My daughter was just diagnosed with CF in October, she is 7. Our doctor's so far have been great and were very frank with us. The day she was diagnosed, he told me that CF is a progressive disease. My daughter currently only has the digestive problems...but, as the doctor told me...she may feel good today, but may not feel good tomorrow. I left the hospital completely devoid of hope, which is a horrible feeling. I know that it is best to have the truth, but sometimes the truth is too difficult to deal with.
I have mixed feelings of how the doctor should handle it, but like someone said earlier in this post...one day at a time, one breath at a time is the best medicine. I don't want to know how long they think she has...I really don't think anyone could possibly know that. I believe there is a higher power than her doctor that knows that answer.
Christy - mom of Katie w/ CF
