MAC

ladybug

New member
thanks, Amy. as soon as i figure out my sign in credentials, i will post there.

as far as denver, right now, since we just got to this post and i'm not feeling well enough to travel alone, we aren't able to head there. do you know if they do consults via email/phone? i'd love to run my results by them.

my new current docs (the ones i left the military hosp. docs for just this week- LONG story) consult every week with a doc at the national institute of health who does research on CF and MAC and other mycobacterias, so after they get my chest CT, which i'll do next week, they will consult with him for his opinion.

i was just hoping some of the peeps who have posted about MAC and their treatment would maybe see this and post, but maybe they've all disappeared (or gone to cf2chat... ha ha!)
 

ladybug

New member
thanks, Amy. as soon as i figure out my sign in credentials, i will post there.

as far as denver, right now, since we just got to this post and i'm not feeling well enough to travel alone, we aren't able to head there. do you know if they do consults via email/phone? i'd love to run my results by them.

my new current docs (the ones i left the military hosp. docs for just this week- LONG story) consult every week with a doc at the national institute of health who does research on CF and MAC and other mycobacterias, so after they get my chest CT, which i'll do next week, they will consult with him for his opinion.

i was just hoping some of the peeps who have posted about MAC and their treatment would maybe see this and post, but maybe they've all disappeared (or gone to cf2chat... ha ha!)
 

ladybug

New member
thanks, Amy. as soon as i figure out my sign in credentials, i will post there.

as far as denver, right now, since we just got to this post and i'm not feeling well enough to travel alone, we aren't able to head there. do you know if they do consults via email/phone? i'd love to run my results by them.

my new current docs (the ones i left the military hosp. docs for just this week- LONG story) consult every week with a doc at the national institute of health who does research on CF and MAC and other mycobacterias, so after they get my chest CT, which i'll do next week, they will consult with him for his opinion.

i was just hoping some of the peeps who have posted about MAC and their treatment would maybe see this and post, but maybe they've all disappeared (or gone to cf2chat... ha ha!)
 

ladybug

New member
thanks, Amy. as soon as i figure out my sign in credentials, i will post there.

as far as denver, right now, since we just got to this post and i'm not feeling well enough to travel alone, we aren't able to head there. do you know if they do consults via email/phone? i'd love to run my results by them.

my new current docs (the ones i left the military hosp. docs for just this week- LONG story) consult every week with a doc at the national institute of health who does research on CF and MAC and other mycobacterias, so after they get my chest CT, which i'll do next week, they will consult with him for his opinion.

i was just hoping some of the peeps who have posted about MAC and their treatment would maybe see this and post, but maybe they've all disappeared (or gone to cf2chat... ha ha!)
 

ladybug

New member
thanks, Amy. as soon as i figure out my sign in credentials, i will post there.
<br />
<br />as far as denver, right now, since we just got to this post and i'm not feeling well enough to travel alone, we aren't able to head there. do you know if they do consults via email/phone? i'd love to run my results by them.
<br />
<br />my new current docs (the ones i left the military hosp. docs for just this week- LONG story) consult every week with a doc at the national institute of health who does research on CF and MAC and other mycobacterias, so after they get my chest CT, which i'll do next week, they will consult with him for his opinion.
<br />
<br />i was just hoping some of the peeps who have posted about MAC and their treatment would maybe see this and post, but maybe they've all disappeared (or gone to cf2chat... ha ha!)
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

www.cf2chat.com has many more adult CFer's with MAC. you might want to ask your question there</end quote></div>


I dont think this is necessarily true. We have quite a few members with MAC, but wherever she can get answers!
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

www.cf2chat.com has many more adult CFer's with MAC. you might want to ask your question there</end quote></div>


I dont think this is necessarily true. We have quite a few members with MAC, but wherever she can get answers!
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

www.cf2chat.com has many more adult CFer's with MAC. you might want to ask your question there</end quote></div>


I dont think this is necessarily true. We have quite a few members with MAC, but wherever she can get answers!
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

www.cf2chat.com has many more adult CFer's with MAC. you might want to ask your question there</end quote>


I dont think this is necessarily true. We have quite a few members with MAC, but wherever she can get answers!
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>
<br />
<br />www.cf2chat.com has many more adult CFer's with MAC. you might want to ask your question there</end quote>
<br />
<br />
<br />I dont think this is necessarily true. We have quite a few members with MAC, but wherever she can get answers!
<br />
 
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