Meconium Illeus

R

Ratatosk

Administrator
Staff member
I noticed the following post under the CFF section on FB. I encouraged her to stop by here. I described our experience and encouraged her to stop by here:

<i>Does anyone have an infant with CF that was born with meconium ileus? Our daughter will be born this month with it and we are wondering what to expect (surgery, treatment, etc.). Thank you.</i>
 
R

Ratatosk

Administrator
Staff member
I noticed the following post under the CFF section on FB. I encouraged her to stop by here. I described our experience and encouraged her to stop by here:

<i>Does anyone have an infant with CF that was born with meconium ileus? Our daughter will be born this month with it and we are wondering what to expect (surgery, treatment, etc.). Thank you.</i>
 
R

Ratatosk

Administrator
Staff member
I noticed the following post under the CFF section on FB. I encouraged her to stop by here. I described our experience and encouraged her to stop by here:
<br />
<br /><i>Does anyone have an infant with CF that was born with meconium ileus? Our daughter will be born this month with it and we are wondering what to expect (surgery, treatment, etc.). Thank you.</i>
 
J

JORDYSMOM

New member
I hope she comes to the site. I know you, and so many others, will be a great help to her on this issue.

Stacey
 
J

JORDYSMOM

New member
I hope she comes to the site. I know you, and so many others, will be a great help to her on this issue.

Stacey
 
J

JORDYSMOM

New member
I hope she comes to the site. I know you, and so many others, will be a great help to her on this issue.
<br />
<br />Stacey
 
J

JaimieC

New member
I'm here<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you for the suggestion Lisa.

I am looking for others who have been through this and if they can share their experiences....how long was the stay in the NICU, what was the surgery like, aftercare, etc.

Thank you!
 
J

JaimieC

New member
I'm here<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you for the suggestion Lisa.

I am looking for others who have been through this and if they can share their experiences....how long was the stay in the NICU, what was the surgery like, aftercare, etc.

Thank you!
 
J

JaimieC

New member
I'm here<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you for the suggestion Lisa.
<br />
<br />I am looking for others who have been through this and if they can share their experiences....how long was the stay in the NICU, what was the surgery like, aftercare, etc.
<br />
<br />Thank you!
 
M

Mommafirst

Guest
My daughter was born with meconium illeus, but didn't need surgery. The barium enema they used for the contrast ct's was enough to dislodge the very low obstruction.

She was in the NICU for just 5 days.

We were very lucky. I hope your stay is just as easy.
 
M

Mommafirst

Guest
My daughter was born with meconium illeus, but didn't need surgery. The barium enema they used for the contrast ct's was enough to dislodge the very low obstruction.

She was in the NICU for just 5 days.

We were very lucky. I hope your stay is just as easy.
 
M

Mommafirst

Guest
My daughter was born with meconium illeus, but didn't need surgery. The barium enema they used for the contrast ct's was enough to dislodge the very low obstruction.
<br />
<br />She was in the NICU for just 5 days.
<br />
<br />We were very lucky. I hope your stay is just as easy.
 
S

SadiesMom

New member
I don't mean to hi-jack this thread, but this question makes me think of another...what is the liklihood that a baby with CF will be born with meconium illeus? Is it common or uncommon?
 
S

SadiesMom

New member
I don't mean to hi-jack this thread, but this question makes me think of another...what is the liklihood that a baby with CF will be born with meconium illeus? Is it common or uncommon?
 
S

SadiesMom

New member
I don't mean to hi-jack this thread, but this question makes me think of another...what is the liklihood that a baby with CF will be born with meconium illeus? Is it common or uncommon?
 
R

Ratatosk

Administrator
Staff member
Long ago, I seem to recall reading that 15-20% of infants wcf have an obstruction due to MI.

In DS case we had no idea he had cf. Normal pregnancy, ultrasound. But he was born a little early -- around 36 weeks. At the time he was born they thought he stooled in the womb; however, the next afternoon he started vomiting and they determined he had an obstruction.

His was a little more complicated with atresia, volvus, dialation... He didn't have to have very much of his intestine removed though there was a tiny bit of necrotization and during surgery there was a rupture, but it was while the intestines were outside of his body being repaired. He did not have to have an ostomy.
 
R

Ratatosk

Administrator
Staff member
Long ago, I seem to recall reading that 15-20% of infants wcf have an obstruction due to MI.

In DS case we had no idea he had cf. Normal pregnancy, ultrasound. But he was born a little early -- around 36 weeks. At the time he was born they thought he stooled in the womb; however, the next afternoon he started vomiting and they determined he had an obstruction.

His was a little more complicated with atresia, volvus, dialation... He didn't have to have very much of his intestine removed though there was a tiny bit of necrotization and during surgery there was a rupture, but it was while the intestines were outside of his body being repaired. He did not have to have an ostomy.
 
R

Ratatosk

Administrator
Staff member
Long ago, I seem to recall reading that 15-20% of infants wcf have an obstruction due to MI.
<br />
<br />In DS case we had no idea he had cf. Normal pregnancy, ultrasound. But he was born a little early -- around 36 weeks. At the time he was born they thought he stooled in the womb; however, the next afternoon he started vomiting and they determined he had an obstruction.
<br />
<br />His was a little more complicated with atresia, volvus, dialation... He didn't have to have very much of his intestine removed though there was a tiny bit of necrotization and during surgery there was a rupture, but it was while the intestines were outside of his body being repaired. He did not have to have an ostomy.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SadiesMom</b></i>

I don't mean to hi-jack this thread, but this question makes me think of another...what is the liklihood that a baby with CF will be born with meconium illeus? Is it common or uncommon?</end quote></div>

The quote I saw said that 90% of all MI's are CF patients, but only about 10% of all CF patients are born with MIs. Though it seems a little higher around here.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SadiesMom</b></i>

I don't mean to hi-jack this thread, but this question makes me think of another...what is the liklihood that a baby with CF will be born with meconium illeus? Is it common or uncommon?</end quote>

The quote I saw said that 90% of all MI's are CF patients, but only about 10% of all CF patients are born with MIs. Though it seems a little higher around here.
 
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