alteregojenny
New member
Hi, I'm new to the forum, and know basically nothing about CF. I'm learning a lot from what I've read here, and at the CFF. My son is 9 mo. old, and 16lbs. Aparently that's small. He also had an "Apparent Life-Threatening Event" at 2 days old. Since then he's been on an apnea monitor, and has cases of apnea about every 4-6 weeks. Only once has he required CPR. He produces an extreme amount of sweat when he sleeps, and it's very stinky! He eats double the amount a "normal" child does at his age, and has totally stalled in weight gain. He's had pneumonia, at age 3 months old for an entire month, and RSV as well, at 7 months old. He had "a viral infection" (they never clarified that) about 3 weeks ago that caused him to nearly go into low sugar shock...but no diabetes. He's been coughing every day since his birth, sometimes coughing up foamy mucous, and has always had extremely sticky mucous from his nose. I finally got tired of the "wait and see if he grows out of whatever it is" game last month and pushed his pediatrician to find out what exactly is wrong with him. They sent him to a GI who has suggested we get a sweat test done. Does anyone here think he sounds like a person with CF? I am not entirely sure, and, frankly, I'm in mild shock since finding out it is a possibility. I welcome your comments!