Emily65Roses
New member
During my annoying teenage years when I was being a butthead, I didn't take them. But you get used to it after a while. If I don't take them now, I'm wiping the oil off my @ss for days. It's not worth it. Heh.
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More 504 help
- Thread starter CFHockeyMom
- Start date
You're too funny, Emily...lol...
I try to tell myself that eventually they would also see that it isn't worth it, but I swear, with my older daughter, I just don't know. She is the most stubborn person I have ever met (a bit too much like myself, really). She doesn't want anyone to know about CF because she doesn't want people to feel sorry for her. She would avoid enzymes at school if I didn't force her to go to the nurse. I know she would. SHe'd suffer in silence and she'd die before she'd let anyone know that it was bothering her. Every CF visit when they ask about her poop she nearly dies. You'd really think she'd get used to it and laugh but she's not about to do it. I know that her stubborness will eventually become a positive thing because she will be able to stand up for herself her when she needs to. For now, though, it makes it difficult.
I try to tell myself that eventually they would also see that it isn't worth it, but I swear, with my older daughter, I just don't know. She is the most stubborn person I have ever met (a bit too much like myself, really). She doesn't want anyone to know about CF because she doesn't want people to feel sorry for her. She would avoid enzymes at school if I didn't force her to go to the nurse. I know she would. SHe'd suffer in silence and she'd die before she'd let anyone know that it was bothering her. Every CF visit when they ask about her poop she nearly dies. You'd really think she'd get used to it and laugh but she's not about to do it. I know that her stubborness will eventually become a positive thing because she will be able to stand up for herself her when she needs to. For now, though, it makes it difficult.
thefrogprincess
New member
When I entered high school (we moved to a different state the summer before my sophomore year) we didn't tell the school about my enzymes so that I could carry them on me. I played sports so it just wasn't practicle for me not have them on me because I always had a snack before games and practice. The office staff left before games/practice started. They must allow him to carry any inhalers with him because they sometimes need to be used NOW. The school must accomodate any reasonable request, like being able to go to the bathroom whenever its needed and snacking/drinking. If they put up a stink, get a docs note.
As far as worrying about whether or not your child will be able to remember to take enzymes or not -- guess I'll cross that bridge when I come to it.
My concern is that our schools don't have full time nurses, so meds are kept in a locked cabinet in the school office. I overheard the wife of a teacher complain one day about all the the druggies at the school -- all line up to take their ADHD meds etc. I'm concerned about my child not wanting to wait in line, not wanting to miss anything in class or in the lunch or possibly dealing with some crabby lady at the school office and figuring it's just too much trouble to take the enzymes. I suspect that nobody will really be keeping track as to whether or not ds will take his enzymes or not -- if he shows up, they'll mark it down otherwise...
My concern is that our schools don't have full time nurses, so meds are kept in a locked cabinet in the school office. I overheard the wife of a teacher complain one day about all the the druggies at the school -- all line up to take their ADHD meds etc. I'm concerned about my child not wanting to wait in line, not wanting to miss anything in class or in the lunch or possibly dealing with some crabby lady at the school office and figuring it's just too much trouble to take the enzymes. I suspect that nobody will really be keeping track as to whether or not ds will take his enzymes or not -- if he shows up, they'll mark it down otherwise...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amber682</b></i>
Could someone please tell me briefly what 504 is if you have the time? I did look at the link that Teri posted (very interesting by the way) but it didn't explain what it is exactly. Some kind of federal law or policy? Maybe someone could give me a link? Thanks</end quote></div>
Here's a link:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ldonline.org/article/6086
">http://www.ldonline.org/article/6086
</a>
A 504 plan is a legal document that outlines a plan of instructional services for students in the general education setting. While not an IEP(Individualized Education Plan), the document usually describes the types of accommodations that will be made for a student in school.
Could someone please tell me briefly what 504 is if you have the time? I did look at the link that Teri posted (very interesting by the way) but it didn't explain what it is exactly. Some kind of federal law or policy? Maybe someone could give me a link? Thanks</end quote></div>
Here's a link:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ldonline.org/article/6086
">http://www.ldonline.org/article/6086
</a>
A 504 plan is a legal document that outlines a plan of instructional services for students in the general education setting. While not an IEP(Individualized Education Plan), the document usually describes the types of accommodations that will be made for a student in school.
I didn't read all the responses so this may be repetitive... I have been on many IEP teams and in my district, if you had a doctor's letter and brought up law superceding policy, there would be no problem. ESPECIALLY if you bring up the fact that the nurse's office is the germiest place in school!
CFHockeyMom
New member
Thanks for the replies.
Unfortunately, we aren't going to win the enzyme fight, right now.
Aside from that we've come up with a good list of things to add into our 504. In fact, Sean even helped come up with one I thought was worth sharing...
In our schools, microwaves are not accessible to the kids. Sean suggested that he be allowed to use a microwave either in the office or teacher's lounge. Of course, it would be nice if they just had them in the cafe but I'm sure that would cut into the schools lunch program an we can't have that can we <sarcasm>? Anyway, Sean was thinking that if he had a microwave accessible to him at lunch it would be a lot easier to get in the calories that he needs. You can only do so much with a sandwich, cookies, crackers, chips, etc. Being able to take in pizza, burritos, mac 'n cheese, etc. would be wonderful for a CFer.
Unfortunately, we aren't going to win the enzyme fight, right now.
Aside from that we've come up with a good list of things to add into our 504. In fact, Sean even helped come up with one I thought was worth sharing...
In our schools, microwaves are not accessible to the kids. Sean suggested that he be allowed to use a microwave either in the office or teacher's lounge. Of course, it would be nice if they just had them in the cafe but I'm sure that would cut into the schools lunch program an we can't have that can we <sarcasm>? Anyway, Sean was thinking that if he had a microwave accessible to him at lunch it would be a lot easier to get in the calories that he needs. You can only do so much with a sandwich, cookies, crackers, chips, etc. Being able to take in pizza, burritos, mac 'n cheese, etc. would be wonderful for a CFer.