Hello! I had an account here years ago but could not remember my user name so I re-signed up. I'm 34 with cf and have been on SSDI for 2 years now. I'm eligible for Medicare Sept 1st. Unfortunately I'm sick right now and will probably end up in the hospital and on IVs. I called my home infusion company and they said it's dicey to get iv antibiotics covered. Awesome! 
I'm in Texas currently (we're thinking of moving to CO) and I have ONE supplemental plan option. Not that it would help cover the costs of the ivs because it wouldn't. It's also VERY expensive. $367 a month. Aetna. Plus I will start having $109 deducted from my SSDI for Traditional Medicare (Part A & B). Plus I have to purchase a prescription plan (part D) that looks like it will cost $70-99. I have called Compass, talked to two local medicare reps and NO ONE knows a good PDP plan that's affordable. Compass actually sent me the WRONG info and was very insulting to me about the fact that I was anticipating a hospital visit. Ariel said, "You can't anticipate a hospital visit, most cfers are on Kalydeco or Orkambi and have 90% lung function and don't go to the hospital much." UMMMMMM she needs some training on CF and sensitivity. I have a nonsense mutation and am not eligible for any of that! You still have a huge copay to pay before the max amount is met. Medicare is looking less attractive than my horrible ACA independent plan. I don't want a managed care plan because they are basically HMOs and limit your Dr's. I already haven't been able to see my Endo, ENT, GI, and liver Dr. bc of my current HMO plan. So I'm thinking I'll have to stay on straight Medicare and be responsible for the 20% in the hospital. Make payment plans. We just simply cannot afford the supplemental AND everything else. I've also been told my out of pocket prescription costs are going to be high even with a part D plan. Just freaking fabulous! So........that was long winded but..does anyone know of a Medicare prescription plan that has decent copays for home iv infusions? I can't really go to an infusion center bc I'm on continuous 24-7 zosyn. I am usually on it for 3 weeks now. I cannot spend that much time in the hospital....I have a 2 year old son at home. I realize I am going to have to pay for the supplies out of pocket. Like flushes, needles, and gloves. I work for a DME company part time in billing (how I have some medicare knowledge) and I can get the supplies from them. Just not the iv antibiotics. My Dr. usually admits me to the hospital for a few days and then I go home on IVs for the remainder.
I'm in Texas currently (we're thinking of moving to CO) and I have ONE supplemental plan option. Not that it would help cover the costs of the ivs because it wouldn't. It's also VERY expensive. $367 a month. Aetna. Plus I will start having $109 deducted from my SSDI for Traditional Medicare (Part A & B). Plus I have to purchase a prescription plan (part D) that looks like it will cost $70-99. I have called Compass, talked to two local medicare reps and NO ONE knows a good PDP plan that's affordable. Compass actually sent me the WRONG info and was very insulting to me about the fact that I was anticipating a hospital visit. Ariel said, "You can't anticipate a hospital visit, most cfers are on Kalydeco or Orkambi and have 90% lung function and don't go to the hospital much." UMMMMMM she needs some training on CF and sensitivity. I have a nonsense mutation and am not eligible for any of that! You still have a huge copay to pay before the max amount is met. Medicare is looking less attractive than my horrible ACA independent plan. I don't want a managed care plan because they are basically HMOs and limit your Dr's. I already haven't been able to see my Endo, ENT, GI, and liver Dr. bc of my current HMO plan. So I'm thinking I'll have to stay on straight Medicare and be responsible for the 20% in the hospital. Make payment plans. We just simply cannot afford the supplemental AND everything else. I've also been told my out of pocket prescription costs are going to be high even with a part D plan. Just freaking fabulous! So........that was long winded but..does anyone know of a Medicare prescription plan that has decent copays for home iv infusions? I can't really go to an infusion center bc I'm on continuous 24-7 zosyn. I am usually on it for 3 weeks now. I cannot spend that much time in the hospital....I have a 2 year old son at home. I realize I am going to have to pay for the supplies out of pocket. Like flushes, needles, and gloves. I work for a DME company part time in billing (how I have some medicare knowledge) and I can get the supplies from them. Just not the iv antibiotics. My Dr. usually admits me to the hospital for a few days and then I go home on IVs for the remainder.