mother driving me nuts!

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crickit715

New member
When people dont live it 24 hrs a day 7 days a week its easy for them to downplay it....and it is also, like stated before, sometimes that is their way of coping with it...i often have to tell my mom to "get real" with me, because she tends to sugar coat everything and im not that type of person....
 
C

crickit715

New member
When people dont live it 24 hrs a day 7 days a week its easy for them to downplay it....and it is also, like stated before, sometimes that is their way of coping with it...i often have to tell my mom to "get real" with me, because she tends to sugar coat everything and im not that type of person....
 
C

crickit715

New member
When people dont live it 24 hrs a day 7 days a week its easy for them to downplay it....and it is also, like stated before, sometimes that is their way of coping with it...i often have to tell my mom to "get real" with me, because she tends to sugar coat everything and im not that type of person....
 
C

crickit715

New member
When people dont live it 24 hrs a day 7 days a week its easy for them to downplay it....and it is also, like stated before, sometimes that is their way of coping with it...i often have to tell my mom to "get real" with me, because she tends to sugar coat everything and im not that type of person....
 
C

crickit715

New member
When people dont live it 24 hrs a day 7 days a week its easy for them to downplay it....and it is also, like stated before, sometimes that is their way of coping with it...i often have to tell my mom to "get real" with me, because she tends to sugar coat everything and im not that type of person....
 
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NanaOf8GirlsAndCounting

Guest
I just want to tell you that my heart goes out to you. I know that my daughter can and does talk to me about her fears with Grayson. I have cried with her many times. I know that as a mother you want to protect your child and when something like this happens there is nothing you can do to help. As a mother it is a hard thing to not to be able to heal this hurt for your child. I grieve for my granddaughter and daughter the same. There are times I have cried and totally lost it, but have hidden this from my daughter because I know she is going through so much that I don't want to add to her grief. I feel like I need to be the strong one in public and hide my feelings so that she will have someone to lean on. Sometimes this is very hard but I have hope for a cure for Grayson and will stand by my daughter and granddaughter through all that my come our way. Your mother may be putting on a good front for you but may be grieving alone. It breaks my heart that throughout the years I could kiss the hurts and soothe the tears but now I am helpless to fix this problem for my child. The only thing I can trully do now is be there for her and Grayson, loving them no matter what........
 
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NanaOf8GirlsAndCounting

Guest
I just want to tell you that my heart goes out to you. I know that my daughter can and does talk to me about her fears with Grayson. I have cried with her many times. I know that as a mother you want to protect your child and when something like this happens there is nothing you can do to help. As a mother it is a hard thing to not to be able to heal this hurt for your child. I grieve for my granddaughter and daughter the same. There are times I have cried and totally lost it, but have hidden this from my daughter because I know she is going through so much that I don't want to add to her grief. I feel like I need to be the strong one in public and hide my feelings so that she will have someone to lean on. Sometimes this is very hard but I have hope for a cure for Grayson and will stand by my daughter and granddaughter through all that my come our way. Your mother may be putting on a good front for you but may be grieving alone. It breaks my heart that throughout the years I could kiss the hurts and soothe the tears but now I am helpless to fix this problem for my child. The only thing I can trully do now is be there for her and Grayson, loving them no matter what........
 
N

NanaOf8GirlsAndCounting

Guest
I just want to tell you that my heart goes out to you. I know that my daughter can and does talk to me about her fears with Grayson. I have cried with her many times. I know that as a mother you want to protect your child and when something like this happens there is nothing you can do to help. As a mother it is a hard thing to not to be able to heal this hurt for your child. I grieve for my granddaughter and daughter the same. There are times I have cried and totally lost it, but have hidden this from my daughter because I know she is going through so much that I don't want to add to her grief. I feel like I need to be the strong one in public and hide my feelings so that she will have someone to lean on. Sometimes this is very hard but I have hope for a cure for Grayson and will stand by my daughter and granddaughter through all that my come our way. Your mother may be putting on a good front for you but may be grieving alone. It breaks my heart that throughout the years I could kiss the hurts and soothe the tears but now I am helpless to fix this problem for my child. The only thing I can trully do now is be there for her and Grayson, loving them no matter what........
 
N

NanaOf8GirlsAndCounting

Guest
I just want to tell you that my heart goes out to you. I know that my daughter can and does talk to me about her fears with Grayson. I have cried with her many times. I know that as a mother you want to protect your child and when something like this happens there is nothing you can do to help. As a mother it is a hard thing to not to be able to heal this hurt for your child. I grieve for my granddaughter and daughter the same. There are times I have cried and totally lost it, but have hidden this from my daughter because I know she is going through so much that I don't want to add to her grief. I feel like I need to be the strong one in public and hide my feelings so that she will have someone to lean on. Sometimes this is very hard but I have hope for a cure for Grayson and will stand by my daughter and granddaughter through all that my come our way. Your mother may be putting on a good front for you but may be grieving alone. It breaks my heart that throughout the years I could kiss the hurts and soothe the tears but now I am helpless to fix this problem for my child. The only thing I can trully do now is be there for her and Grayson, loving them no matter what........
 
N

NanaOf8GirlsAndCounting

Guest
I just want to tell you that my heart goes out to you. I know that my daughter can and does talk to me about her fears with Grayson. I have cried with her many times. I know that as a mother you want to protect your child and when something like this happens there is nothing you can do to help. As a mother it is a hard thing to not to be able to heal this hurt for your child. I grieve for my granddaughter and daughter the same. There are times I have cried and totally lost it, but have hidden this from my daughter because I know she is going through so much that I don't want to add to her grief. I feel like I need to be the strong one in public and hide my feelings so that she will have someone to lean on. Sometimes this is very hard but I have hope for a cure for Grayson and will stand by my daughter and granddaughter through all that my come our way. Your mother may be putting on a good front for you but may be grieving alone. It breaks my heart that throughout the years I could kiss the hurts and soothe the tears but now I am helpless to fix this problem for my child. The only thing I can trully do now is be there for her and Grayson, loving them no matter what........
 
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valigirl21

Guest
I understand the desire to downplay the seriousness of this desease; I do it sometimes, even now. Since my son is an "as if" I hold out that someday they will tell me it's not CF, that its something else that has a cure already, something that won't, possibly, shorten his life, or limit him in any way. But, as the one who is confronted every day with CF, I have had to be real about it. None of the things I hope for are likely to happen. The only someday I'll get is when his mutations are discovered. It won't change the fact that he has CF; it won't change his tx, or anything about his health or his life. Only those confronted with it 24/7 can truly understand what CF means; we have to let everyone else find their own acceptance. That's why this forum is so great. Sorry so rambling.
 
V

valigirl21

Guest
I understand the desire to downplay the seriousness of this desease; I do it sometimes, even now. Since my son is an "as if" I hold out that someday they will tell me it's not CF, that its something else that has a cure already, something that won't, possibly, shorten his life, or limit him in any way. But, as the one who is confronted every day with CF, I have had to be real about it. None of the things I hope for are likely to happen. The only someday I'll get is when his mutations are discovered. It won't change the fact that he has CF; it won't change his tx, or anything about his health or his life. Only those confronted with it 24/7 can truly understand what CF means; we have to let everyone else find their own acceptance. That's why this forum is so great. Sorry so rambling.
 
V

valigirl21

Guest
I understand the desire to downplay the seriousness of this desease; I do it sometimes, even now. Since my son is an "as if" I hold out that someday they will tell me it's not CF, that its something else that has a cure already, something that won't, possibly, shorten his life, or limit him in any way. But, as the one who is confronted every day with CF, I have had to be real about it. None of the things I hope for are likely to happen. The only someday I'll get is when his mutations are discovered. It won't change the fact that he has CF; it won't change his tx, or anything about his health or his life. Only those confronted with it 24/7 can truly understand what CF means; we have to let everyone else find their own acceptance. That's why this forum is so great. Sorry so rambling.
 
V

valigirl21

Guest
I understand the desire to downplay the seriousness of this desease; I do it sometimes, even now. Since my son is an "as if" I hold out that someday they will tell me it's not CF, that its something else that has a cure already, something that won't, possibly, shorten his life, or limit him in any way. But, as the one who is confronted every day with CF, I have had to be real about it. None of the things I hope for are likely to happen. The only someday I'll get is when his mutations are discovered. It won't change the fact that he has CF; it won't change his tx, or anything about his health or his life. Only those confronted with it 24/7 can truly understand what CF means; we have to let everyone else find their own acceptance. That's why this forum is so great. Sorry so rambling.
 
V

valigirl21

Guest
I understand the desire to downplay the seriousness of this desease; I do it sometimes, even now. Since my son is an "as if" I hold out that someday they will tell me it's not CF, that its something else that has a cure already, something that won't, possibly, shorten his life, or limit him in any way. But, as the one who is confronted every day with CF, I have had to be real about it. None of the things I hope for are likely to happen. The only someday I'll get is when his mutations are discovered. It won't change the fact that he has CF; it won't change his tx, or anything about his health or his life. Only those confronted with it 24/7 can truly understand what CF means; we have to let everyone else find their own acceptance. That's why this forum is so great. Sorry so rambling.
 
2

2sickkids

Guest
It's kinda one of those things that goes with cf. Few examples:

When they were younger my parents told my grandparents they had asthma and would get better. Oh I didn't enjoy explaining to them what cf is.

My brother used to call them as dying babies. He understood the outcome but only looked at them as the end result of cf.

My nephew was having problems and they were talking cf. My dad said in front of the boys he's normal there's nothing wrong with him he isn't gonna die. Yeah not too happy about that one. Mid that little rant my oldest said I have cf.

Their dad calls them f***ed up and whines about he doesn't deserve it.

Really like most parents I could keep going on and on. We've all heard the smart things people say. I just ignore it all. Yes I know it's hard sometimes can't be done. But really it's the only thing you can do.

Others will come to grips at some point. Just not all of them. Have to tell them what you can and wait it out. Really the only thing you can do is inform them and wait it out.
 
2

2sickkids

Guest
It's kinda one of those things that goes with cf. Few examples:

When they were younger my parents told my grandparents they had asthma and would get better. Oh I didn't enjoy explaining to them what cf is.

My brother used to call them as dying babies. He understood the outcome but only looked at them as the end result of cf.

My nephew was having problems and they were talking cf. My dad said in front of the boys he's normal there's nothing wrong with him he isn't gonna die. Yeah not too happy about that one. Mid that little rant my oldest said I have cf.

Their dad calls them f***ed up and whines about he doesn't deserve it.

Really like most parents I could keep going on and on. We've all heard the smart things people say. I just ignore it all. Yes I know it's hard sometimes can't be done. But really it's the only thing you can do.

Others will come to grips at some point. Just not all of them. Have to tell them what you can and wait it out. Really the only thing you can do is inform them and wait it out.
 
2

2sickkids

Guest
It's kinda one of those things that goes with cf. Few examples:

When they were younger my parents told my grandparents they had asthma and would get better. Oh I didn't enjoy explaining to them what cf is.

My brother used to call them as dying babies. He understood the outcome but only looked at them as the end result of cf.

My nephew was having problems and they were talking cf. My dad said in front of the boys he's normal there's nothing wrong with him he isn't gonna die. Yeah not too happy about that one. Mid that little rant my oldest said I have cf.

Their dad calls them f***ed up and whines about he doesn't deserve it.

Really like most parents I could keep going on and on. We've all heard the smart things people say. I just ignore it all. Yes I know it's hard sometimes can't be done. But really it's the only thing you can do.

Others will come to grips at some point. Just not all of them. Have to tell them what you can and wait it out. Really the only thing you can do is inform them and wait it out.
 
2

2sickkids

Guest
It's kinda one of those things that goes with cf. Few examples:

When they were younger my parents told my grandparents they had asthma and would get better. Oh I didn't enjoy explaining to them what cf is.

My brother used to call them as dying babies. He understood the outcome but only looked at them as the end result of cf.

My nephew was having problems and they were talking cf. My dad said in front of the boys he's normal there's nothing wrong with him he isn't gonna die. Yeah not too happy about that one. Mid that little rant my oldest said I have cf.

Their dad calls them f***ed up and whines about he doesn't deserve it.

Really like most parents I could keep going on and on. We've all heard the smart things people say. I just ignore it all. Yes I know it's hard sometimes can't be done. But really it's the only thing you can do.

Others will come to grips at some point. Just not all of them. Have to tell them what you can and wait it out. Really the only thing you can do is inform them and wait it out.
 
2

2sickkids

Guest
It's kinda one of those things that goes with cf. Few examples:
<br />
<br /> When they were younger my parents told my grandparents they had asthma and would get better. Oh I didn't enjoy explaining to them what cf is.
<br />
<br />My brother used to call them as dying babies. He understood the outcome but only looked at them as the end result of cf.
<br />
<br /> My nephew was having problems and they were talking cf. My dad said in front of the boys he's normal there's nothing wrong with him he isn't gonna die. Yeah not too happy about that one. Mid that little rant my oldest said I have cf.
<br />
<br /> Their dad calls them f***ed up and whines about he doesn't deserve it.
<br />
<br /> Really like most parents I could keep going on and on. We've all heard the smart things people say. I just ignore it all. Yes I know it's hard sometimes can't be done. But really it's the only thing you can do.
<br />
<br /> Others will come to grips at some point. Just not all of them. Have to tell them what you can and wait it out. Really the only thing you can do is inform them and wait it out.
 
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