga to our undiagnosed journey. I am very curious how this might affect the ability to diagnose.
<br />But, more importantly, I am pretty scared and will be vigilant. I have read only a little about Staph and felt like it wasn't a major infection at first. However, his symptoms and length of time that he has been sick causes concern. And, of course, I wonder if we are getting the full blown treatment needed since we are still undiagnosed. Funny thing is that the CF doctor had once told us that if he cultures a CFbug, it would help lead to a dx. But, nothing yet.
<br />I will keep on top of things and I appreciate the warnings. I think our doctor is doing the right thing but I realize ultimately, it is my responsibility to stay on it. The pharmacist told me it would take 2-3 days before we would see improvement. Does that seem right?
<br />Thanks again, I am feeling very lost and overwhelmed.
<br />
<br />But, more importantly, I am pretty scared and will be vigilant. I have read only a little about Staph and felt like it wasn't a major infection at first. However, his symptoms and length of time that he has been sick causes concern. And, of course, I wonder if we are getting the full blown treatment needed since we are still undiagnosed. Funny thing is that the CF doctor had once told us that if he cultures a CFbug, it would help lead to a dx. But, nothing yet.
<br />I will keep on top of things and I appreciate the warnings. I think our doctor is doing the right thing but I realize ultimately, it is my responsibility to stay on it. The pharmacist told me it would take 2-3 days before we would see improvement. Does that seem right?
<br />Thanks again, I am feeling very lost and overwhelmed.
<br />