Micobacterium abscessus

[tbw18]

yes my son who is 18 has mycrobacterium abscesses he has had it for 2 years, we just finished iv amikican, cefoxtin, tygacil, for 6 weeks, we had gone for 9 weeks prior on iv and it again came back. he cant do these meds for long periods of time he becomes sick with c-diff which a bacterial infection from the meds they kill all the normal bacterial in the intestines, he has ringing in his ears while on amikican, so we usually stop between 6 and 9 weeks, I worry everyday that it could flare up again, he starts having low grade temps, and then he starts to cough up alot of junk, so we bascially know when we gotta do ivs again. just hang in there things seem bad but you can keep it bay for periods of time, just dont take steroids, the bug doesnt like them and it will really make it active. learned from experience on that one. just be there for them and let them know how much they are loved and it does seem to help alittle, I also pray every nite to please let stay away longer, there is no cure for this bug, it is resistant to so many antibiotics, so hang in there. I will be happy to chat with you at any time about it. tonight I will say a prayer for you to give you strength, love , and lots of faith.
_____________________________________________________________________
THE SUN RISES AND SETS IN THE EYES OF TBW18

 

[tbw18]

yes my son who is 18 has mycrobacterium abscesses he has had it for 2 years, we just finished iv amikican, cefoxtin, tygacil, for 6 weeks, we had gone for 9 weeks prior on iv and it again came back. he cant do these meds for long periods of time he becomes sick with c-diff which a bacterial infection from the meds they kill all the normal bacterial in the intestines, he has ringing in his ears while on amikican, so we usually stop between 6 and 9 weeks, I worry everyday that it could flare up again, he starts having low grade temps, and then he starts to cough up alot of junk, so we bascially know when we gotta do ivs again. just hang in there things seem bad but you can keep it bay for periods of time, just dont take steroids, the bug doesnt like them and it will really make it active. learned from experience on that one. just be there for them and let them know how much they are loved and it does seem to help alittle, I also pray every nite to please let stay away longer, there is no cure for this bug, it is resistant to so many antibiotics, so hang in there. I will be happy to chat with you at any time about it. tonight I will say a prayer for you to give you strength, love , and lots of faith.
_____________________________________________________________________
THE SUN RISES AND SETS IN THE EYES OF TBW18

 

[tbw18]

yes my son who is 18 has mycrobacterium abscesses he has had it for 2 years, we just finished iv amikican, cefoxtin, tygacil, for 6 weeks, we had gone for 9 weeks prior on iv and it again came back. he cant do these meds for long periods of time he becomes sick with c-diff which a bacterial infection from the meds they kill all the normal bacterial in the intestines, he has ringing in his ears while on amikican, so we usually stop between 6 and 9 weeks, I worry everyday that it could flare up again, he starts having low grade temps, and then he starts to cough up alot of junk, so we bascially know when we gotta do ivs again. just hang in there things seem bad but you can keep it bay for periods of time, just dont take steroids, the bug doesnt like them and it will really make it active. learned from experience on that one. just be there for them and let them know how much they are loved and it does seem to help alittle, I also pray every nite to please let stay away longer, there is no cure for this bug, it is resistant to so many antibiotics, so hang in there. I will be happy to chat with you at any time about it. tonight I will say a prayer for you to give you strength, love , and lots of faith.
_____________________________________________________________________
THE SUN RISES AND SETS IN THE EYES OF TBW18

 

[tbw18]

yes my son who is 18 has mycrobacterium abscesses he has had it for 2 years, we just finished iv amikican, cefoxtin, tygacil, for 6 weeks, we had gone for 9 weeks prior on iv and it again came back. he cant do these meds for long periods of time he becomes sick with c-diff which a bacterial infection from the meds they kill all the normal bacterial in the intestines, he has ringing in his ears while on amikican, so we usually stop between 6 and 9 weeks, I worry everyday that it could flare up again, he starts having low grade temps, and then he starts to cough up alot of junk, so we bascially know when we gotta do ivs again. just hang in there things seem bad but you can keep it bay for periods of time, just dont take steroids, the bug doesnt like them and it will really make it active. learned from experience on that one. just be there for them and let them know how much they are loved and it does seem to help alittle, I also pray every nite to please let stay away longer, there is no cure for this bug, it is resistant to so many antibiotics, so hang in there. I will be happy to chat with you at any time about it. tonight I will say a prayer for you to give you strength, love , and lots of faith.
_____________________________________________________________________
THE SUN RISES AND SETS IN THE EYES OF TBW18

 

[wildchild]

Maybe this is an ignorant thing to ask, but does the microbacterium have an effect on the CF? I know Patrick was coughing way more than normal, had a fever, and was just generally achey before he was diagnosed with the M.Abscessus... is it just another strike against him? Or does it weaken the system and cause more CF flair-ups? Am I making any sense? This is all still kind of new to me...

Thank you, by the way, for your information and support. This forum is just what I need.

REA

 

[wildchild]

Maybe this is an ignorant thing to ask, but does the microbacterium have an effect on the CF? I know Patrick was coughing way more than normal, had a fever, and was just generally achey before he was diagnosed with the M.Abscessus... is it just another strike against him? Or does it weaken the system and cause more CF flair-ups? Am I making any sense? This is all still kind of new to me...

Thank you, by the way, for your information and support. This forum is just what I need.

REA

 

[wildchild]

Maybe this is an ignorant thing to ask, but does the microbacterium have an effect on the CF? I know Patrick was coughing way more than normal, had a fever, and was just generally achey before he was diagnosed with the M.Abscessus... is it just another strike against him? Or does it weaken the system and cause more CF flair-ups? Am I making any sense? This is all still kind of new to me...

Thank you, by the way, for your information and support. This forum is just what I need.

REA

 

[wildchild]

Maybe this is an ignorant thing to ask, but does the microbacterium have an effect on the CF? I know Patrick was coughing way more than normal, had a fever, and was just generally achey before he was diagnosed with the M.Abscessus... is it just another strike against him? Or does it weaken the system and cause more CF flair-ups? Am I making any sense? This is all still kind of new to me...

Thank you, by the way, for your information and support. This forum is just what I need.

REA

 

[wildchild]

Maybe this is an ignorant thing to ask, but does the microbacterium have an effect on the CF? I know Patrick was coughing way more than normal, had a fever, and was just generally achey before he was diagnosed with the M.Abscessus... is it just another strike against him? Or does it weaken the system and cause more CF flair-ups? Am I making any sense? This is all still kind of new to me...

Thank you, by the way, for your information and support. This forum is just what I need.

REA

 

[wildchild]

Maybe this is an ignorant thing to ask, but does the microbacterium have an effect on the CF? I know Patrick was coughing way more than normal, had a fever, and was just generally achey before he was diagnosed with the M.Abscessus... is it just another strike against him? Or does it weaken the system and cause more CF flair-ups? Am I making any sense? This is all still kind of new to me...

Thank you, by the way, for your information and support. This forum is just what I need.

REA

 

[Jane]

Its all so complicated, I know. CF itself has so much to figure out, then throw the other stuff on top of it <img src="i/expressions/face-icon-small-confused.gif" border="0">! I'm not an expert by any means and I only have our experience to go by.

Mycobacterial infections have different but similar symptoms to CF. They do cause increased cough, lower PFTs, fever, fatigue, but the damage they do to the lungs are somewhat different. In our case they created finger-like nodules in the lungs similar to TB. Our doctors told us that the decline my boys experienced in their health was not typical to CF and was attributed to their mycobacteria.


Here's an article that Doctors at our hospital wrote that might help a little:
<a target=_blank class=ftalternatingbarlinklarge href="http://ajrccm.atsjournals.org/cgi/content/full/161/2/641">http://ajrccm.atsjournals.org/...content/full/161/2/641</a>

 

[Jane]

Its all so complicated, I know. CF itself has so much to figure out, then throw the other stuff on top of it <img src="i/expressions/face-icon-small-confused.gif" border="0">! I'm not an expert by any means and I only have our experience to go by.

Mycobacterial infections have different but similar symptoms to CF. They do cause increased cough, lower PFTs, fever, fatigue, but the damage they do to the lungs are somewhat different. In our case they created finger-like nodules in the lungs similar to TB. Our doctors told us that the decline my boys experienced in their health was not typical to CF and was attributed to their mycobacteria.


Here's an article that Doctors at our hospital wrote that might help a little:
<a target=_blank class=ftalternatingbarlinklarge href="http://ajrccm.atsjournals.org/cgi/content/full/161/2/641">http://ajrccm.atsjournals.org/...content/full/161/2/641</a>

 

[Jane]

Its all so complicated, I know. CF itself has so much to figure out, then throw the other stuff on top of it <img src="i/expressions/face-icon-small-confused.gif" border="0">! I'm not an expert by any means and I only have our experience to go by.

Mycobacterial infections have different but similar symptoms to CF. They do cause increased cough, lower PFTs, fever, fatigue, but the damage they do to the lungs are somewhat different. In our case they created finger-like nodules in the lungs similar to TB. Our doctors told us that the decline my boys experienced in their health was not typical to CF and was attributed to their mycobacteria.


Here's an article that Doctors at our hospital wrote that might help a little:
<a target=_blank class=ftalternatingbarlinklarge href="http://ajrccm.atsjournals.org/cgi/content/full/161/2/641">http://ajrccm.atsjournals.org/...content/full/161/2/641</a>

 

[Jane]

Its all so complicated, I know. CF itself has so much to figure out, then throw the other stuff on top of it <img src="i/expressions/face-icon-small-confused.gif" border="0">! I'm not an expert by any means and I only have our experience to go by.

Mycobacterial infections have different but similar symptoms to CF. They do cause increased cough, lower PFTs, fever, fatigue, but the damage they do to the lungs are somewhat different. In our case they created finger-like nodules in the lungs similar to TB. Our doctors told us that the decline my boys experienced in their health was not typical to CF and was attributed to their mycobacteria.


Here's an article that Doctors at our hospital wrote that might help a little:
<a target=_blank class=ftalternatingbarlinklarge href="http://ajrccm.atsjournals.org/cgi/content/full/161/2/641">http://ajrccm.atsjournals.org/...content/full/161/2/641</a>

 

[Jane]

Its all so complicated, I know. CF itself has so much to figure out, then throw the other stuff on top of it <img src="i/expressions/face-icon-small-confused.gif" border="0">! I'm not an expert by any means and I only have our experience to go by.

Mycobacterial infections have different but similar symptoms to CF. They do cause increased cough, lower PFTs, fever, fatigue, but the damage they do to the lungs are somewhat different. In our case they created finger-like nodules in the lungs similar to TB. Our doctors told us that the decline my boys experienced in their health was not typical to CF and was attributed to their mycobacteria.


Here's an article that Doctors at our hospital wrote that might help a little:
<a target=_blank class=ftalternatingbarlinklarge href="http://ajrccm.atsjournals.org/cgi/content/full/161/2/641">http://ajrccm.atsjournals.org/...content/full/161/2/641</a>

 

[Jane]

Its all so complicated, I know. CF itself has so much to figure out, then throw the other stuff on top of it <img src="i/expressions/face-icon-small-confused.gif" border="0">! I'm not an expert by any means and I only have our experience to go by.

Mycobacterial infections have different but similar symptoms to CF. They do cause increased cough, lower PFTs, fever, fatigue, but the damage they do to the lungs are somewhat different. In our case they created finger-like nodules in the lungs similar to TB. Our doctors told us that the decline my boys experienced in their health was not typical to CF and was attributed to their mycobacteria.


Here's an article that Doctors at our hospital wrote that might help a little:
<a target=_blank class=ftalternatingbarlinklarge href="http://ajrccm.atsjournals.org/cgi/content/full/161/2/641">http://ajrccm.atsjournals.org/...content/full/161/2/641</a>

 

[tbw18]

the mycrobacterium abscessus causes fever, lower PFTS, fatigue, and my son also lost his appeitite which he then began to loose weight, his cough was very deep and seemed to take alot out of him, he coughed so hard sometimes his face was so red when he finished, it really takes alot out of him. we have also have aspergillus and the two cant be treated with the same drug. The drugs you use for one makes the other come back quick, we learned that from experience. No I am no expert on it either, we are just mothers trying to help our children get through this as best we can. I listen to the doc and do exactly as we are told, we never miss our meds no matter what when his bug is active, or when it is not for that matter. my son is 18, he just graduated HS, we went through prom with ivs, it has been tough and now we have a break so we try and be as normal as we can. I hope we can get through the summer without ivs.
-------------------------------------------------------------------------------------
jane I think your just super with your boys!!!
-------------------------------------------------------------------------------------
THE SUN RISES AND SETS IN THE EYES OF TBW18

 

[tbw18]

the mycrobacterium abscessus causes fever, lower PFTS, fatigue, and my son also lost his appeitite which he then began to loose weight, his cough was very deep and seemed to take alot out of him, he coughed so hard sometimes his face was so red when he finished, it really takes alot out of him. we have also have aspergillus and the two cant be treated with the same drug. The drugs you use for one makes the other come back quick, we learned that from experience. No I am no expert on it either, we are just mothers trying to help our children get through this as best we can. I listen to the doc and do exactly as we are told, we never miss our meds no matter what when his bug is active, or when it is not for that matter. my son is 18, he just graduated HS, we went through prom with ivs, it has been tough and now we have a break so we try and be as normal as we can. I hope we can get through the summer without ivs.
-------------------------------------------------------------------------------------
jane I think your just super with your boys!!!
-------------------------------------------------------------------------------------
THE SUN RISES AND SETS IN THE EYES OF TBW18

 

[tbw18]

the mycrobacterium abscessus causes fever, lower PFTS, fatigue, and my son also lost his appeitite which he then began to loose weight, his cough was very deep and seemed to take alot out of him, he coughed so hard sometimes his face was so red when he finished, it really takes alot out of him. we have also have aspergillus and the two cant be treated with the same drug. The drugs you use for one makes the other come back quick, we learned that from experience. No I am no expert on it either, we are just mothers trying to help our children get through this as best we can. I listen to the doc and do exactly as we are told, we never miss our meds no matter what when his bug is active, or when it is not for that matter. my son is 18, he just graduated HS, we went through prom with ivs, it has been tough and now we have a break so we try and be as normal as we can. I hope we can get through the summer without ivs.
-------------------------------------------------------------------------------------
jane I think your just super with your boys!!!
-------------------------------------------------------------------------------------
THE SUN RISES AND SETS IN THE EYES OF TBW18

 

[tbw18]

the mycrobacterium abscessus causes fever, lower PFTS, fatigue, and my son also lost his appeitite which he then began to loose weight, his cough was very deep and seemed to take alot out of him, he coughed so hard sometimes his face was so red when he finished, it really takes alot out of him. we have also have aspergillus and the two cant be treated with the same drug. The drugs you use for one makes the other come back quick, we learned that from experience. No I am no expert on it either, we are just mothers trying to help our children get through this as best we can. I listen to the doc and do exactly as we are told, we never miss our meds no matter what when his bug is active, or when it is not for that matter. my son is 18, he just graduated HS, we went through prom with ivs, it has been tough and now we have a break so we try and be as normal as we can. I hope we can get through the summer without ivs.
-------------------------------------------------------------------------------------
jane I think your just super with your boys!!!
-------------------------------------------------------------------------------------
THE SUN RISES AND SETS IN THE EYES OF TBW18