So good to hear your friend is doing better... that is the news we llike to hear. I hope she gets the proper medication and "talk therapy" to help with her recovery.As to life expectancy... the good news is that it continues to rise. I was diagnosed at 4 and the life expectancy then was 10... and over the years it kept rising, as I got older. Fortunately for lung transplant, you can add even more years and HEALTHY YEARS!!!I am 40, my sister is 50 and we both have CF. There are many people with CF who are in their 50-70's. Taking care of ones health is so important and encouragement from loved ones will be a big benefit.Let us know how your friend does.Joanne Schumluckylungsforjo@aol.com
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Maximum Life Expectancy - please comment
- Thread starter anonymous
- Start date
My boyfriend (almost 27) and his brother (30) both have CF. The older is a fitness trainer - and he's amazingly healthy (he gets PFTs over 100). My boyfriend just started an exercise program (running daily) and improved his FEV1 9% in a week and a half (Up to 68%).I would say that exercise is KEY! I know my guy feels much better after he started doing lots of exercising - and it really helps when you improve your health instead of decline.
bowlingguy
New member
Your friend is dealing with a huge loss, and is very lucky to have a friend like you. God bless you both. About your question I am 33, I was diagnosed at 2, the doctors told my parent i wouldnt live past early teens. Then when I was about 14-15 they said if Im lucky I might see early 20's. And more recently about 5 years ago I was told looking at my pulmonary functions that I only had 2-3 years to live and need to get on the transplant list. Well its been over a year now since i have needed antibiotics and before I was going in ever 4-6 months. These last few years I have been doing tremendously better since I started on tobi and pulmozyme. Tell your friend her health is only as good as she makes it, and to keep at staying strong and excersising, good luck and once again god bless...
bowlingguy
New member
ooops, didnt notice you were in socal also, I live in montclair, near upland, ontario, does she goto usc medical ? and if she ever needs someone else to talk to with cf, u can msg me on aim
Hello form Ireland, Dave!Just to let you know, my sister is 35 years old, married, with three sons and would put us all to shame with her energy and enthusiasm! We were all told from when she was a baby that she would not see her first birthday, her second, her tenth and so on and so on. Believe me, she's not going anywhere! She does take good care of herself and see's her doctors on a regular basis, she takes her medicine etc but obviously you cannot lock yourself away from the rest of the world - especially with three kids! She is open to colds and infection just like anyone else. I am really excited about the tumeric trials. It reminds me of the story from Lorenzo's Oil (good movie - a true story about a horrible disease which they find a cure for, she should watch it!)Best of luck,Dearbhla
Hello Dearbhla from NY.....i was born in county kerry and live in new york now....i am 29 w/CF soon to be the BIG 3'0...........but i am delighted to hear the news about your sister. It gives you us all great hope. I was thinking about moving back myself but i was afraid in case things there weren't up to speed. what are your thoughts on it?Regards,Denise
I have a fiend that will be turning 25 y/o this August 25th and she's been living with CF all her life. There have been bad days and there have been good days but her feeling is that she wants to live. I believe that a key to this is having a great supporting cast willing to be her strength when she doesnt have it that day. Making her smile really makes the day better for her.Bruce W Friend of a CF
Hi Dave!I hope your friend is doing better.I'm 18 and have CF and I can honestly say I don't often think about life expectancy. I've had friends who have died over the years but the way I look at it is hey, I could get run over by a bus tomorrow and it could all be over. My oldest friend with CF is 36, double my age, but I've heard of people living to be grandparents!When I was born (1985) I wasn't expected to make it past my teens but research is finding new developments every day so life expectancy is only going to get older.I take every day as a gift and I think that in a way having CF has been a blessing because thats why I cherish each day so much.I'm planning on staying around for a lot longer and hopefully your friend can soon feel the same.Take care the both of you.Hope your sisters doing well also!!x <img src="i/expressions/face-icon-small-smile.gif" border="0">
<img src="i/expressions/face-icon-small-smile.gif" border="0">Hello, I do hope 'things' are better for you and your young friend today. I have CF, although not as severe as my late brother and sister, have managed to weather many chest infections over my 52 years. Am not currently working but really look after my health. Am forever asking questions of the Med. Profession re my personal results etc. Over the years I have had 4 nasel pollup removals, in more recent years diagnosed with B/Cepacia and CF. related type 2 Diabetes. I am a advocate of exercise, [still competing in tennis} and daily walking helps to keep my blood levels on target. I have a 28yr. old son who along with close friends are aware of my struggles on some occasions, but over all I do value life and look forward to every day. Your dear friend is suffering thru. so much and your support will be encouraging, keep it up!Cheers.