me update

J

jbrandonAW

New member
www.insidecf.blogspot.com

I ended up getting my compressor. A PARI vios. It works GREAT and is a little quieter. Its a pretty blue color.

My doctor said I needed to see a cardiologist and have a heart monitor thing done.

My PFT's were 48% PRE treatment (and thats 5 days with no treatments). They gave me a breathing treatment and they went up to 54%. Thats only down 4% since my discharge in May, and that is higher than then were October (last clinic visit).

We decided to stay at 4 zenpep enzymes. Its the lowest dose I can have, so if it looks like they aren't working then I need to add another one.

So yea, check out my blog to see the rest of my update.
 
J

jbrandonAW

New member
www.insidecf.blogspot.com

I ended up getting my compressor. A PARI vios. It works GREAT and is a little quieter. Its a pretty blue color.

My doctor said I needed to see a cardiologist and have a heart monitor thing done.

My PFT's were 48% PRE treatment (and thats 5 days with no treatments). They gave me a breathing treatment and they went up to 54%. Thats only down 4% since my discharge in May, and that is higher than then were October (last clinic visit).

We decided to stay at 4 zenpep enzymes. Its the lowest dose I can have, so if it looks like they aren't working then I need to add another one.

So yea, check out my blog to see the rest of my update.
 
J

jbrandonAW

New member
www.insidecf.blogspot.com
<br />
<br />I ended up getting my compressor. A PARI vios. It works GREAT and is a little quieter. Its a pretty blue color.
<br />
<br />My doctor said I needed to see a cardiologist and have a heart monitor thing done.
<br />
<br />My PFT's were 48% PRE treatment (and thats 5 days with no treatments). They gave me a breathing treatment and they went up to 54%. Thats only down 4% since my discharge in May, and that is higher than then were October (last clinic visit).
<br />
<br />We decided to stay at 4 zenpep enzymes. Its the lowest dose I can have, so if it looks like they aren't working then I need to add another one.
<br />
<br />So yea, check out my blog to see the rest of my update.
 
K

KMV77

New member
Glad you got a compressor. I have the vios, I keep that one in my office. It works great. Hopefully it will last longer than my last pari.
Kevin
 
K

KMV77

New member
Glad you got a compressor. I have the vios, I keep that one in my office. It works great. Hopefully it will last longer than my last pari.
Kevin
 
K

KMV77

New member
Glad you got a compressor. I have the vios, I keep that one in my office. It works great. Hopefully it will last longer than my last pari.
<br />Kevin
 
L

LouLou

New member
Jess, Great to hear things are going pretty well for you. Work on that gaining for sure! Is the Vios approved for all your cf meds? Pari ProNeb II's were giving A LOT of people problems for a couple years. Hopefully this new air compressor has fixed things and their reputation isn't too tarnished from the poor previous product.
 
L

LouLou

New member
Jess, Great to hear things are going pretty well for you. Work on that gaining for sure! Is the Vios approved for all your cf meds? Pari ProNeb II's were giving A LOT of people problems for a couple years. Hopefully this new air compressor has fixed things and their reputation isn't too tarnished from the poor previous product.
 
L

LouLou

New member
Jess, Great to hear things are going pretty well for you. Work on that gaining for sure! Is the Vios approved for all your cf meds? Pari ProNeb II's were giving A LOT of people problems for a couple years. Hopefully this new air compressor has fixed things and their reputation isn't too tarnished from the poor previous product.
 
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