Mild CF?

welshgirl

New member
ps. hello newbie <img src="i/expressions/face-icon-small-happy.gif" border="0"> hope you don't mind me hi-jacking your thread????
 

mellimoo91

New member
I too am considered mild CF I believe, however I am well aware that
CF is progressive and my condition is going to develop. Sue, I'm
curious, you say there is a chart at your CF clinic based on lung
function. Do you know roughly the numbers that are considered mild,
moderate, severe? Thanks, and sorry I couldn't really be of much
help grsswspr. Take care.
 

mellimoo91

New member
I too am considered mild CF I believe, however I am well aware that
CF is progressive and my condition is going to develop. Sue, I'm
curious, you say there is a chart at your CF clinic based on lung
function. Do you know roughly the numbers that are considered mild,
moderate, severe? Thanks, and sorry I couldn't really be of much
help grsswspr. Take care.
 

mellimoo91

New member
I too am considered mild CF I believe, however I am well aware that
CF is progressive and my condition is going to develop. Sue, I'm
curious, you say there is a chart at your CF clinic based on lung
function. Do you know roughly the numbers that are considered mild,
moderate, severe? Thanks, and sorry I couldn't really be of much
help grsswspr. Take care.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>grsswspr</b></i>

Help me out here.  I have an 8 year old with a mild form of
CF.  So far the only symptom has been polyps and slightly
underweight.  Does mild CF turn into more severe at some point
or does it pretty much stay the same?  Can the lung problems
start to occur at  a latter date?  I'm wondering what to
expect or not?  Has anyone started our healthy as a child and
then had increased difficulties? <img src="i/expressions/face-icon-small-confused.gif" border="0"></end quote></div>

CF is a progressive disease. Whether its mild, morderate or severe.

My CF has always been mild with PFT's over 100% for most of my life. But i have noticed that the CF has progressed over the years. It's the nature of the disease.

If kids were born with severe CF, they wouldn't live until 37. Most of those who are passing away at age 37 or older had extremely mild CF when they were younger.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>grsswspr</b></i>

Help me out here.  I have an 8 year old with a mild form of
CF.  So far the only symptom has been polyps and slightly
underweight.  Does mild CF turn into more severe at some point
or does it pretty much stay the same?  Can the lung problems
start to occur at  a latter date?  I'm wondering what to
expect or not?  Has anyone started our healthy as a child and
then had increased difficulties? <img src="i/expressions/face-icon-small-confused.gif" border="0"></end quote></div>

CF is a progressive disease. Whether its mild, morderate or severe.

My CF has always been mild with PFT's over 100% for most of my life. But i have noticed that the CF has progressed over the years. It's the nature of the disease.

If kids were born with severe CF, they wouldn't live until 37. Most of those who are passing away at age 37 or older had extremely mild CF when they were younger.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>grsswspr</b></i>

Help me out here.  I have an 8 year old with a mild form of
CF.  So far the only symptom has been polyps and slightly
underweight.  Does mild CF turn into more severe at some point
or does it pretty much stay the same?  Can the lung problems
start to occur at  a latter date?  I'm wondering what to
expect or not?  Has anyone started our healthy as a child and
then had increased difficulties? <img src="i/expressions/face-icon-small-confused.gif" border="0"></end quote></div>

CF is a progressive disease. Whether its mild, morderate or severe.

My CF has always been mild with PFT's over 100% for most of my life. But i have noticed that the CF has progressed over the years. It's the nature of the disease.

If kids were born with severe CF, they wouldn't live until 37. Most of those who are passing away at age 37 or older had extremely mild CF when they were younger.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mellimoo91</b></i>

I too am considered mild CF I believe, however I am well aware that
CF is progressive and my condition is going to develop. Sue, I'm
curious, you say there is a chart at your CF clinic based on lung
function. Do you know roughly the numbers that are considered mild,
moderate, severe? Thanks, and sorry I couldn't really be of much
help grsswspr. Take care.</end quote></div>

In the US (at my clinic in LA) mild lung disease is PFT's above 70%. Moderate is over 50%. Severe is 49% an below....
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mellimoo91</b></i>

I too am considered mild CF I believe, however I am well aware that
CF is progressive and my condition is going to develop. Sue, I'm
curious, you say there is a chart at your CF clinic based on lung
function. Do you know roughly the numbers that are considered mild,
moderate, severe? Thanks, and sorry I couldn't really be of much
help grsswspr. Take care.</end quote></div>

In the US (at my clinic in LA) mild lung disease is PFT's above 70%. Moderate is over 50%. Severe is 49% an below....
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mellimoo91</b></i>

I too am considered mild CF I believe, however I am well aware that
CF is progressive and my condition is going to develop. Sue, I'm
curious, you say there is a chart at your CF clinic based on lung
function. Do you know roughly the numbers that are considered mild,
moderate, severe? Thanks, and sorry I couldn't really be of much
help grsswspr. Take care.</end quote></div>

In the US (at my clinic in LA) mild lung disease is PFT's above 70%. Moderate is over 50%. Severe is 49% an below....
 

point

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>welshgirl</b></i>

mel, please tell me to buzz off if i'm too nosy!!!! can you tell me a little about your history,seeing as both you and joe were diagnosed around the same age? i have wondered often whether joe's symptoms would correspond roughly with your own. i know there are a whole load of variables which could alter joe's progression compared to your own.



welshgirl - - unfortunately, it is impossible to predict. I have two brothers, all with the same mutations, and we have all progressed differently. We were all dx at the same time - for the most part - be/c of problems my one brother had.

It is completely natural to want to predict the point where decline will begin. I try to "guesstimate" now when I will start having problems, and/or I keep hoping my mutations would tell me something about my CF future.

If only there were CF related tarot cards....<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

point

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>welshgirl</b></i>

mel, please tell me to buzz off if i'm too nosy!!!! can you tell me a little about your history,seeing as both you and joe were diagnosed around the same age? i have wondered often whether joe's symptoms would correspond roughly with your own. i know there are a whole load of variables which could alter joe's progression compared to your own.



welshgirl - - unfortunately, it is impossible to predict. I have two brothers, all with the same mutations, and we have all progressed differently. We were all dx at the same time - for the most part - be/c of problems my one brother had.

It is completely natural to want to predict the point where decline will begin. I try to "guesstimate" now when I will start having problems, and/or I keep hoping my mutations would tell me something about my CF future.

If only there were CF related tarot cards....<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

point

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>welshgirl</b></i>

mel, please tell me to buzz off if i'm too nosy!!!! can you tell me a little about your history,seeing as both you and joe were diagnosed around the same age? i have wondered often whether joe's symptoms would correspond roughly with your own. i know there are a whole load of variables which could alter joe's progression compared to your own.



welshgirl - - unfortunately, it is impossible to predict. I have two brothers, all with the same mutations, and we have all progressed differently. We were all dx at the same time - for the most part - be/c of problems my one brother had.

It is completely natural to want to predict the point where decline will begin. I try to "guesstimate" now when I will start having problems, and/or I keep hoping my mutations would tell me something about my CF future.

If only there were CF related tarot cards....<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

Mommafirst

Guest
Gee Anne (Lemonstolemonade) -- I feel like I could have written
exactly what you did.<br>
<br>
 My dd's sweats were 53 and 45, borderline and she is
currently asymptomatic.   Doesn't do much to appease me
though either, cf seems to be cf and mild or not you just never
know the way or speed with which it  will progress.
 
M

Mommafirst

Guest
Gee Anne (Lemonstolemonade) -- I feel like I could have written
exactly what you did.<br>
<br>
 My dd's sweats were 53 and 45, borderline and she is
currently asymptomatic.   Doesn't do much to appease me
though either, cf seems to be cf and mild or not you just never
know the way or speed with which it  will progress.
 
M

Mommafirst

Guest
Gee Anne (Lemonstolemonade) -- I feel like I could have written
exactly what you did.<br>
<br>
 My dd's sweats were 53 and 45, borderline and she is
currently asymptomatic.   Doesn't do much to appease me
though either, cf seems to be cf and mild or not you just never
know the way or speed with which it  will progress.
 
L

lemonstolemonade

Guest
Heather,<br>
I think we've made mention of this before...<br>
GREAT MINDS. :)<br>
<br>
Everyone,<br>
This is a very interesting thread. Hopefully others will post their
thoughts about "mild" CF and its progression.<br>
<br>
Thanks!<br>
Anne<br>
 
L

lemonstolemonade

Guest
Heather,<br>
I think we've made mention of this before...<br>
GREAT MINDS. :)<br>
<br>
Everyone,<br>
This is a very interesting thread. Hopefully others will post their
thoughts about "mild" CF and its progression.<br>
<br>
Thanks!<br>
Anne<br>
 
L

lemonstolemonade

Guest
Heather,<br>
I think we've made mention of this before...<br>
GREAT MINDS. :)<br>
<br>
Everyone,<br>
This is a very interesting thread. Hopefully others will post their
thoughts about "mild" CF and its progression.<br>
<br>
Thanks!<br>
Anne<br>
 
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