Meconium Illeus

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Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SadiesMom</b></i>
<br />
<br />I don't mean to hi-jack this thread, but this question makes me think of another...what is the liklihood that a baby with CF will be born with meconium illeus? Is it common or uncommon?</end quote>
<br />
<br />The quote I saw said that 90% of all MI's are CF patients, but only about 10% of all CF patients are born with MIs. Though it seems a little higher around here.
 
A

ashmomo

New member
I have also read that it is 15-20% of babies w/ CF will have MI.
Both my daughters were born w/ MI.
Ashlee was able to get hers out with multiple enimas within a few days. She was still in the NICU for 3 weeks trying to gain weight and be on full feeds.

Jordin had surgery, then an ostomy and mucous fistula for 7 weeks, then a second surgery to 'reconnect' the intestines. All together with recovery and working up to full feeds she was in for 2 1/2 months. She also had some lung involvement in the NICU as well...so take that into consideration...but I don't believe that it made her stay any longer. She has not had any issues to date with regards to her abdominal surgery...she has many other issues though.

PM me if you want to talk to anyone...I have had 2 different experiences w/ CF, so it is different w/ everyone.
Good luck to you!
Brandi
 
A

ashmomo

New member
I have also read that it is 15-20% of babies w/ CF will have MI.
Both my daughters were born w/ MI.
Ashlee was able to get hers out with multiple enimas within a few days. She was still in the NICU for 3 weeks trying to gain weight and be on full feeds.

Jordin had surgery, then an ostomy and mucous fistula for 7 weeks, then a second surgery to 'reconnect' the intestines. All together with recovery and working up to full feeds she was in for 2 1/2 months. She also had some lung involvement in the NICU as well...so take that into consideration...but I don't believe that it made her stay any longer. She has not had any issues to date with regards to her abdominal surgery...she has many other issues though.

PM me if you want to talk to anyone...I have had 2 different experiences w/ CF, so it is different w/ everyone.
Good luck to you!
Brandi
 
A

ashmomo

New member
I have also read that it is 15-20% of babies w/ CF will have MI.
<br />Both my daughters were born w/ MI.
<br />Ashlee was able to get hers out with multiple enimas within a few days. She was still in the NICU for 3 weeks trying to gain weight and be on full feeds.
<br />
<br />Jordin had surgery, then an ostomy and mucous fistula for 7 weeks, then a second surgery to 'reconnect' the intestines. All together with recovery and working up to full feeds she was in for 2 1/2 months. She also had some lung involvement in the NICU as well...so take that into consideration...but I don't believe that it made her stay any longer. She has not had any issues to date with regards to her abdominal surgery...she has many other issues though.
<br />
<br />PM me if you want to talk to anyone...I have had 2 different experiences w/ CF, so it is different w/ everyone.
<br />Good luck to you!
<br />Brandi
 
J

JaimieC

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

My daughter was born with meconium illeus, but didn't need surgery. The barium enema they used for the contrast ct's was enough to dislodge the very low obstruction.



She was in the NICU for just 5 days.



We were very lucky. I hope your stay is just as easy.</end quote></div>

Did you know she had CF before she was born? And were they able to see the blockage in the ultrasounds before birth?
 
J

JaimieC

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

My daughter was born with meconium illeus, but didn't need surgery. The barium enema they used for the contrast ct's was enough to dislodge the very low obstruction.



She was in the NICU for just 5 days.



We were very lucky. I hope your stay is just as easy.</end quote>

Did you know she had CF before she was born? And were they able to see the blockage in the ultrasounds before birth?
 
J

JaimieC

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>
<br />
<br />My daughter was born with meconium illeus, but didn't need surgery. The barium enema they used for the contrast ct's was enough to dislodge the very low obstruction.
<br />
<br />
<br />
<br />She was in the NICU for just 5 days.
<br />
<br />
<br />
<br />We were very lucky. I hope your stay is just as easy.</end quote>
<br />
<br />Did you know she had CF before she was born? And were they able to see the blockage in the ultrasounds before birth?
 
E

EmmettsMom

New member
Hi Jaime,
How did you find out that your baby will be born w/MI? I'm curious b/c I'm due in January and our specialist told me that there is no way he will be able to tell if this baby will be born w/MI. My son w/CF was born w/o MI. I personally opted not to have an amnio, so I won't know for sure until birth if baby#2 even has CF. Thanks in advance for your advice.
 
E

EmmettsMom

New member
Hi Jaime,
How did you find out that your baby will be born w/MI? I'm curious b/c I'm due in January and our specialist told me that there is no way he will be able to tell if this baby will be born w/MI. My son w/CF was born w/o MI. I personally opted not to have an amnio, so I won't know for sure until birth if baby#2 even has CF. Thanks in advance for your advice.
 
E

EmmettsMom

New member
Hi Jaime,
<br />How did you find out that your baby will be born w/MI? I'm curious b/c I'm due in January and our specialist told me that there is no way he will be able to tell if this baby will be born w/MI. My son w/CF was born w/o MI. I personally opted not to have an amnio, so I won't know for sure until birth if baby#2 even has CF. Thanks in advance for your advice.
 
G

grammakaky

New member
My two granddaughters were born with cf and only one had the blockage at birth. They saw it on an ultrasound two months before birth; so they knew what they were dealing with. Her blockage was heavier and she need surgery and a temporary bag. She healed well and was reattached within 6 weeks. She is doing wonderful and doesn't miss a meal.
 
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grammakaky

New member
My two granddaughters were born with cf and only one had the blockage at birth. They saw it on an ultrasound two months before birth; so they knew what they were dealing with. Her blockage was heavier and she need surgery and a temporary bag. She healed well and was reattached within 6 weeks. She is doing wonderful and doesn't miss a meal.
 
G

grammakaky

New member
My two granddaughters were born with cf and only one had the blockage at birth. They saw it on an ultrasound two months before birth; so they knew what they were dealing with. Her blockage was heavier and she need surgery and a temporary bag. She healed well and was reattached within 6 weeks. She is doing wonderful and doesn't miss a meal.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JaimieC</b></i>





Did you know she had CF before she was born? And were they able to see the blockage in the ultrasounds before birth?</end quote></div>



No we didn't know. I had dozens of ultrasounds because I was being watched for some pregnancy complications I had with my previous babies. Despite nearly weekly ultrasounds for the last 8 weeks of pregnancy, they never saw the MI. It took about 12 hours after birth before we became aware of what was going on.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JaimieC</b></i>





Did you know she had CF before she was born? And were they able to see the blockage in the ultrasounds before birth?</end quote>



No we didn't know. I had dozens of ultrasounds because I was being watched for some pregnancy complications I had with my previous babies. Despite nearly weekly ultrasounds for the last 8 weeks of pregnancy, they never saw the MI. It took about 12 hours after birth before we became aware of what was going on.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JaimieC</b></i>
<br />
<br />
<br />
<br />
<br />
<br />Did you know she had CF before she was born? And were they able to see the blockage in the ultrasounds before birth?</end quote>
<br />
<br />
<br />
<br />No we didn't know. I had dozens of ultrasounds because I was being watched for some pregnancy complications I had with my previous babies. Despite nearly weekly ultrasounds for the last 8 weeks of pregnancy, they never saw the MI. It took about 12 hours after birth before we became aware of what was going on.
 
J

JaimieC

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>EmmettsMom</b></i>

Hi Jaime,

How did you find out that your baby will be born w/MI? I'm curious b/c I'm due in January and our specialist told me that there is no way he will be able to tell if this baby will be born w/MI. My son w/CF was born w/o MI. I personally opted not to have an amnio, so I won't know for sure until birth if baby#2 even has CF. Thanks in advance for your advice.</end quote></div>

We did the CVS testing at 12 wks, so we know that she has CF. At the anatomy scan at 20 wks she had an echogenic bowel. We have been closely monitored since then with ultrasounds every couple of weeks. At 28 wks, her bowel was really dilated. And it continues to dilate. The specialists at Maternal Fetal Medicine are pretty sure it is due to MI. There is always a chance she won't have it, but they are pretty sure about it. They even used the whole...if it looks like a duck, walks like a duck analogy.
 
J

JaimieC

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>EmmettsMom</b></i>

Hi Jaime,

How did you find out that your baby will be born w/MI? I'm curious b/c I'm due in January and our specialist told me that there is no way he will be able to tell if this baby will be born w/MI. My son w/CF was born w/o MI. I personally opted not to have an amnio, so I won't know for sure until birth if baby#2 even has CF. Thanks in advance for your advice.</end quote>

We did the CVS testing at 12 wks, so we know that she has CF. At the anatomy scan at 20 wks she had an echogenic bowel. We have been closely monitored since then with ultrasounds every couple of weeks. At 28 wks, her bowel was really dilated. And it continues to dilate. The specialists at Maternal Fetal Medicine are pretty sure it is due to MI. There is always a chance she won't have it, but they are pretty sure about it. They even used the whole...if it looks like a duck, walks like a duck analogy.
 
J

JaimieC

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>EmmettsMom</b></i>
<br />
<br />Hi Jaime,
<br />
<br />How did you find out that your baby will be born w/MI? I'm curious b/c I'm due in January and our specialist told me that there is no way he will be able to tell if this baby will be born w/MI. My son w/CF was born w/o MI. I personally opted not to have an amnio, so I won't know for sure until birth if baby#2 even has CF. Thanks in advance for your advice.</end quote>
<br />
<br />We did the CVS testing at 12 wks, so we know that she has CF. At the anatomy scan at 20 wks she had an echogenic bowel. We have been closely monitored since then with ultrasounds every couple of weeks. At 28 wks, her bowel was really dilated. And it continues to dilate. The specialists at Maternal Fetal Medicine are pretty sure it is due to MI. There is always a chance she won't have it, but they are pretty sure about it. They even used the whole...if it looks like a duck, walks like a duck analogy.
 
L

LisaGreene

New member
Hi Jaime,
Welcome to the site- glad you found us. My son (now 11)had MI at birth and was in the hospital for almost 3 weeks. We had no idea about it or even knew what CF was so it was quite the surprise. He had surgery right away but it took awhile for the bowel to begin working properly.

He is doing very well now and hasn't had any real complications (yet at least) from it. He does fine with enzymes and is a very happy little boy (or shall I say, young man. He's growing up!). Best wishes to you- keep us posted on how things go.
Hugs and Hope! Lisa
 
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