Mind over matter...how do you deal

[Landy]

Dramamama,
That is a neat example you shared. Sometimes I wonder if people perceive a positive attitude as denial??

One time, yeara ago, at the CF Clinic, the psychologist brought up the possibility of premature death & he acted put out or something that I wasn't just wringing my hands in despair over coping with the idea. It just struck me as kind of amusing, for lack of a better word.

 

[Landy]

Dramamama,
That is a neat example you shared. Sometimes I wonder if people perceive a positive attitude as denial??

One time, yeara ago, at the CF Clinic, the psychologist brought up the possibility of premature death & he acted put out or something that I wasn't just wringing my hands in despair over coping with the idea. It just struck me as kind of amusing, for lack of a better word.

 

[greatbay]

Two years ago when I was diagnosed with MAC...mycrobacterium avium complex and took 8 months of highly potent antibiotics (these nearly killed me!) I was told that it was incurable and to set my life in order. My husband and I run a seasonal campground and your-round convenience store with gasoline and take-out deli, so getting my life in order was a good push to legally take care of the business side should something happen to me. We had never done this. Then to settle things with our children and family came next, really between my sick days and settling everything, I didn't have time to think about the end. Then I got sicker and sicker and finally got the CF diagnosis, oh, I still have the MAC, but now know why all the other stuff was going on.
Having taken care of all the legal and leaving stuff...I am really comfortable and don't think about what will happen...I just enjoy each day and relish my time with my family. One thing that has happened to me and I don't know why but I don't get angry anymore. I can't explain it...if something happens or someone says something that would have upset me before...I just won't argue and you know that has made others think twice before saying something because I don't give a reaction. Basically, lately only good things are said to me. I wish I was like this years ago...it would have saved alot of breath and tears. lol
"Live for today, for tomorrow will take care of itself."

 

[greatbay]

Two years ago when I was diagnosed with MAC...mycrobacterium avium complex and took 8 months of highly potent antibiotics (these nearly killed me!) I was told that it was incurable and to set my life in order. My husband and I run a seasonal campground and your-round convenience store with gasoline and take-out deli, so getting my life in order was a good push to legally take care of the business side should something happen to me. We had never done this. Then to settle things with our children and family came next, really between my sick days and settling everything, I didn't have time to think about the end. Then I got sicker and sicker and finally got the CF diagnosis, oh, I still have the MAC, but now know why all the other stuff was going on.
Having taken care of all the legal and leaving stuff...I am really comfortable and don't think about what will happen...I just enjoy each day and relish my time with my family. One thing that has happened to me and I don't know why but I don't get angry anymore. I can't explain it...if something happens or someone says something that would have upset me before...I just won't argue and you know that has made others think twice before saying something because I don't give a reaction. Basically, lately only good things are said to me. I wish I was like this years ago...it would have saved alot of breath and tears. lol
"Live for today, for tomorrow will take care of itself."

 

[greatbay]

Two years ago when I was diagnosed with MAC...mycrobacterium avium complex and took 8 months of highly potent antibiotics (these nearly killed me!) I was told that it was incurable and to set my life in order. My husband and I run a seasonal campground and your-round convenience store with gasoline and take-out deli, so getting my life in order was a good push to legally take care of the business side should something happen to me. We had never done this. Then to settle things with our children and family came next, really between my sick days and settling everything, I didn't have time to think about the end. Then I got sicker and sicker and finally got the CF diagnosis, oh, I still have the MAC, but now know why all the other stuff was going on.
Having taken care of all the legal and leaving stuff...I am really comfortable and don't think about what will happen...I just enjoy each day and relish my time with my family. One thing that has happened to me and I don't know why but I don't get angry anymore. I can't explain it...if something happens or someone says something that would have upset me before...I just won't argue and you know that has made others think twice before saying something because I don't give a reaction. Basically, lately only good things are said to me. I wish I was like this years ago...it would have saved alot of breath and tears. lol
"Live for today, for tomorrow will take care of itself."

 

[nocode]

I totally agree with someone who said that as the years go by and we see people with cf dying, we realize how real it is. I'm one of those people,though, who thinks that those really bad things that happen to others with cf won't happen to me (i definatelly call this denial) but it's only a defense mechanism, i'm normally very realistic but this is such a tough situation, that i try spare the last remains of my sanity (ahah) by thinking that it won't happen to me. But don't be fooled by this aparent positive outlook, i think an awful lot about the illness and everything that is related to it all the time and it does affect me a lot, how could it not?

 

[nocode]

I totally agree with someone who said that as the years go by and we see people with cf dying, we realize how real it is. I'm one of those people,though, who thinks that those really bad things that happen to others with cf won't happen to me (i definatelly call this denial) but it's only a defense mechanism, i'm normally very realistic but this is such a tough situation, that i try spare the last remains of my sanity (ahah) by thinking that it won't happen to me. But don't be fooled by this aparent positive outlook, i think an awful lot about the illness and everything that is related to it all the time and it does affect me a lot, how could it not?

 

[nocode]

I totally agree with someone who said that as the years go by and we see people with cf dying, we realize how real it is. I'm one of those people,though, who thinks that those really bad things that happen to others with cf won't happen to me (i definatelly call this denial) but it's only a defense mechanism, i'm normally very realistic but this is such a tough situation, that i try spare the last remains of my sanity (ahah) by thinking that it won't happen to me. But don't be fooled by this aparent positive outlook, i think an awful lot about the illness and everything that is related to it all the time and it does affect me a lot, how could it not?