My husband and I married in 2005 and immediately began trying to conceive. In 2007, we found out that my husband had CF and was infertile, so our only option was IVF with ICSI. He was 32 at the time and otherwise healthy - positive sweat test but perfect lung function and no other issues. Three years later, all is the same. I have a child from a previous relationship (now 11), and my husband and I decided that he would adopt my child and the three of us would be a family.
But honestly? We both felt (and still do) that our egotistical need to have a child comes secondary to very real concerns that our child could have CF (if I have a rare mutation that's not picked up on the genetic test), or at the very least, be a carrier and perpetuate the CF in our family. While we considered adoption, we were reluctant to because my son is already in middle school and if my husband's health worsens, it would be so much for a child to see him suffer or die. I've read of both of these cases here on these boards, and personally, it's not something that I would willfully put my own child through.
Despite our decision, we've both mourned this loss. It's gotten so much easier with time, and we are fortunate to have our middle schooler. We had to learn that his CF or infertility *didn't define him or our relationship* if that makes sense.
