I was wondering for those of you who have had wishes granted or who have children who have had wishes granted how your lung function was. We just applied for a wish for our son who has fairly good lung function and were denied because they said for kids with Cf the rules say they must have severe lung disease and be considered for transplant. This does not sound right to me. I was wondering about other kids who have been granted wishes and also those who have been denied.
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Make a Wish
- Thread starter beansmom
- Start date
I was wondering for those of you who have had wishes granted or who have children who have had wishes granted how your lung function was. We just applied for a wish for our son who has fairly good lung function and were denied because they said for kids with Cf the rules say they must have severe lung disease and be considered for transplant. This does not sound right to me. I was wondering about other kids who have been granted wishes and also those who have been denied.
I was wondering for those of you who have had wishes granted or who have children who have had wishes granted how your lung function was. We just applied for a wish for our son who has fairly good lung function and were denied because they said for kids with Cf the rules say they must have severe lung disease and be considered for transplant. This does not sound right to me. I was wondering about other kids who have been granted wishes and also those who have been denied.
I was wondering for those of you who have had wishes granted or who have children who have had wishes granted how your lung function was. We just applied for a wish for our son who has fairly good lung function and were denied because they said for kids with Cf the rules say they must have severe lung disease and be considered for transplant. This does not sound right to me. I was wondering about other kids who have been granted wishes and also those who have been denied.
I was wondering for those of you who have had wishes granted or who have children who have had wishes granted how your lung function was. We just applied for a wish for our son who has fairly good lung function and were denied because they said for kids with Cf the rules say they must have severe lung disease and be considered for transplant. This does not sound right to me. I was wondering about other kids who have been granted wishes and also those who have been denied.
debs2girls
New member
My daughter had her wish granted in Nov. 09. From what I understand..CF is a qualified ailment. I dont think you were told right. BTW, my daughter's CF is considered moderate.
debs2girls
New member
My daughter had her wish granted in Nov. 09. From what I understand..CF is a qualified ailment. I dont think you were told right. BTW, my daughter's CF is considered moderate.
debs2girls
New member
My daughter had her wish granted in Nov. 09. From what I understand..CF is a qualified ailment. I dont think you were told right. BTW, my daughter's CF is considered moderate.
debs2girls
New member
My daughter had her wish granted in Nov. 09. From what I understand..CF is a qualified ailment. I dont think you were told right. BTW, my daughter's CF is considered moderate.
debs2girls
New member
My daughter had her wish granted in Nov. 09. From what I understand..CF is a qualified ailment. I dont think you were told right. BTW, my daughter's CF is considered moderate.
cfgirl1992
New member
I recently just went on a trip to Hawaii that the make a wish foundation gave my family and I on my behalf. We were told both things, my doctors told me that I qualified for a wish (despite that my CF is mild), and contacted the maw. After much planning had gone into the trip the maw told us that they "didnt usually" grant wishes to kids with CF, however because they were so far along they went through with it. Despite that, I do think CF patients qualify for a wish regardless of the status of their health, I would contact your doctor and see what can be done.
cfgirl1992
New member
I recently just went on a trip to Hawaii that the make a wish foundation gave my family and I on my behalf. We were told both things, my doctors told me that I qualified for a wish (despite that my CF is mild), and contacted the maw. After much planning had gone into the trip the maw told us that they "didnt usually" grant wishes to kids with CF, however because they were so far along they went through with it. Despite that, I do think CF patients qualify for a wish regardless of the status of their health, I would contact your doctor and see what can be done.
cfgirl1992
New member
I recently just went on a trip to Hawaii that the make a wish foundation gave my family and I on my behalf. We were told both things, my doctors told me that I qualified for a wish (despite that my CF is mild), and contacted the maw. After much planning had gone into the trip the maw told us that they "didnt usually" grant wishes to kids with CF, however because they were so far along they went through with it. Despite that, I do think CF patients qualify for a wish regardless of the status of their health, I would contact your doctor and see what can be done.
cfgirl1992
New member
I recently just went on a trip to Hawaii that the make a wish foundation gave my family and I on my behalf. We were told both things, my doctors told me that I qualified for a wish (despite that my CF is mild), and contacted the maw. After much planning had gone into the trip the maw told us that they "didnt usually" grant wishes to kids with CF, however because they were so far along they went through with it. Despite that, I do think CF patients qualify for a wish regardless of the status of their health, I would contact your doctor and see what can be done.
cfgirl1992
New member
I recently just went on a trip to Hawaii that the make a wish foundation gave my family and I on my behalf. We were told both things, my doctors told me that I qualified for a wish (despite that my CF is mild), and contacted the maw. After much planning had gone into the trip the maw told us that they "didnt usually" grant wishes to kids with CF, however because they were so far along they went through with it. Despite that, I do think CF patients qualify for a wish regardless of the status of their health, I would contact your doctor and see what can be done.
Hi,
I was granted a wish twenty years ago when I was 9. I don't really have a clue what my lung function was at the time but I was no where near transplant, as I'm still kickin' on the same lungs <img src="i/expressions/face-icon-small-smile.gif" border="0">.
I'm not familiar with any of their current policies but I haven't heard of them having any requirements as far as lung function/transplant status. I'm with Debbie, I always thought CF in and of itself was enough to qualify.
I'm interested to see the replies from others with recent experiences with MAW.
I was granted a wish twenty years ago when I was 9. I don't really have a clue what my lung function was at the time but I was no where near transplant, as I'm still kickin' on the same lungs <img src="i/expressions/face-icon-small-smile.gif" border="0">.
I'm not familiar with any of their current policies but I haven't heard of them having any requirements as far as lung function/transplant status. I'm with Debbie, I always thought CF in and of itself was enough to qualify.
I'm interested to see the replies from others with recent experiences with MAW.
Hi,
I was granted a wish twenty years ago when I was 9. I don't really have a clue what my lung function was at the time but I was no where near transplant, as I'm still kickin' on the same lungs <img src="i/expressions/face-icon-small-smile.gif" border="0">.
I'm not familiar with any of their current policies but I haven't heard of them having any requirements as far as lung function/transplant status. I'm with Debbie, I always thought CF in and of itself was enough to qualify.
I'm interested to see the replies from others with recent experiences with MAW.
I was granted a wish twenty years ago when I was 9. I don't really have a clue what my lung function was at the time but I was no where near transplant, as I'm still kickin' on the same lungs <img src="i/expressions/face-icon-small-smile.gif" border="0">.
I'm not familiar with any of their current policies but I haven't heard of them having any requirements as far as lung function/transplant status. I'm with Debbie, I always thought CF in and of itself was enough to qualify.
I'm interested to see the replies from others with recent experiences with MAW.
Hi,
I was granted a wish twenty years ago when I was 9. I don't really have a clue what my lung function was at the time but I was no where near transplant, as I'm still kickin' on the same lungs <img src="i/expressions/face-icon-small-smile.gif" border="0">.
I'm not familiar with any of their current policies but I haven't heard of them having any requirements as far as lung function/transplant status. I'm with Debbie, I always thought CF in and of itself was enough to qualify.
I'm interested to see the replies from others with recent experiences with MAW.
I was granted a wish twenty years ago when I was 9. I don't really have a clue what my lung function was at the time but I was no where near transplant, as I'm still kickin' on the same lungs <img src="i/expressions/face-icon-small-smile.gif" border="0">.
I'm not familiar with any of their current policies but I haven't heard of them having any requirements as far as lung function/transplant status. I'm with Debbie, I always thought CF in and of itself was enough to qualify.
I'm interested to see the replies from others with recent experiences with MAW.
Hi,
I was granted a wish twenty years ago when I was 9. I don't really have a clue what my lung function was at the time but I was no where near transplant, as I'm still kickin' on the same lungs <img src="i/expressions/face-icon-small-smile.gif" border="0">.
I'm not familiar with any of their current policies but I haven't heard of them having any requirements as far as lung function/transplant status. I'm with Debbie, I always thought CF in and of itself was enough to qualify.
I'm interested to see the replies from others with recent experiences with MAW.
I was granted a wish twenty years ago when I was 9. I don't really have a clue what my lung function was at the time but I was no where near transplant, as I'm still kickin' on the same lungs <img src="i/expressions/face-icon-small-smile.gif" border="0">.
I'm not familiar with any of their current policies but I haven't heard of them having any requirements as far as lung function/transplant status. I'm with Debbie, I always thought CF in and of itself was enough to qualify.
I'm interested to see the replies from others with recent experiences with MAW.
Hi,
<br />
<br />I was granted a wish twenty years ago when I was 9. I don't really have a clue what my lung function was at the time but I was no where near transplant, as I'm still kickin' on the same lungs <img src="i/expressions/face-icon-small-smile.gif" border="0">.
<br />
<br />I'm not familiar with any of their current policies but I haven't heard of them having any requirements as far as lung function/transplant status. I'm with Debbie, I always thought CF in and of itself was enough to qualify.
<br />
<br />I'm interested to see the replies from others with recent experiences with MAW.
<br />
<br />I was granted a wish twenty years ago when I was 9. I don't really have a clue what my lung function was at the time but I was no where near transplant, as I'm still kickin' on the same lungs <img src="i/expressions/face-icon-small-smile.gif" border="0">.
<br />
<br />I'm not familiar with any of their current policies but I haven't heard of them having any requirements as far as lung function/transplant status. I'm with Debbie, I always thought CF in and of itself was enough to qualify.
<br />
<br />I'm interested to see the replies from others with recent experiences with MAW.