Medicare part B picks up only 80%, if you have supplemental insurance (like I do) then they pick up the remaining 20% which is a godsend. Oh, and Colistin isn't covered under part B, I have part D insurance that pays for that with a $6 a month co-pay. Trust me, I shopped around before settling on a part D insurance that would cover at least generics through the infamous doughnut hole. Colistin fortunately does come in generic and is covered....my part D insurance pays 1300 a month for that stuff, I am so glad for that coverage!
Yes, it sucks sideways that those who are on medicare and who can't afford to pay for CAyston miss out on a potentially great treatment until insurance changes. I think that CAyston will eventually be covered as it is a CF specific drug, like TOBI (I know docs use it in other patient populations, such as those with idopathic bronchiectasis, but it is the CF diagnosis is why medicare is picking it up with me) . Fingers crossed as my options are quickly running out as far as treating my bugs go.
Hope this helps...
Jenn