Lung Transplant List

I

IG

Guest
RE: Lung Transplant List

I agree with Emily, in fact I was going to post along those lines but she beat me to it :p

Transplant... for different people means different things.
To be honest with my own... I never wanted it. I was listed, and told I could make up my mind later. Well, I got my lungs 3 years later at 17 and I was at a place where I was still a bit undecided, but with the knowledge that if I didn't do this I would die. Transplant for me, back then, was not a thing to celebrate. Through all of my trials and tribulations, biopsies, coughing up blood, showing resistance to every drug they threw at me, transplant was just something to hate. It was... as if life was throwing the fact that my body was failing me into my face. And being a strong person, having that happen, despite my stubborness, was devistating. So I can understand where most people are coming from. I never looked forward to this. Yet if I had to go through it again, I'd like to think that it would be different, having gone through what I have. I celebrate it now, each year that goes by I add one more mark to the "surviving" column. For some people this is a joy an end to their problems. But even with that attitude you have to remember that transplant may be great, and may work out wonderfully for some people, but it does not solve all problems. You're in essence trading one evil for another, necessary though it may be. Even though I'm 2 years post-tx, I've had problems. I've had to have my lung biopsied, I've had to have surgery to have a tiny lump taken off of my lung, I've had to face rejection. In anycase I look back at what I've written and realize that I've gone off on a tangent. Sorry.
To the original poster, congratulations on your boyfriend being listed, I hope it goes extremely well for you two.
Nicole I hope it goes well for you as well, and I'm sorry you have to go through something like Transplant so soon.
 

ClashPunk82

New member
RE: Lung Transplant List

Thank you everyone who has been kind to me. And to the anonymous poster I apologize if I offended you but wasn't my intention at all. I was just stating how I felt about my situation. I am glad your bf is happy and excited about making the list, he should be. I hope you have a fun celebration and hope he is feeling well.
 

anonymous

New member
RE: Lung Transplant List

Well My family and myself were happy too when I got listed for a lung, liver and pancreas transplant. We were thrilled. Why? Because my life sucks!! I have no quality of life and it meant that I have a chance at a better life. Im always in pain and i have so many problems because of all the organs my CF has attacked. Im looking foreward to my transplants. So there is nothing wrong with being happy and celebrating. You cant go back and dwell on the fact that you are young and sick. It will just make you depressed. Look foreward to the future and what good things can happen. Thats How I feel and I know My outcome is better if Im positive about it!!

kris
23/ listed for multi organs for 10 months.(lungs, liver and possibly pancrease)
 

anonymous

New member
RE: Lung Transplant List

if you are for practicle reasons poor, e.g., barely have enough funds to pay for prescriptions, food, and rent, does the chance exist for one in such a financial condition to get a transplant, or does one have to raise funds/be rich? I have PPO insurance through my work.
 

anonymous

New member
RE: Lung Transplant List

Have you filed for disability so that in a couple of years you can get Medicare? If so, then you would have the 2 insurances (PPO & Medicare) & I am guessing between your PPO and the Medicare that you should do OK w/ meds, etc. I may be wrong. Someone please correct me if so.
You would, however need to raise funds for living expenses while at the tx center for the 3-4 months that are required unless you live close enough to the center to get there right away if need be.
 
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