Hi Melissa, if you need a chat I am around. I have an eight year old son wcf. It can be very lonely and other parents do not understand about all the time it takes to keep our kids healthy ( you will get a reputation for not volunteering for everything lol ) I have found everyone here funny, gracious and never judgemental. Hope you find a pal !
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Hi Melissa, if you need a chat I am around. I have an eight year old son wcf. It can be very lonely and other parents do not understand about all the time it takes to keep our kids healthy ( you will get a reputation for not volunteering for everything lol ) I have found everyone here funny, gracious and never judgemental. Hope you find a pal !
Hi Melissa, if you need a chat I am around. I have an eight year old son wcf. It can be very lonely and other parents do not understand about all the time it takes to keep our kids healthy ( you will get a reputation for not volunteering for everything lol ) I have found everyone here funny, gracious and never judgemental. Hope you find a pal !
Hi Melissa, if you need a chat I am around. I have an eight year old son wcf. It can be very lonely and other parents do not understand about all the time it takes to keep our kids healthy ( you will get a reputation for not volunteering for everything lol ) I have found everyone here funny, gracious and never judgemental. Hope you find a pal !
Hi Melissa, if you need a chat I am around. I have an eight year old son wcf. It can be very lonely and other parents do not understand about all the time it takes to keep our kids healthy ( you will get a reputation for not volunteering for everything lol ) I have found everyone here funny, gracious and never judgemental. Hope you find a pal !
V
vicsmom
Guest
Hi, I'm new my daughter is 14, she was diagnosed when she was 7. It's hard. Sometimes, most of the time I feel guilty that she got this disease from both her father and myself. I've never told anyone this. Really don't know anyone around where I'm from that has a child with cf. Does anyone else feel this way, or am I just being selfish.
V
vicsmom
Guest
Hi, I'm new my daughter is 14, she was diagnosed when she was 7. It's hard. Sometimes, most of the time I feel guilty that she got this disease from both her father and myself. I've never told anyone this. Really don't know anyone around where I'm from that has a child with cf. Does anyone else feel this way, or am I just being selfish.
V
vicsmom
Guest
Hi, I'm new my daughter is 14, she was diagnosed when she was 7. It's hard. Sometimes, most of the time I feel guilty that she got this disease from both her father and myself. I've never told anyone this. Really don't know anyone around where I'm from that has a child with cf. Does anyone else feel this way, or am I just being selfish.
V
vicsmom
Guest
Hi, I'm new my daughter is 14, she was diagnosed when she was 7. It's hard. Sometimes, most of the time I feel guilty that she got this disease from both her father and myself. I've never told anyone this. Really don't know anyone around where I'm from that has a child with cf. Does anyone else feel this way, or am I just being selfish.
V
vicsmom
Guest
Hi, I'm new my daughter is 14, she was diagnosed when she was 7. It's hard. Sometimes, most of the time I feel guilty that she got this disease from both her father and myself. I've never told anyone this. Really don't know anyone around where I'm from that has a child with cf. Does anyone else feel this way, or am I just being selfish.
janddburke
New member
Hello! my name is Debbie and I'm the mom to Jessica 12yo with CF.
she was diagnosed at 5 months.
She's great!
right now her symptoms are very mild but we have had a few scares.
Jess plays soccer on the town's 'travel' team and she's been known to cough up mucho gunk after practices. way better than the vest with which she doesn't move much.
We have an appointment at the clinic next week and I know the thing they are going to harp on the most is her weight. she's only around 17% BMI for her height/weight.
keep your fingers crossed that we can get her PFT's back to the 90+% range (have been running 85-87)
Take care,
Debbie
she was diagnosed at 5 months.
She's great!
right now her symptoms are very mild but we have had a few scares.
Jess plays soccer on the town's 'travel' team and she's been known to cough up mucho gunk after practices. way better than the vest with which she doesn't move much.
We have an appointment at the clinic next week and I know the thing they are going to harp on the most is her weight. she's only around 17% BMI for her height/weight.
keep your fingers crossed that we can get her PFT's back to the 90+% range (have been running 85-87)
Take care,
Debbie
janddburke
New member
Hello! my name is Debbie and I'm the mom to Jessica 12yo with CF.
she was diagnosed at 5 months.
She's great!
right now her symptoms are very mild but we have had a few scares.
Jess plays soccer on the town's 'travel' team and she's been known to cough up mucho gunk after practices. way better than the vest with which she doesn't move much.
We have an appointment at the clinic next week and I know the thing they are going to harp on the most is her weight. she's only around 17% BMI for her height/weight.
keep your fingers crossed that we can get her PFT's back to the 90+% range (have been running 85-87)
Take care,
Debbie
she was diagnosed at 5 months.
She's great!
right now her symptoms are very mild but we have had a few scares.
Jess plays soccer on the town's 'travel' team and she's been known to cough up mucho gunk after practices. way better than the vest with which she doesn't move much.
We have an appointment at the clinic next week and I know the thing they are going to harp on the most is her weight. she's only around 17% BMI for her height/weight.
keep your fingers crossed that we can get her PFT's back to the 90+% range (have been running 85-87)
Take care,
Debbie
janddburke
New member
Hello! my name is Debbie and I'm the mom to Jessica 12yo with CF.
she was diagnosed at 5 months.
She's great!
right now her symptoms are very mild but we have had a few scares.
Jess plays soccer on the town's 'travel' team and she's been known to cough up mucho gunk after practices. way better than the vest with which she doesn't move much.
We have an appointment at the clinic next week and I know the thing they are going to harp on the most is her weight. she's only around 17% BMI for her height/weight.
keep your fingers crossed that we can get her PFT's back to the 90+% range (have been running 85-87)
Take care,
Debbie
she was diagnosed at 5 months.
She's great!
right now her symptoms are very mild but we have had a few scares.
Jess plays soccer on the town's 'travel' team and she's been known to cough up mucho gunk after practices. way better than the vest with which she doesn't move much.
We have an appointment at the clinic next week and I know the thing they are going to harp on the most is her weight. she's only around 17% BMI for her height/weight.
keep your fingers crossed that we can get her PFT's back to the 90+% range (have been running 85-87)
Take care,
Debbie
janddburke
New member
Hello! my name is Debbie and I'm the mom to Jessica 12yo with CF.
she was diagnosed at 5 months.
She's great!
right now her symptoms are very mild but we have had a few scares.
Jess plays soccer on the town's 'travel' team and she's been known to cough up mucho gunk after practices. way better than the vest with which she doesn't move much.
We have an appointment at the clinic next week and I know the thing they are going to harp on the most is her weight. she's only around 17% BMI for her height/weight.
keep your fingers crossed that we can get her PFT's back to the 90+% range (have been running 85-87)
Take care,
Debbie
she was diagnosed at 5 months.
She's great!
right now her symptoms are very mild but we have had a few scares.
Jess plays soccer on the town's 'travel' team and she's been known to cough up mucho gunk after practices. way better than the vest with which she doesn't move much.
We have an appointment at the clinic next week and I know the thing they are going to harp on the most is her weight. she's only around 17% BMI for her height/weight.
keep your fingers crossed that we can get her PFT's back to the 90+% range (have been running 85-87)
Take care,
Debbie
janddburke
New member
Hello! my name is Debbie and I'm the mom to Jessica 12yo with CF.
she was diagnosed at 5 months.
She's great!
right now her symptoms are very mild but we have had a few scares.
Jess plays soccer on the town's 'travel' team and she's been known to cough up mucho gunk after practices. way better than the vest with which she doesn't move much.
We have an appointment at the clinic next week and I know the thing they are going to harp on the most is her weight. she's only around 17% BMI for her height/weight.
keep your fingers crossed that we can get her PFT's back to the 90+% range (have been running 85-87)
Take care,
Debbie
she was diagnosed at 5 months.
She's great!
right now her symptoms are very mild but we have had a few scares.
Jess plays soccer on the town's 'travel' team and she's been known to cough up mucho gunk after practices. way better than the vest with which she doesn't move much.
We have an appointment at the clinic next week and I know the thing they are going to harp on the most is her weight. she's only around 17% BMI for her height/weight.
keep your fingers crossed that we can get her PFT's back to the 90+% range (have been running 85-87)
Take care,
Debbie