Meeting new people

M

Mommafirst

Guest
Rebecca,

I've struggled a little with this. Finding the right time to bring up CF always feels odd. You don't want to create awkwardness unnecessarily too soon when you meet someone, but then if you wait to long it seems like you've kept this big secret or something. Bleh!!! I guess since Maggie is so outgoing, you probably wind up having her share her story. Perhaps its not as awkward when it comes non-challantly from a 4 and a half year olds mouth.

Just wanted you to know I think about this too. I'm not all that stealthy when it comes to enzyme distribution yet. I have to open each capsule and pour it into Alyssa mouth, so when we are in a restaurant I know there have been lots of wait staff wondering. But what do I care what they are thinking?
 
M

Mommafirst

Guest
Rebecca,

I've struggled a little with this. Finding the right time to bring up CF always feels odd. You don't want to create awkwardness unnecessarily too soon when you meet someone, but then if you wait to long it seems like you've kept this big secret or something. Bleh!!! I guess since Maggie is so outgoing, you probably wind up having her share her story. Perhaps its not as awkward when it comes non-challantly from a 4 and a half year olds mouth.

Just wanted you to know I think about this too. I'm not all that stealthy when it comes to enzyme distribution yet. I have to open each capsule and pour it into Alyssa mouth, so when we are in a restaurant I know there have been lots of wait staff wondering. But what do I care what they are thinking?
 
M

Mommafirst

Guest
Rebecca,

I've struggled a little with this. Finding the right time to bring up CF always feels odd. You don't want to create awkwardness unnecessarily too soon when you meet someone, but then if you wait to long it seems like you've kept this big secret or something. Bleh!!! I guess since Maggie is so outgoing, you probably wind up having her share her story. Perhaps its not as awkward when it comes non-challantly from a 4 and a half year olds mouth.

Just wanted you to know I think about this too. I'm not all that stealthy when it comes to enzyme distribution yet. I have to open each capsule and pour it into Alyssa mouth, so when we are in a restaurant I know there have been lots of wait staff wondering. But what do I care what they are thinking?
 
M

Mommafirst

Guest
Rebecca,

I've struggled a little with this. Finding the right time to bring up CF always feels odd. You don't want to create awkwardness unnecessarily too soon when you meet someone, but then if you wait to long it seems like you've kept this big secret or something. Bleh!!! I guess since Maggie is so outgoing, you probably wind up having her share her story. Perhaps its not as awkward when it comes non-challantly from a 4 and a half year olds mouth.

Just wanted you to know I think about this too. I'm not all that stealthy when it comes to enzyme distribution yet. I have to open each capsule and pour it into Alyssa mouth, so when we are in a restaurant I know there have been lots of wait staff wondering. But what do I care what they are thinking?
 
M

Mommafirst

Guest
Rebecca,

I've struggled a little with this. Finding the right time to bring up CF always feels odd. You don't want to create awkwardness unnecessarily too soon when you meet someone, but then if you wait to long it seems like you've kept this big secret or something. Bleh!!! I guess since Maggie is so outgoing, you probably wind up having her share her story. Perhaps its not as awkward when it comes non-challantly from a 4 and a half year olds mouth.

Just wanted you to know I think about this too. I'm not all that stealthy when it comes to enzyme distribution yet. I have to open each capsule and pour it into Alyssa mouth, so when we are in a restaurant I know there have been lots of wait staff wondering. But what do I care what they are thinking?
 
U

usedtobeinca

Guest
I recently struggled with telling my new (4mo at current job) co-workers. A few know but the majority do not. It's tough as I feel that they don't really know who I am if they don't know about Thomas' CF, but I don't want to seem that I'm fishing for sympathy either if I offer it all up-front.

If you don't say anything, then the uninformed comments come rolling in - such as the recent BBQ we missed because it's at Thomas' evening routine time. When explaining that we'd had to miss I was interrupted with "...other people with babies were there..." I was then faced with 1) a long explanation of the what/why of the routine/CF and that we didn't feel like being 'on display' at the BBQ with the nebulizer going on in some back room, then needing to explain the sitch to possibly everyone at the party - or 2) just explaining that we'd try to make the next one.

Ashamedly I chose the latter. I imagine it'll get easier over time. It's funny because in public we're totally open with the enzymes, etc.
 
U

usedtobeinca

Guest
I recently struggled with telling my new (4mo at current job) co-workers. A few know but the majority do not. It's tough as I feel that they don't really know who I am if they don't know about Thomas' CF, but I don't want to seem that I'm fishing for sympathy either if I offer it all up-front.

If you don't say anything, then the uninformed comments come rolling in - such as the recent BBQ we missed because it's at Thomas' evening routine time. When explaining that we'd had to miss I was interrupted with "...other people with babies were there..." I was then faced with 1) a long explanation of the what/why of the routine/CF and that we didn't feel like being 'on display' at the BBQ with the nebulizer going on in some back room, then needing to explain the sitch to possibly everyone at the party - or 2) just explaining that we'd try to make the next one.

Ashamedly I chose the latter. I imagine it'll get easier over time. It's funny because in public we're totally open with the enzymes, etc.
 
U

usedtobeinca

Guest
I recently struggled with telling my new (4mo at current job) co-workers. A few know but the majority do not. It's tough as I feel that they don't really know who I am if they don't know about Thomas' CF, but I don't want to seem that I'm fishing for sympathy either if I offer it all up-front.

If you don't say anything, then the uninformed comments come rolling in - such as the recent BBQ we missed because it's at Thomas' evening routine time. When explaining that we'd had to miss I was interrupted with "...other people with babies were there..." I was then faced with 1) a long explanation of the what/why of the routine/CF and that we didn't feel like being 'on display' at the BBQ with the nebulizer going on in some back room, then needing to explain the sitch to possibly everyone at the party - or 2) just explaining that we'd try to make the next one.

Ashamedly I chose the latter. I imagine it'll get easier over time. It's funny because in public we're totally open with the enzymes, etc.
 
U

usedtobeinca

Guest
I recently struggled with telling my new (4mo at current job) co-workers. A few know but the majority do not. It's tough as I feel that they don't really know who I am if they don't know about Thomas' CF, but I don't want to seem that I'm fishing for sympathy either if I offer it all up-front.

If you don't say anything, then the uninformed comments come rolling in - such as the recent BBQ we missed because it's at Thomas' evening routine time. When explaining that we'd had to miss I was interrupted with "...other people with babies were there..." I was then faced with 1) a long explanation of the what/why of the routine/CF and that we didn't feel like being 'on display' at the BBQ with the nebulizer going on in some back room, then needing to explain the sitch to possibly everyone at the party - or 2) just explaining that we'd try to make the next one.

Ashamedly I chose the latter. I imagine it'll get easier over time. It's funny because in public we're totally open with the enzymes, etc.
 
U

usedtobeinca

Guest
I recently struggled with telling my new (4mo at current job) co-workers. A few know but the majority do not. It's tough as I feel that they don't really know who I am if they don't know about Thomas' CF, but I don't want to seem that I'm fishing for sympathy either if I offer it all up-front.

If you don't say anything, then the uninformed comments come rolling in - such as the recent BBQ we missed because it's at Thomas' evening routine time. When explaining that we'd had to miss I was interrupted with "...other people with babies were there..." I was then faced with 1) a long explanation of the what/why of the routine/CF and that we didn't feel like being 'on display' at the BBQ with the nebulizer going on in some back room, then needing to explain the sitch to possibly everyone at the party - or 2) just explaining that we'd try to make the next one.

Ashamedly I chose the latter. I imagine it'll get easier over time. It's funny because in public we're totally open with the enzymes, etc.
 
R

Ratatosk

Administrator
Staff member
I usually just hand DS his enzymes, most people don't even notice. With treatments, if we know there's something going on early in the evening and it's a weekend, then we'll start early. We had a few graduations this past spring and right before we hit the road with did his vest and nebs. Oh and last winter he was invited to a birthday party for an hour and a half, so I gave him two enzymes -- worked out great 'cuz they had cake and then had gymnastics for an hour. When I picked him up, his classmate's mom said "we didn't have enzymes, but he didn't eat much cake". I didn't even KNOW they knew.

Last weekend when we went to meet the transporter, who brought our new dog back, at her house. She noticed my bracelets and asked what they were for and I said cystic fibrosis. She said, that's nice you support a cause. Meanwhile Max was running around their yard like a maniac, demanding to go in and find toys, I just decided it was the time or the place to say he had it. I'm sure I would've gotten the sad pity look.
 
R

Ratatosk

Administrator
Staff member
I usually just hand DS his enzymes, most people don't even notice. With treatments, if we know there's something going on early in the evening and it's a weekend, then we'll start early. We had a few graduations this past spring and right before we hit the road with did his vest and nebs. Oh and last winter he was invited to a birthday party for an hour and a half, so I gave him two enzymes -- worked out great 'cuz they had cake and then had gymnastics for an hour. When I picked him up, his classmate's mom said "we didn't have enzymes, but he didn't eat much cake". I didn't even KNOW they knew.

Last weekend when we went to meet the transporter, who brought our new dog back, at her house. She noticed my bracelets and asked what they were for and I said cystic fibrosis. She said, that's nice you support a cause. Meanwhile Max was running around their yard like a maniac, demanding to go in and find toys, I just decided it was the time or the place to say he had it. I'm sure I would've gotten the sad pity look.
 
R

Ratatosk

Administrator
Staff member
I usually just hand DS his enzymes, most people don't even notice. With treatments, if we know there's something going on early in the evening and it's a weekend, then we'll start early. We had a few graduations this past spring and right before we hit the road with did his vest and nebs. Oh and last winter he was invited to a birthday party for an hour and a half, so I gave him two enzymes -- worked out great 'cuz they had cake and then had gymnastics for an hour. When I picked him up, his classmate's mom said "we didn't have enzymes, but he didn't eat much cake". I didn't even KNOW they knew.

Last weekend when we went to meet the transporter, who brought our new dog back, at her house. She noticed my bracelets and asked what they were for and I said cystic fibrosis. She said, that's nice you support a cause. Meanwhile Max was running around their yard like a maniac, demanding to go in and find toys, I just decided it was the time or the place to say he had it. I'm sure I would've gotten the sad pity look.
 
R

Ratatosk

Administrator
Staff member
I usually just hand DS his enzymes, most people don't even notice. With treatments, if we know there's something going on early in the evening and it's a weekend, then we'll start early. We had a few graduations this past spring and right before we hit the road with did his vest and nebs. Oh and last winter he was invited to a birthday party for an hour and a half, so I gave him two enzymes -- worked out great 'cuz they had cake and then had gymnastics for an hour. When I picked him up, his classmate's mom said "we didn't have enzymes, but he didn't eat much cake". I didn't even KNOW they knew.

Last weekend when we went to meet the transporter, who brought our new dog back, at her house. She noticed my bracelets and asked what they were for and I said cystic fibrosis. She said, that's nice you support a cause. Meanwhile Max was running around their yard like a maniac, demanding to go in and find toys, I just decided it was the time or the place to say he had it. I'm sure I would've gotten the sad pity look.
 
R

Ratatosk

Administrator
Staff member
I usually just hand DS his enzymes, most people don't even notice. With treatments, if we know there's something going on early in the evening and it's a weekend, then we'll start early. We had a few graduations this past spring and right before we hit the road with did his vest and nebs. Oh and last winter he was invited to a birthday party for an hour and a half, so I gave him two enzymes -- worked out great 'cuz they had cake and then had gymnastics for an hour. When I picked him up, his classmate's mom said "we didn't have enzymes, but he didn't eat much cake". I didn't even KNOW they knew.

Last weekend when we went to meet the transporter, who brought our new dog back, at her house. She noticed my bracelets and asked what they were for and I said cystic fibrosis. She said, that's nice you support a cause. Meanwhile Max was running around their yard like a maniac, demanding to go in and find toys, I just decided it was the time or the place to say he had it. I'm sure I would've gotten the sad pity look.
 
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