Mommy, why do I have CF?

mistylavon · Aug 15, 2008

My CF daughter is 3 1/2 yrs. old and she's already starting to ask me questions too. I tell her that God makes everyone special but he chose to make her extra special w/ CF and that mommy or daddy or her will never know why. I believe everything happens for a reason and God has a purpose for her life w/ this. It really helps me by going to church, I've reached the place that I'm not angry and I'm really at peace w/ this situation b/c of my faith. My husband is still pretty angry and upset about it though.

Morgan will be going to preschool 2 afternoons a week starting August 25th and she asked me if she has to take her enzymes there, I told her yes. She said, "I don't care, I said I don't want to take them." She then asked me if she gets to stop taking them when she turns 5 b/c her big sister doesn't take them.

She also has a Build a Bear bunny named Dorothy. Dorothy now has CF too and she does breathing treatments, take enzymes, etc. and we are taking her to clinic next week b/c Morgan's doctor is Dorothy's doctor now too. My husband is really sad by this, it makes him feel like she's starting to realize that she's different than other kids. Not long ago my husband and 2 girls were riding in the car and our older one asked my hubby a question about something and she said, oh, it's like a disease, like you have a disease Morgan. And she said, "no I don't!" My husband said she seemed really bothered by it and she just stared at the floor for a long time while they were driving. These things are coming sooner than I wished they would.

Sorry this is so long!

mistylavon · Aug 15, 2008

My CF daughter is 3 1/2 yrs. old and she's already starting to ask me questions too. I tell her that God makes everyone special but he chose to make her extra special w/ CF and that mommy or daddy or her will never know why. I believe everything happens for a reason and God has a purpose for her life w/ this. It really helps me by going to church, I've reached the place that I'm not angry and I'm really at peace w/ this situation b/c of my faith. My husband is still pretty angry and upset about it though.

Morgan will be going to preschool 2 afternoons a week starting August 25th and she asked me if she has to take her enzymes there, I told her yes. She said, "I don't care, I said I don't want to take them." She then asked me if she gets to stop taking them when she turns 5 b/c her big sister doesn't take them.

She also has a Build a Bear bunny named Dorothy. Dorothy now has CF too and she does breathing treatments, take enzymes, etc. and we are taking her to clinic next week b/c Morgan's doctor is Dorothy's doctor now too. My husband is really sad by this, it makes him feel like she's starting to realize that she's different than other kids. Not long ago my husband and 2 girls were riding in the car and our older one asked my hubby a question about something and she said, oh, it's like a disease, like you have a disease Morgan. And she said, "no I don't!" My husband said she seemed really bothered by it and she just stared at the floor for a long time while they were driving. These things are coming sooner than I wished they would.

Sorry this is so long!

mistylavon · Aug 15, 2008

My CF daughter is 3 1/2 yrs. old and she's already starting to ask me questions too. I tell her that God makes everyone special but he chose to make her extra special w/ CF and that mommy or daddy or her will never know why. I believe everything happens for a reason and God has a purpose for her life w/ this. It really helps me by going to church, I've reached the place that I'm not angry and I'm really at peace w/ this situation b/c of my faith. My husband is still pretty angry and upset about it though.

Morgan will be going to preschool 2 afternoons a week starting August 25th and she asked me if she has to take her enzymes there, I told her yes. She said, "I don't care, I said I don't want to take them." She then asked me if she gets to stop taking them when she turns 5 b/c her big sister doesn't take them.

She also has a Build a Bear bunny named Dorothy. Dorothy now has CF too and she does breathing treatments, take enzymes, etc. and we are taking her to clinic next week b/c Morgan's doctor is Dorothy's doctor now too. My husband is really sad by this, it makes him feel like she's starting to realize that she's different than other kids. Not long ago my husband and 2 girls were riding in the car and our older one asked my hubby a question about something and she said, oh, it's like a disease, like you have a disease Morgan. And she said, "no I don't!" My husband said she seemed really bothered by it and she just stared at the floor for a long time while they were driving. These things are coming sooner than I wished they would.

Sorry this is so long!

mistylavon · Aug 15, 2008

My CF daughter is 3 1/2 yrs. old and she's already starting to ask me questions too. I tell her that God makes everyone special but he chose to make her extra special w/ CF and that mommy or daddy or her will never know why. I believe everything happens for a reason and God has a purpose for her life w/ this. It really helps me by going to church, I've reached the place that I'm not angry and I'm really at peace w/ this situation b/c of my faith. My husband is still pretty angry and upset about it though.

Morgan will be going to preschool 2 afternoons a week starting August 25th and she asked me if she has to take her enzymes there, I told her yes. She said, "I don't care, I said I don't want to take them." She then asked me if she gets to stop taking them when she turns 5 b/c her big sister doesn't take them.

She also has a Build a Bear bunny named Dorothy. Dorothy now has CF too and she does breathing treatments, take enzymes, etc. and we are taking her to clinic next week b/c Morgan's doctor is Dorothy's doctor now too. My husband is really sad by this, it makes him feel like she's starting to realize that she's different than other kids. Not long ago my husband and 2 girls were riding in the car and our older one asked my hubby a question about something and she said, oh, it's like a disease, like you have a disease Morgan. And she said, "no I don't!" My husband said she seemed really bothered by it and she just stared at the floor for a long time while they were driving. These things are coming sooner than I wished they would.

Sorry this is so long!

mistylavon · Aug 15, 2008

My CF daughter is 3 1/2 yrs. old and she's already starting to ask me questions too. I tell her that God makes everyone special but he chose to make her extra special w/ CF and that mommy or daddy or her will never know why. I believe everything happens for a reason and God has a purpose for her life w/ this. It really helps me by going to church, I've reached the place that I'm not angry and I'm really at peace w/ this situation b/c of my faith. My husband is still pretty angry and upset about it though.
 
 Morgan will be going to preschool 2 afternoons a week starting August 25th and she asked me if she has to take her enzymes there, I told her yes. She said, "I don't care, I said I don't want to take them." She then asked me if she gets to stop taking them when she turns 5 b/c her big sister doesn't take them.
 
 She also has a Build a Bear bunny named Dorothy. Dorothy now has CF too and she does breathing treatments, take enzymes, etc. and we are taking her to clinic next week b/c Morgan's doctor is Dorothy's doctor now too. My husband is really sad by this, it makes him feel like she's starting to realize that she's different than other kids. Not long ago my husband and 2 girls were riding in the car and our older one asked my hubby a question about something and she said, oh, it's like a disease, like you have a disease Morgan. And she said, "no I don't!" My husband said she seemed really bothered by it and she just stared at the floor for a long time while they were driving. These things are coming sooner than I wished they would.
 
 Sorry this is so long!

PlumPerfect · Aug 15, 2008