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zeeannie
Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lexisangels05</b></i>
Hi Jen,
My daughter Lexi had a meconeum ileus blockage at birth. Her intestines had twisted, died, and ruptured. She underwent a 3 hours surgery the day she was born, where the doctors cleaned her out and removed 75% of her small intestines. She did however keep her ileocecal valve. Lexi had an ostomy bag for about 3 months before they did her reinastimosis. At age 15 months old they did a small bowell follow through study and at that time she had grown back almost all of her intestines. I guess this was because of her age. They said when she started growing and eating that this would happen. she has no problems due to short gut now. Just gi probs that come with CF.</end quote></div>
Hi Jen - My daughter's story is almost a duplicate of Lexi's. She didn't keep her ostomy bag as long, tho. I remember how scary it was to hear about bowel transplant and all the related stuff. It's that Zeke's bowels are showing signs that they're working. That's awesome news!! Hopefully, as he grows, so will his bowel. Hang in there, he'll grow and heal things won't be so dire before long.
Hi Jen,
My daughter Lexi had a meconeum ileus blockage at birth. Her intestines had twisted, died, and ruptured. She underwent a 3 hours surgery the day she was born, where the doctors cleaned her out and removed 75% of her small intestines. She did however keep her ileocecal valve. Lexi had an ostomy bag for about 3 months before they did her reinastimosis. At age 15 months old they did a small bowell follow through study and at that time she had grown back almost all of her intestines. I guess this was because of her age. They said when she started growing and eating that this would happen. she has no problems due to short gut now. Just gi probs that come with CF.</end quote></div>
Hi Jen - My daughter's story is almost a duplicate of Lexi's. She didn't keep her ostomy bag as long, tho. I remember how scary it was to hear about bowel transplant and all the related stuff. It's that Zeke's bowels are showing signs that they're working. That's awesome news!! Hopefully, as he grows, so will his bowel. Hang in there, he'll grow and heal things won't be so dire before long.
Z
zeeannie
Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lexisangels05</b></i>
Hi Jen,
My daughter Lexi had a meconeum ileus blockage at birth. Her intestines had twisted, died, and ruptured. She underwent a 3 hours surgery the day she was born, where the doctors cleaned her out and removed 75% of her small intestines. She did however keep her ileocecal valve. Lexi had an ostomy bag for about 3 months before they did her reinastimosis. At age 15 months old they did a small bowell follow through study and at that time she had grown back almost all of her intestines. I guess this was because of her age. They said when she started growing and eating that this would happen. she has no problems due to short gut now. Just gi probs that come with CF.</end quote></div>
Hi Jen - My daughter's story is almost a duplicate of Lexi's. She didn't keep her ostomy bag as long, tho. I remember how scary it was to hear about bowel transplant and all the related stuff. It's that Zeke's bowels are showing signs that they're working. That's awesome news!! Hopefully, as he grows, so will his bowel. Hang in there, he'll grow and heal things won't be so dire before long.
Hi Jen,
My daughter Lexi had a meconeum ileus blockage at birth. Her intestines had twisted, died, and ruptured. She underwent a 3 hours surgery the day she was born, where the doctors cleaned her out and removed 75% of her small intestines. She did however keep her ileocecal valve. Lexi had an ostomy bag for about 3 months before they did her reinastimosis. At age 15 months old they did a small bowell follow through study and at that time she had grown back almost all of her intestines. I guess this was because of her age. They said when she started growing and eating that this would happen. she has no problems due to short gut now. Just gi probs that come with CF.</end quote></div>
Hi Jen - My daughter's story is almost a duplicate of Lexi's. She didn't keep her ostomy bag as long, tho. I remember how scary it was to hear about bowel transplant and all the related stuff. It's that Zeke's bowels are showing signs that they're working. That's awesome news!! Hopefully, as he grows, so will his bowel. Hang in there, he'll grow and heal things won't be so dire before long.
Z
zeeannie
Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lexisangels05</b></i>
Hi Jen,
My daughter Lexi had a meconeum ileus blockage at birth. Her intestines had twisted, died, and ruptured. She underwent a 3 hours surgery the day she was born, where the doctors cleaned her out and removed 75% of her small intestines. She did however keep her ileocecal valve. Lexi had an ostomy bag for about 3 months before they did her reinastimosis. At age 15 months old they did a small bowell follow through study and at that time she had grown back almost all of her intestines. I guess this was because of her age. They said when she started growing and eating that this would happen. she has no problems due to short gut now. Just gi probs that come with CF.</end quote></div>
Hi Jen - My daughter's story is almost a duplicate of Lexi's. She didn't keep her ostomy bag as long, tho. I remember how scary it was to hear about bowel transplant and all the related stuff. It's that Zeke's bowels are showing signs that they're working. That's awesome news!! Hopefully, as he grows, so will his bowel. Hang in there, he'll grow and heal things won't be so dire before long.
Hi Jen,
My daughter Lexi had a meconeum ileus blockage at birth. Her intestines had twisted, died, and ruptured. She underwent a 3 hours surgery the day she was born, where the doctors cleaned her out and removed 75% of her small intestines. She did however keep her ileocecal valve. Lexi had an ostomy bag for about 3 months before they did her reinastimosis. At age 15 months old they did a small bowell follow through study and at that time she had grown back almost all of her intestines. I guess this was because of her age. They said when she started growing and eating that this would happen. she has no problems due to short gut now. Just gi probs that come with CF.</end quote></div>
Hi Jen - My daughter's story is almost a duplicate of Lexi's. She didn't keep her ostomy bag as long, tho. I remember how scary it was to hear about bowel transplant and all the related stuff. It's that Zeke's bowels are showing signs that they're working. That's awesome news!! Hopefully, as he grows, so will his bowel. Hang in there, he'll grow and heal things won't be so dire before long.
Z
zeeannie
Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lexisangels05</b></i>
Hi Jen,
My daughter Lexi had a meconeum ileus blockage at birth. Her intestines had twisted, died, and ruptured. She underwent a 3 hours surgery the day she was born, where the doctors cleaned her out and removed 75% of her small intestines. She did however keep her ileocecal valve. Lexi had an ostomy bag for about 3 months before they did her reinastimosis. At age 15 months old they did a small bowell follow through study and at that time she had grown back almost all of her intestines. I guess this was because of her age. They said when she started growing and eating that this would happen. she has no problems due to short gut now. Just gi probs that come with CF.</end quote>
Hi Jen - My daughter's story is almost a duplicate of Lexi's. She didn't keep her ostomy bag as long, tho. I remember how scary it was to hear about bowel transplant and all the related stuff. It's that Zeke's bowels are showing signs that they're working. That's awesome news!! Hopefully, as he grows, so will his bowel. Hang in there, he'll grow and heal things won't be so dire before long.
Hi Jen,
My daughter Lexi had a meconeum ileus blockage at birth. Her intestines had twisted, died, and ruptured. She underwent a 3 hours surgery the day she was born, where the doctors cleaned her out and removed 75% of her small intestines. She did however keep her ileocecal valve. Lexi had an ostomy bag for about 3 months before they did her reinastimosis. At age 15 months old they did a small bowell follow through study and at that time she had grown back almost all of her intestines. I guess this was because of her age. They said when she started growing and eating that this would happen. she has no problems due to short gut now. Just gi probs that come with CF.</end quote>
Hi Jen - My daughter's story is almost a duplicate of Lexi's. She didn't keep her ostomy bag as long, tho. I remember how scary it was to hear about bowel transplant and all the related stuff. It's that Zeke's bowels are showing signs that they're working. That's awesome news!! Hopefully, as he grows, so will his bowel. Hang in there, he'll grow and heal things won't be so dire before long.
Z
zeeannie
Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lexisangels05</b></i>
<br />
<br />Hi Jen,
<br />
<br />My daughter Lexi had a meconeum ileus blockage at birth. Her intestines had twisted, died, and ruptured. She underwent a 3 hours surgery the day she was born, where the doctors cleaned her out and removed 75% of her small intestines. She did however keep her ileocecal valve. Lexi had an ostomy bag for about 3 months before they did her reinastimosis. At age 15 months old they did a small bowell follow through study and at that time she had grown back almost all of her intestines. I guess this was because of her age. They said when she started growing and eating that this would happen. she has no problems due to short gut now. Just gi probs that come with CF.</end quote>
<br />
<br />Hi Jen - My daughter's story is almost a duplicate of Lexi's. She didn't keep her ostomy bag as long, tho. I remember how scary it was to hear about bowel transplant and all the related stuff. It's that Zeke's bowels are showing signs that they're working. That's awesome news!! Hopefully, as he grows, so will his bowel. Hang in there, he'll grow and heal things won't be so dire before long.
<br />
<br />Hi Jen,
<br />
<br />My daughter Lexi had a meconeum ileus blockage at birth. Her intestines had twisted, died, and ruptured. She underwent a 3 hours surgery the day she was born, where the doctors cleaned her out and removed 75% of her small intestines. She did however keep her ileocecal valve. Lexi had an ostomy bag for about 3 months before they did her reinastimosis. At age 15 months old they did a small bowell follow through study and at that time she had grown back almost all of her intestines. I guess this was because of her age. They said when she started growing and eating that this would happen. she has no problems due to short gut now. Just gi probs that come with CF.</end quote>
<br />
<br />Hi Jen - My daughter's story is almost a duplicate of Lexi's. She didn't keep her ostomy bag as long, tho. I remember how scary it was to hear about bowel transplant and all the related stuff. It's that Zeke's bowels are showing signs that they're working. That's awesome news!! Hopefully, as he grows, so will his bowel. Hang in there, he'll grow and heal things won't be so dire before long.
M
Mommy2Zeke
Guest
Looking back on all this, I just know I don't ever want to go through Saturday morning again. The surgeon came in and tried as delicately as possible to say that Zeke may not make it through surgery. He said that it was best for me to say my goodbyes in the event things were as dire as he thought. So I laid there on the bed next to my 2 month old baby and told him how much I loved him, sobbing, praying I'd get to see him alive again. That was undoubtedly the worst moment of my life.
His current prognosis is significantly better though. 21 cm of intestine is a small amount of intestine but with the ileocecal valve the doc thinks Zeke has a good chance of not having major absorption problems once we get past his 1st birthday.
Thanks for your thoughts and prayers. We're still going to be here for awhile but I'll keep updating when I can.
His current prognosis is significantly better though. 21 cm of intestine is a small amount of intestine but with the ileocecal valve the doc thinks Zeke has a good chance of not having major absorption problems once we get past his 1st birthday.
Thanks for your thoughts and prayers. We're still going to be here for awhile but I'll keep updating when I can.
M
Mommy2Zeke
Guest
Looking back on all this, I just know I don't ever want to go through Saturday morning again. The surgeon came in and tried as delicately as possible to say that Zeke may not make it through surgery. He said that it was best for me to say my goodbyes in the event things were as dire as he thought. So I laid there on the bed next to my 2 month old baby and told him how much I loved him, sobbing, praying I'd get to see him alive again. That was undoubtedly the worst moment of my life.
His current prognosis is significantly better though. 21 cm of intestine is a small amount of intestine but with the ileocecal valve the doc thinks Zeke has a good chance of not having major absorption problems once we get past his 1st birthday.
Thanks for your thoughts and prayers. We're still going to be here for awhile but I'll keep updating when I can.
His current prognosis is significantly better though. 21 cm of intestine is a small amount of intestine but with the ileocecal valve the doc thinks Zeke has a good chance of not having major absorption problems once we get past his 1st birthday.
Thanks for your thoughts and prayers. We're still going to be here for awhile but I'll keep updating when I can.
M
Mommy2Zeke
Guest
Looking back on all this, I just know I don't ever want to go through Saturday morning again. The surgeon came in and tried as delicately as possible to say that Zeke may not make it through surgery. He said that it was best for me to say my goodbyes in the event things were as dire as he thought. So I laid there on the bed next to my 2 month old baby and told him how much I loved him, sobbing, praying I'd get to see him alive again. That was undoubtedly the worst moment of my life.
His current prognosis is significantly better though. 21 cm of intestine is a small amount of intestine but with the ileocecal valve the doc thinks Zeke has a good chance of not having major absorption problems once we get past his 1st birthday.
Thanks for your thoughts and prayers. We're still going to be here for awhile but I'll keep updating when I can.
His current prognosis is significantly better though. 21 cm of intestine is a small amount of intestine but with the ileocecal valve the doc thinks Zeke has a good chance of not having major absorption problems once we get past his 1st birthday.
Thanks for your thoughts and prayers. We're still going to be here for awhile but I'll keep updating when I can.
M
Mommy2Zeke
Guest
Looking back on all this, I just know I don't ever want to go through Saturday morning again. The surgeon came in and tried as delicately as possible to say that Zeke may not make it through surgery. He said that it was best for me to say my goodbyes in the event things were as dire as he thought. So I laid there on the bed next to my 2 month old baby and told him how much I loved him, sobbing, praying I'd get to see him alive again. That was undoubtedly the worst moment of my life.
His current prognosis is significantly better though. 21 cm of intestine is a small amount of intestine but with the ileocecal valve the doc thinks Zeke has a good chance of not having major absorption problems once we get past his 1st birthday.
Thanks for your thoughts and prayers. We're still going to be here for awhile but I'll keep updating when I can.
His current prognosis is significantly better though. 21 cm of intestine is a small amount of intestine but with the ileocecal valve the doc thinks Zeke has a good chance of not having major absorption problems once we get past his 1st birthday.
Thanks for your thoughts and prayers. We're still going to be here for awhile but I'll keep updating when I can.
M
Mommy2Zeke
Guest
Looking back on all this, I just know I don't ever want to go through Saturday morning again. The surgeon came in and tried as delicately as possible to say that Zeke may not make it through surgery. He said that it was best for me to say my goodbyes in the event things were as dire as he thought. So I laid there on the bed next to my 2 month old baby and told him how much I loved him, sobbing, praying I'd get to see him alive again. That was undoubtedly the worst moment of my life.
<br />
<br />His current prognosis is significantly better though. 21 cm of intestine is a small amount of intestine but with the ileocecal valve the doc thinks Zeke has a good chance of not having major absorption problems once we get past his 1st birthday.
<br />
<br />Thanks for your thoughts and prayers. We're still going to be here for awhile but I'll keep updating when I can.
<br />
<br />
<br />
<br />His current prognosis is significantly better though. 21 cm of intestine is a small amount of intestine but with the ileocecal valve the doc thinks Zeke has a good chance of not having major absorption problems once we get past his 1st birthday.
<br />
<br />Thanks for your thoughts and prayers. We're still going to be here for awhile but I'll keep updating when I can.
<br />
<br />