I've never had a button, so I'm speaking from my own thoughts... Why don't you give it a try without that button? If it's out already and it requires surgery to get in again, you might as well wait a few weeks/months and see if she can do without it? You can always put it back in... That's just my personal opinion. I've always been against artificial stuff (and feeding) as much as I could avoid it!
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Mickey button popped out!
- Thread starter taylorsmommy
- Start date
Incomudrox
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Tisha</b></i>
I've never had a button, so I'm speaking from my own thoughts... Why don't you give it a try without that button? If it's out already and it requires surgery to get in again, you might as well wait a few weeks/months and see if she can do without it? You can always put it back in... That's just my personal opinion. I've always been against artificial stuff (and feeding) as much as I could avoid it!</end quote></div><br><br>If the child was to the point where she needed one, chances of doing well without it are slim. Why waist time and FEV1, without it I bet the chance for infection and hospitalization goes up. It was put there for a reason. If you do it earlier the surgery may not be as bad... not have to start over with the G-Tube again maybe able to put the button in. What the OP needs to ask her self is, does she want to be the parent of her daughter or her friend? Love is tough, but children need tough love or they end up being 20 and on the verge of a lung transplant.<br><br>Because it starts with this, next it's something else until they get sick enough end up back up on the hospital month after month.<br>
I've never had a button, so I'm speaking from my own thoughts... Why don't you give it a try without that button? If it's out already and it requires surgery to get in again, you might as well wait a few weeks/months and see if she can do without it? You can always put it back in... That's just my personal opinion. I've always been against artificial stuff (and feeding) as much as I could avoid it!</end quote></div><br><br>If the child was to the point where she needed one, chances of doing well without it are slim. Why waist time and FEV1, without it I bet the chance for infection and hospitalization goes up. It was put there for a reason. If you do it earlier the surgery may not be as bad... not have to start over with the G-Tube again maybe able to put the button in. What the OP needs to ask her self is, does she want to be the parent of her daughter or her friend? Love is tough, but children need tough love or they end up being 20 and on the verge of a lung transplant.<br><br>Because it starts with this, next it's something else until they get sick enough end up back up on the hospital month after month.<br>
Incomudrox
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Tisha</b></i>
I've never had a button, so I'm speaking from my own thoughts... Why don't you give it a try without that button? If it's out already and it requires surgery to get in again, you might as well wait a few weeks/months and see if she can do without it? You can always put it back in... That's just my personal opinion. I've always been against artificial stuff (and feeding) as much as I could avoid it!</end quote><br><br>If the child was to the point where she needed one, chances of doing well without it are slim. Why waist time and FEV1, without it I bet the chance for infection and hospitalization goes up. It was put there for a reason. If you do it earlier the surgery may not be as bad... not have to start over with the G-Tube again maybe able to put the button in. What the OP needs to ask her self is, does she want to be the parent of her daughter or her friend? Love is tough, but children need tough love or they end up being 20 and on the verge of a lung transplant.<br><br>Because it starts with this, next it's something else until they get sick enough end up back up on the hospital month after month.<br>
I've never had a button, so I'm speaking from my own thoughts... Why don't you give it a try without that button? If it's out already and it requires surgery to get in again, you might as well wait a few weeks/months and see if she can do without it? You can always put it back in... That's just my personal opinion. I've always been against artificial stuff (and feeding) as much as I could avoid it!</end quote><br><br>If the child was to the point where she needed one, chances of doing well without it are slim. Why waist time and FEV1, without it I bet the chance for infection and hospitalization goes up. It was put there for a reason. If you do it earlier the surgery may not be as bad... not have to start over with the G-Tube again maybe able to put the button in. What the OP needs to ask her self is, does she want to be the parent of her daughter or her friend? Love is tough, but children need tough love or they end up being 20 and on the verge of a lung transplant.<br><br>Because it starts with this, next it's something else until they get sick enough end up back up on the hospital month after month.<br>
Incomudrox
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Tisha</b></i>
I've never had a button, so I'm speaking from my own thoughts... Why don't you give it a try without that button? If it's out already and it requires surgery to get in again, you might as well wait a few weeks/months and see if she can do without it? You can always put it back in... That's just my personal opinion. I've always been against artificial stuff (and feeding) as much as I could avoid it!</end quote><br><br>If the child was to the point where she needed one, chances of doing well without it are slim. Why waist time and FEV1, without it I bet the chance for infection and hospitalization goes up. It was put there for a reason. If you do it earlier the surgery may not be as bad... not have to start over with the G-Tube again maybe able to put the button in. What the OP needs to ask her self is, does she want to be the parent of her daughter or her friend? Love is tough, but children need tough love or they end up being 20 and on the verge of a lung transplant.<br><br>Because it starts with this, next it's something else until they get sick enough end up back up on the hospital month after month.<br>
I've never had a button, so I'm speaking from my own thoughts... Why don't you give it a try without that button? If it's out already and it requires surgery to get in again, you might as well wait a few weeks/months and see if she can do without it? You can always put it back in... That's just my personal opinion. I've always been against artificial stuff (and feeding) as much as I could avoid it!</end quote><br><br>If the child was to the point where she needed one, chances of doing well without it are slim. Why waist time and FEV1, without it I bet the chance for infection and hospitalization goes up. It was put there for a reason. If you do it earlier the surgery may not be as bad... not have to start over with the G-Tube again maybe able to put the button in. What the OP needs to ask her self is, does she want to be the parent of her daughter or her friend? Love is tough, but children need tough love or they end up being 20 and on the verge of a lung transplant.<br><br>Because it starts with this, next it's something else until they get sick enough end up back up on the hospital month after month.<br>
TestifyToLove
New member
Since it hasn't been mentioned, I will point out that there is an insurance problem with her just drinking the enteral formula. For nearly two years, Micah opted to drink his enteral formula instead of using his g-tube. It worked well and he gained weight that way. His doctors wanted us to keep his g-tube in place because they said the day would come when he would need it again. I was frustrated with them. However, I learned that as long as we coded the enteral formula for use with the g-tube, insurance would pay for it 100%. The minute we tried to code anything for oral feedings, insurance would not pay for it.
Right now, Micah takes 4 cans of Peptamin 1.5 via g-tube per day. He also takes 4 cans of Peptamin Junior orally. It is all coded for enteral feeding so that insurance will pay for it. He simply chooses to drink the Junior.
Right now, Micah takes 4 cans of Peptamin 1.5 via g-tube per day. He also takes 4 cans of Peptamin Junior orally. It is all coded for enteral feeding so that insurance will pay for it. He simply chooses to drink the Junior.
TestifyToLove
New member
Since it hasn't been mentioned, I will point out that there is an insurance problem with her just drinking the enteral formula. For nearly two years, Micah opted to drink his enteral formula instead of using his g-tube. It worked well and he gained weight that way. His doctors wanted us to keep his g-tube in place because they said the day would come when he would need it again. I was frustrated with them. However, I learned that as long as we coded the enteral formula for use with the g-tube, insurance would pay for it 100%. The minute we tried to code anything for oral feedings, insurance would not pay for it.
Right now, Micah takes 4 cans of Peptamin 1.5 via g-tube per day. He also takes 4 cans of Peptamin Junior orally. It is all coded for enteral feeding so that insurance will pay for it. He simply chooses to drink the Junior.
Right now, Micah takes 4 cans of Peptamin 1.5 via g-tube per day. He also takes 4 cans of Peptamin Junior orally. It is all coded for enteral feeding so that insurance will pay for it. He simply chooses to drink the Junior.
TestifyToLove
New member
Since it hasn't been mentioned, I will point out that there is an insurance problem with her just drinking the enteral formula. For nearly two years, Micah opted to drink his enteral formula instead of using his g-tube. It worked well and he gained weight that way. His doctors wanted us to keep his g-tube in place because they said the day would come when he would need it again. I was frustrated with them. However, I learned that as long as we coded the enteral formula for use with the g-tube, insurance would pay for it 100%. The minute we tried to code anything for oral feedings, insurance would not pay for it.
<br />
<br />Right now, Micah takes 4 cans of Peptamin 1.5 via g-tube per day. He also takes 4 cans of Peptamin Junior orally. It is all coded for enteral feeding so that insurance will pay for it. He simply chooses to drink the Junior.
<br />
<br />Right now, Micah takes 4 cans of Peptamin 1.5 via g-tube per day. He also takes 4 cans of Peptamin Junior orally. It is all coded for enteral feeding so that insurance will pay for it. He simply chooses to drink the Junior.
A
Allansarmy
Guest
We had a similar situation with my son but much worse. My son had just got his G-Tube put in and we were waiting a few weeks for his button. The GI doctor which I will not mention his name here left a 2 foot tube sticking out of my son's stomach (he was 9 at the time and my son is 15 now). My son looked pathetic as he could not even go outside with his friends as the tube hung well below his shirt. We tried tucking it in but my son just became depressed and just wanted to hide inside the house. The doctor kept putting our appt. off over and over until it was a month after his procedure to even put the button in. <br><br>One day, while my son was playing around in my office area, he swung the office chair around and ripped the tube and every thing out of his stomach. I panicked and quickly called his office. After 30 minutes he finally called me back. His reply "You must push it back in" ??!!? By this time my son thought I was trying to "kill him" his exact words as I am trying to push this small deflated balloon stick back into my son's stomach as my wife held his arms down. This lovely doctor failed to tell me that KY would have been an appropriate thing to use to slide it back into him and then go to Children's hospital ER. I pushed it in the best I could with him screaming and I taped it to him. <br><br>After the 1 1/2 hour trip to the hospital, we get to the ER and I explained what happened. I won't go into too much detail as it only frustrated me worse to see the nurses not take us seriously and made us wait for over 2 hours to see the GI doctor on call. <br><br>The whole time my son was telling me that he would "drink the Nutren 2.0 vanilla drinks all 3 cans" to avoid the tube. My son tried this before and we let him, he almost vomited the drink back up. He could not tolerate it. We tried making shakes out of them, we tried mixing other things in with it to make the taste more tolerable. But it just did not work. <br><br>To end on a good note for you, me and my wife opted to leave the tube in, the GI doctor on call at the ER was very good. She came in and within 2 minutes had the tube back in my son without him having surgery.<br><br>My son gained 25 pounds in 6 months after that. So much in fact that the dietician used his growth chart (with his name blacked out for HIPPA reasons) to show other parents how important a G-button is. <br><br>I totally understand that your daughter wants to feel normal and she wants to have a normal belly. She wants to feel that there is nothing there. But unfortunately you just can't trust your child to drink all of those cans during the day AND eat and drink other foods. This is an additional support for nutrition. She needs the extra calories especially before going through puberty. <br><br>Just my thoughts, keep it in for now.<br>
A
Allansarmy
Guest
We had a similar situation with my son but much worse. My son had just got his G-Tube put in and we were waiting a few weeks for his button. The GI doctor which I will not mention his name here left a 2 foot tube sticking out of my son's stomach (he was 9 at the time and my son is 15 now). My son looked pathetic as he could not even go outside with his friends as the tube hung well below his shirt. We tried tucking it in but my son just became depressed and just wanted to hide inside the house. The doctor kept putting our appt. off over and over until it was a month after his procedure to even put the button in. <br><br>One day, while my son was playing around in my office area, he swung the office chair around and ripped the tube and every thing out of his stomach. I panicked and quickly called his office. After 30 minutes he finally called me back. His reply "You must push it back in" ??!!? By this time my son thought I was trying to "kill him" his exact words as I am trying to push this small deflated balloon stick back into my son's stomach as my wife held his arms down. This lovely doctor failed to tell me that KY would have been an appropriate thing to use to slide it back into him and then go to Children's hospital ER. I pushed it in the best I could with him screaming and I taped it to him. <br><br>After the 1 1/2 hour trip to the hospital, we get to the ER and I explained what happened. I won't go into too much detail as it only frustrated me worse to see the nurses not take us seriously and made us wait for over 2 hours to see the GI doctor on call. <br><br>The whole time my son was telling me that he would "drink the Nutren 2.0 vanilla drinks all 3 cans" to avoid the tube. My son tried this before and we let him, he almost vomited the drink back up. He could not tolerate it. We tried making shakes out of them, we tried mixing other things in with it to make the taste more tolerable. But it just did not work. <br><br>To end on a good note for you, me and my wife opted to leave the tube in, the GI doctor on call at the ER was very good. She came in and within 2 minutes had the tube back in my son without him having surgery.<br><br>My son gained 25 pounds in 6 months after that. So much in fact that the dietician used his growth chart (with his name blacked out for HIPPA reasons) to show other parents how important a G-button is. <br><br>I totally understand that your daughter wants to feel normal and she wants to have a normal belly. She wants to feel that there is nothing there. But unfortunately you just can't trust your child to drink all of those cans during the day AND eat and drink other foods. This is an additional support for nutrition. She needs the extra calories especially before going through puberty. <br><br>Just my thoughts, keep it in for now.<br>
A
Allansarmy
Guest
We had a similar situation with my son but much worse. My son had just got his G-Tube put in and we were waiting a few weeks for his button. The GI doctor which I will not mention his name here left a 2 foot tube sticking out of my son's stomach (he was 9 at the time and my son is 15 now). My son looked pathetic as he could not even go outside with his friends as the tube hung well below his shirt. We tried tucking it in but my son just became depressed and just wanted to hide inside the house. The doctor kept putting our appt. off over and over until it was a month after his procedure to even put the button in. <br><br>One day, while my son was playing around in my office area, he swung the office chair around and ripped the tube and every thing out of his stomach. I panicked and quickly called his office. After 30 minutes he finally called me back. His reply "You must push it back in" ??!!? By this time my son thought I was trying to "kill him" his exact words as I am trying to push this small deflated balloon stick back into my son's stomach as my wife held his arms down. This lovely doctor failed to tell me that KY would have been an appropriate thing to use to slide it back into him and then go to Children's hospital ER. I pushed it in the best I could with him screaming and I taped it to him. <br><br>After the 1 1/2 hour trip to the hospital, we get to the ER and I explained what happened. I won't go into too much detail as it only frustrated me worse to see the nurses not take us seriously and made us wait for over 2 hours to see the GI doctor on call. <br><br>The whole time my son was telling me that he would "drink the Nutren 2.0 vanilla drinks all 3 cans" to avoid the tube. My son tried this before and we let him, he almost vomited the drink back up. He could not tolerate it. We tried making shakes out of them, we tried mixing other things in with it to make the taste more tolerable. But it just did not work. <br><br>To end on a good note for you, me and my wife opted to leave the tube in, the GI doctor on call at the ER was very good. She came in and within 2 minutes had the tube back in my son without him having surgery.<br><br>My son gained 25 pounds in 6 months after that. So much in fact that the dietician used his growth chart (with his name blacked out for HIPPA reasons) to show other parents how important a G-button is. <br><br>I totally understand that your daughter wants to feel normal and she wants to have a normal belly. She wants to feel that there is nothing there. But unfortunately you just can't trust your child to drink all of those cans during the day AND eat and drink other foods. This is an additional support for nutrition. She needs the extra calories especially before going through puberty. <br><br>Just my thoughts, keep it in for now.<br>