Miss you Guys

blindhearted

New member
Sorry you are having a terrible time in the hospital. I would be having a BF (b#$ch fit) with the nurses and RTs. I would put in a call to my CF doctor (or who ever he left in charge at this hospital) and/or be buzzing the nurses and RTs every 15 mins until I got my treatments and meds. I had one nurse that took my enzymes away from my bedside because "she knew what was best", even though my CF dr said it was okay. I made that woman have a very long 12 hr shift (eat a cookie, call for an enzyme...repeat every 15-20 mintues. Stuff like that.). I never had her again after that....wonder why? lol.

I know you are moving into your house soon. Maybe you can look at stuff online for your house. You can look up themes for your bathrooms or kitchen, furniture, art work, curtains (that was so hard for DH and I...to find curtains we liked at a reasonable price), lamps, ceiling fans (if you are gonna have them), TVs...stuff like that to past the time. When you get looking around, time can fly by. Also, you could get your floor plan and play around with where you might want your furniture placed in all your rooms. Make a list of things you might need in different parts of the house, like the kitchen (dishes, pots, pasta spoon, butter tray...stuff like that). There is a lot of stuff to think about, I am learning that myself.

As for the chat, start a private topic and invite some ppl that are online the same time as you are....have a forms type chat.

Hopefully things will start going smoother for you in the hospital. I hope you start feeling better soon!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

blindhearted

New member
Sorry you are having a terrible time in the hospital. I would be having a BF (b#$ch fit) with the nurses and RTs. I would put in a call to my CF doctor (or who ever he left in charge at this hospital) and/or be buzzing the nurses and RTs every 15 mins until I got my treatments and meds. I had one nurse that took my enzymes away from my bedside because "she knew what was best", even though my CF dr said it was okay. I made that woman have a very long 12 hr shift (eat a cookie, call for an enzyme...repeat every 15-20 mintues. Stuff like that.). I never had her again after that....wonder why? lol.

I know you are moving into your house soon. Maybe you can look at stuff online for your house. You can look up themes for your bathrooms or kitchen, furniture, art work, curtains (that was so hard for DH and I...to find curtains we liked at a reasonable price), lamps, ceiling fans (if you are gonna have them), TVs...stuff like that to past the time. When you get looking around, time can fly by. Also, you could get your floor plan and play around with where you might want your furniture placed in all your rooms. Make a list of things you might need in different parts of the house, like the kitchen (dishes, pots, pasta spoon, butter tray...stuff like that). There is a lot of stuff to think about, I am learning that myself.

As for the chat, start a private topic and invite some ppl that are online the same time as you are....have a forms type chat.

Hopefully things will start going smoother for you in the hospital. I hope you start feeling better soon!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

blindhearted

New member
Sorry you are having a terrible time in the hospital. I would be having a BF (b#$ch fit) with the nurses and RTs. I would put in a call to my CF doctor (or who ever he left in charge at this hospital) and/or be buzzing the nurses and RTs every 15 mins until I got my treatments and meds. I had one nurse that took my enzymes away from my bedside because "she knew what was best", even though my CF dr said it was okay. I made that woman have a very long 12 hr shift (eat a cookie, call for an enzyme...repeat every 15-20 mintues. Stuff like that.). I never had her again after that....wonder why? lol.

I know you are moving into your house soon. Maybe you can look at stuff online for your house. You can look up themes for your bathrooms or kitchen, furniture, art work, curtains (that was so hard for DH and I...to find curtains we liked at a reasonable price), lamps, ceiling fans (if you are gonna have them), TVs...stuff like that to past the time. When you get looking around, time can fly by. Also, you could get your floor plan and play around with where you might want your furniture placed in all your rooms. Make a list of things you might need in different parts of the house, like the kitchen (dishes, pots, pasta spoon, butter tray...stuff like that). There is a lot of stuff to think about, I am learning that myself.

As for the chat, start a private topic and invite some ppl that are online the same time as you are....have a forms type chat.

Hopefully things will start going smoother for you in the hospital. I hope you start feeling better soon!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

blindhearted

New member
Sorry you are having a terrible time in the hospital. I would be having a BF (b#$ch fit) with the nurses and RTs. I would put in a call to my CF doctor (or who ever he left in charge at this hospital) and/or be buzzing the nurses and RTs every 15 mins until I got my treatments and meds. I had one nurse that took my enzymes away from my bedside because "she knew what was best", even though my CF dr said it was okay. I made that woman have a very long 12 hr shift (eat a cookie, call for an enzyme...repeat every 15-20 mintues. Stuff like that.). I never had her again after that....wonder why? lol.

I know you are moving into your house soon. Maybe you can look at stuff online for your house. You can look up themes for your bathrooms or kitchen, furniture, art work, curtains (that was so hard for DH and I...to find curtains we liked at a reasonable price), lamps, ceiling fans (if you are gonna have them), TVs...stuff like that to past the time. When you get looking around, time can fly by. Also, you could get your floor plan and play around with where you might want your furniture placed in all your rooms. Make a list of things you might need in different parts of the house, like the kitchen (dishes, pots, pasta spoon, butter tray...stuff like that). There is a lot of stuff to think about, I am learning that myself.

As for the chat, start a private topic and invite some ppl that are online the same time as you are....have a forms type chat.

Hopefully things will start going smoother for you in the hospital. I hope you start feeling better soon!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

blindhearted

New member
Sorry you are having a terrible time in the hospital. I would be having a BF (b#$ch fit) with the nurses and RTs. I would put in a call to my CF doctor (or who ever he left in charge at this hospital) and/or be buzzing the nurses and RTs every 15 mins until I got my treatments and meds. I had one nurse that took my enzymes away from my bedside because "she knew what was best", even though my CF dr said it was okay. I made that woman have a very long 12 hr shift (eat a cookie, call for an enzyme...repeat every 15-20 mintues. Stuff like that.). I never had her again after that....wonder why? lol.

I know you are moving into your house soon. Maybe you can look at stuff online for your house. You can look up themes for your bathrooms or kitchen, furniture, art work, curtains (that was so hard for DH and I...to find curtains we liked at a reasonable price), lamps, ceiling fans (if you are gonna have them), TVs...stuff like that to past the time. When you get looking around, time can fly by. Also, you could get your floor plan and play around with where you might want your furniture placed in all your rooms. Make a list of things you might need in different parts of the house, like the kitchen (dishes, pots, pasta spoon, butter tray...stuff like that). There is a lot of stuff to think about, I am learning that myself.

As for the chat, start a private topic and invite some ppl that are online the same time as you are....have a forms type chat.

Hopefully things will start going smoother for you in the hospital. I hope you start feeling better soon!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

catboogie

New member
hey jenn,

that is a REAL bummer you cannot get into chat from the hospital--you always have your blog! anyway, just wanted to say GOOD LUCK. and if you get bored, you should check out Qs site in my sig. <img src="i/expressions/face-icon-small-smile.gif" border="0">

get well girl.
 

catboogie

New member
hey jenn,

that is a REAL bummer you cannot get into chat from the hospital--you always have your blog! anyway, just wanted to say GOOD LUCK. and if you get bored, you should check out Qs site in my sig. <img src="i/expressions/face-icon-small-smile.gif" border="0">

get well girl.
 

catboogie

New member
hey jenn,

that is a REAL bummer you cannot get into chat from the hospital--you always have your blog! anyway, just wanted to say GOOD LUCK. and if you get bored, you should check out Qs site in my sig. <img src="i/expressions/face-icon-small-smile.gif" border="0">

get well girl.
 

catboogie

New member
hey jenn,

that is a REAL bummer you cannot get into chat from the hospital--you always have your blog! anyway, just wanted to say GOOD LUCK. and if you get bored, you should check out Qs site in my sig. <img src="i/expressions/face-icon-small-smile.gif" border="0">

get well girl.
 

catboogie

New member
hey jenn,

that is a REAL bummer you cannot get into chat from the hospital--you always have your blog! anyway, just wanted to say GOOD LUCK. and if you get bored, you should check out Qs site in my sig. <img src="i/expressions/face-icon-small-smile.gif" border="0">

get well girl.
 

beleache

New member
Hey Jenn, Sorry you cant get into the chat (whats wrong w/ that hosp. that they wont allow chats?) that sucks !!!! You are in my thoughts and prayers.. If you want to chat via phone let me know.. I will pm you my phone #.. If youre not up to it dont worry... Take care and God Bless you <img src="i/expressions/heart.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 

beleache

New member
Hey Jenn, Sorry you cant get into the chat (whats wrong w/ that hosp. that they wont allow chats?) that sucks !!!! You are in my thoughts and prayers.. If you want to chat via phone let me know.. I will pm you my phone #.. If youre not up to it dont worry... Take care and God Bless you <img src="i/expressions/heart.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 

beleache

New member
Hey Jenn, Sorry you cant get into the chat (whats wrong w/ that hosp. that they wont allow chats?) that sucks !!!! You are in my thoughts and prayers.. If you want to chat via phone let me know.. I will pm you my phone #.. If youre not up to it dont worry... Take care and God Bless you <img src="i/expressions/heart.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 

beleache

New member
Hey Jenn, Sorry you cant get into the chat (whats wrong w/ that hosp. that they wont allow chats?) that sucks !!!! You are in my thoughts and prayers.. If you want to chat via phone let me know.. I will pm you my phone #.. If youre not up to it dont worry... Take care and God Bless you <img src="i/expressions/heart.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 

beleache

New member
Hey Jenn, Sorry you cant get into the chat (whats wrong w/ that hosp. that they wont allow chats?) that sucks !!!! You are in my thoughts and prayers.. If you want to chat via phone let me know.. I will pm you my phone #.. If youre not up to it dont worry... Take care and God Bless you <img src="i/expressions/heart.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 

JennifersHope

New member
THanks for the great ideas.. I am doing some online shopping looking for bathroom themes.. I didn't even think of that... ALso I have been blogging and will continue to do so...

Doctors and family are saying that they have not seen me look so good in so many years so something is going right somewhere... Could be the anxiety meds for the steroids though.. JK I think.

My breathing is still tight so they want to add more steroids to which I laughed.. Not a chance unless they clear it with my CF doctor who told me the other day I was on plenty of steroids.

Anyway off to bathroom themes.. if anyone has any good websites.. Paste links.. also to bedroom funiture.. Not that I am ready to buy that yet, after being a big spender on paint for my house and new bed systems for my room and guest room

Thanks again and keep the good ideas coming.. and also thanks for being so understanding about me being so bored..
 

JennifersHope

New member
THanks for the great ideas.. I am doing some online shopping looking for bathroom themes.. I didn't even think of that... ALso I have been blogging and will continue to do so...

Doctors and family are saying that they have not seen me look so good in so many years so something is going right somewhere... Could be the anxiety meds for the steroids though.. JK I think.

My breathing is still tight so they want to add more steroids to which I laughed.. Not a chance unless they clear it with my CF doctor who told me the other day I was on plenty of steroids.

Anyway off to bathroom themes.. if anyone has any good websites.. Paste links.. also to bedroom funiture.. Not that I am ready to buy that yet, after being a big spender on paint for my house and new bed systems for my room and guest room

Thanks again and keep the good ideas coming.. and also thanks for being so understanding about me being so bored..
 

JennifersHope

New member
THanks for the great ideas.. I am doing some online shopping looking for bathroom themes.. I didn't even think of that... ALso I have been blogging and will continue to do so...

Doctors and family are saying that they have not seen me look so good in so many years so something is going right somewhere... Could be the anxiety meds for the steroids though.. JK I think.

My breathing is still tight so they want to add more steroids to which I laughed.. Not a chance unless they clear it with my CF doctor who told me the other day I was on plenty of steroids.

Anyway off to bathroom themes.. if anyone has any good websites.. Paste links.. also to bedroom funiture.. Not that I am ready to buy that yet, after being a big spender on paint for my house and new bed systems for my room and guest room

Thanks again and keep the good ideas coming.. and also thanks for being so understanding about me being so bored..
 

JennifersHope

New member
THanks for the great ideas.. I am doing some online shopping looking for bathroom themes.. I didn't even think of that... ALso I have been blogging and will continue to do so...

Doctors and family are saying that they have not seen me look so good in so many years so something is going right somewhere... Could be the anxiety meds for the steroids though.. JK I think.

My breathing is still tight so they want to add more steroids to which I laughed.. Not a chance unless they clear it with my CF doctor who told me the other day I was on plenty of steroids.

Anyway off to bathroom themes.. if anyone has any good websites.. Paste links.. also to bedroom funiture.. Not that I am ready to buy that yet, after being a big spender on paint for my house and new bed systems for my room and guest room

Thanks again and keep the good ideas coming.. and also thanks for being so understanding about me being so bored..
 

JennifersHope

New member
THanks for the great ideas.. I am doing some online shopping looking for bathroom themes.. I didn't even think of that... ALso I have been blogging and will continue to do so...

Doctors and family are saying that they have not seen me look so good in so many years so something is going right somewhere... Could be the anxiety meds for the steroids though.. JK I think.

My breathing is still tight so they want to add more steroids to which I laughed.. Not a chance unless they clear it with my CF doctor who told me the other day I was on plenty of steroids.

Anyway off to bathroom themes.. if anyone has any good websites.. Paste links.. also to bedroom funiture.. Not that I am ready to buy that yet, after being a big spender on paint for my house and new bed systems for my room and guest room

Thanks again and keep the good ideas coming.. and also thanks for being so understanding about me being so bored..
 
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