Okay, so my husband is getting out of the Army, I have had Tricare for the last ten years and I know nothing of regular insurance....I have Medicare Part A and am Part B eligible. My questions are as follows:
1. Can someone tell me how Medicare Part B works in terms of seeing CF docs? I will be living in the Dallas, Texas area.
2. What is Medicare Part D and do I need it?
3. Are there additional coverage programs I would be eligible for that would help and if anyone can tell me about those that would be helpful.
4. I have heard some pretty disparaging things about Medicare coverage for Kalydeco, I have two copies of the Delta F508 and I was hoping to get on it next year when the FDA approves the VX-809, does anyone have any experience getting Medicare to cover this drug in Texas? I have found forms online that discuss how Kalydeco is covered for CF folks in Texas but it's all so confusing to me.
5. Can anyone give me a rough estimate of copays and deductibles? I am hospitalized 1-2 times per year, I have a port and require monthly port access for flushing, 1-4 ER visits per year and take Zenpep, Pulmozyme, Xopenex, Nexium, Plaquinel, Buspar, TOBI and Cayston (every other month alternating).
I know it's a lot of questions but I figured here would be the best place to ask. I am very scared about us getting out and I know my husband will have some type of civilian health insurance plan through his new job but I am just trying to cover all our bases and see if I should go ahead and enroll in Medicare Part B before the enrollment period is up in December.
1. Can someone tell me how Medicare Part B works in terms of seeing CF docs? I will be living in the Dallas, Texas area.
2. What is Medicare Part D and do I need it?
3. Are there additional coverage programs I would be eligible for that would help and if anyone can tell me about those that would be helpful.
4. I have heard some pretty disparaging things about Medicare coverage for Kalydeco, I have two copies of the Delta F508 and I was hoping to get on it next year when the FDA approves the VX-809, does anyone have any experience getting Medicare to cover this drug in Texas? I have found forms online that discuss how Kalydeco is covered for CF folks in Texas but it's all so confusing to me.
5. Can anyone give me a rough estimate of copays and deductibles? I am hospitalized 1-2 times per year, I have a port and require monthly port access for flushing, 1-4 ER visits per year and take Zenpep, Pulmozyme, Xopenex, Nexium, Plaquinel, Buspar, TOBI and Cayston (every other month alternating).
I know it's a lot of questions but I figured here would be the best place to ask. I am very scared about us getting out and I know my husband will have some type of civilian health insurance plan through his new job but I am just trying to cover all our bases and see if I should go ahead and enroll in Medicare Part B before the enrollment period is up in December.