D
Deb
Guest
There are definitely varying degrees of CF, depending on the which defect you carry. Although in the end, it is a progressive disease that will get worse.
When I had my children there was no genetic testing available so we took a chance that my husband was not a carrier. Yes, we beat the odds and neither of my children has CF.
My children and my husband are everything to me and I truly believe that it is them that keep me diligent about taking care of myself and fighting this disease with everything I've got.
Whether or not someone decides to have children is a very personal decision that needs to be based on individual health, support, and physician oversight.
I hate to think that 50 years ago my mother would have been told to end her pregnancy because of the terrible life I would lead. I enjoy every day of life despite my disease. I am a college graduate, gainfully employed, happily married, mother of two fantastic adult children who happens to have CF. It is all of these other parts of me that sum up my life, not my disease.
When I had my children there was no genetic testing available so we took a chance that my husband was not a carrier. Yes, we beat the odds and neither of my children has CF.
My children and my husband are everything to me and I truly believe that it is them that keep me diligent about taking care of myself and fighting this disease with everything I've got.
Whether or not someone decides to have children is a very personal decision that needs to be based on individual health, support, and physician oversight.
I hate to think that 50 years ago my mother would have been told to end her pregnancy because of the terrible life I would lead. I enjoy every day of life despite my disease. I am a college graduate, gainfully employed, happily married, mother of two fantastic adult children who happens to have CF. It is all of these other parts of me that sum up my life, not my disease.