lung function

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2sickkids

Guest
Ok so I have a few questions. My lung capacity is not good at most 40% last time I saw a pulm dr. and she was amased it was that good. I am not a CF'er but both of my kids are. I can't do anything without having a cough fit of some kind. Walking, stairs, sex, talking to much some times I pass out from coughing. Will my lung problems make my boys worse? I've never asked the dr cause it sounds kind of stupid. Also do any of you have those little hand held peak flow meters? I can get it to go to 100 and I taught my 2yr old how to do it and he can get it to 80. Does anyone now the correlation between those and the machines they use to test pft at hospital?
 
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luke

Guest
If you have low peak flows at home you will have low flows at the lab. As for your lung function and your children..the correlation can only be made if your lung condition is contagious or heredity. If you don't mind, what condition do you have?



Luke
 
2

2sickkids

Guest
Asthma chronic bronchitis brochiectasis but they get worse when my stomach problems or allergies are bad. So that means if my peak flow is lower on the one I do at home it's gonna be lower at the dr when we do my pft.
 
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luke

Guest
Peak flows are used to trend expiratory flow rates while you are at home so doc's will know when intervention is needed. But yes, if there is a decrease in your flows at home there will be a correlation in PFT lab. When were you diagnosed with bronchiectasis? I have never seen any specific studies but there may be a potential for cross contamination with your bacteria as it relates to your bronchiectasis and your kids. You are pretty young to have low PFT's with asthma and bronchiectasis, have you ever been tested for Alpha-1 Antitrypsin Deficiency? I am taking for granted you have also been tested for CF as well.



Luke
 
2

2sickkids

Guest
Diagnosed with it around 17 it's been a long time. Never been tested for either other things but I have gotting pretty big since I had kids because of all the insulin. Before I was pregnant I was 110lbs and always had to take lots of vitamins. What is Alpha-1 Antitrypsin Deficiency?
 
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anonymous

New member
I didn't find out that I had CF until I was 32. Diagnosed with asthma all my life. Then I had a child with CF and decided to get tested myself at 32.
 
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luke

Guest
a genetic disorder that causes emphysema, you should be tested for both diseases.
 
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2sickkids

Guest
Anonyous,
Weren't you always skinny though? Cause I've never heard of a person with cf not being skinny.
 
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2sickkids

Guest
Huh my dad has emphysema I didn't know that could be genetic
 
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luke

Guest
keep in mind that the defiency is not a common disorder. Emphysema is normally caused by smoking or occupational exposure. But even if you smoke and work in the coal mines your lung functions wouldn't be in the 40's until you are well over 40 years old.




Luke
 
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anonymous

New member
Yes - I have been very thin all my life. But, I have a friend with CF and she is a little on the heavy side (and has been all her life). She has different mutations than I do - so she is pancreatic sufficient and I am not.
 
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2sickkids

Guest
Sorry everyone I ment to say I thought all people with CF are skinny. I didn't know I said it the other way around till I came on here today. Hope that didn't sound bad. I tend to think of it more that way because my boys have such a bad time with weight.
 
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