lving life normally

[anonymous]

Hello

This is the first time i ave ever used this site.
My name is Lindsay. I am 26 years old. I have studied to Masters level and work full time as an urban development counsultant. I have just bought a house with my boyfirned Alan and I have an active social life. But today I feel like I can't do it. Today I feel like I wan to go home and shut the door and give up. I am not sleeping well because I have had bad chest pain and I find organising prescription and clinic appointments nd medication around my job so difficult. I never feel like I am doing anything propoerly because I am thinking about the next nebuliser or what this cough if going to turn in to. I find it hard to wind down at night because I know before I go to sleep I need to do Physio, colomycin, inhalors, tablits, ventolin nebs. I either feel unbelieveable gratitue toward Alan becuase i feel like he puts up with so much or resentment because he doesn't have to juggle his life round this which is so unfair on him as he does so much.
I just wondered if anyone else struggles trying to have the life they want to have.

 

[anonymous]

Welcome Lindsay. Well life for us CFers is a balancing act, it just a matter of putting things in perspective and acknowledging what it is you really want. For me, I have chosen to work part time and also receive some supplemental income because physically I can't do it all. Life needs to be lived, that is a given, it wouldn't be good to sit back and give up while life ticks by. My suggestion is to decide what is really important for you. For me it is living the best quality of life that I can and enjoy what I do. I am getting married in six weeks, we would like to have a family - which is draining as well. But first I have to put my health first, if I don't have good/reasonable health then I have nothing. I do therapy three times a day, including nebs and it works - it just works because I make it work. And yes I long for weekends but I enjoy going to work because it mentally stimulates me.

I don't know if this has helped at all. If you are looking at things from a financial stand point, that you can't not work fulltime then look into your options for supplemental disability income (disability is such a difficult term to swallow sometimes) Put your health first, then other things will follow.

Sarah
27 w/cf

 

[anonymous]

Thank you Sarah
It is nice to hear from someone who understands the balancing act
I don't feel like this everyday and normaly I manage fine. I haven't had a sick day in 6 months but I also know I push myself too hard sometimes and I don't know what long terms effects that will have.
Finances are not a worry for us but my stubborness is more of a problem.
thank you for letting me see another point of view, and another way of dealing with things
Have a fabulous wedding