Mother's day

R

Rebjane

Super Moderator
For Mother's day I really wanted to have a regular day.  Coffee made by the kids, a card.
 
My son(no CF) is on a travel soccer team.  It is VERY hard for us to go to his away games all as a family because of the hour and a half drive BOTH ways and 2-3 hours of game time....We just can not fit it in with all my daughter's health needs, plus she had been really sick this winter.
 
For mother's day we figured it out.....I am so grateful .  My Dad had bought a "converter" for my daughter to do her VEST off our car battery....  She could do her neb off it as well.  We drove as a family to  the game,sat outside all day..At our usual Neb and VEST time, we took my daughter to the car, my husband hooked up the converter..And she vested in the car per her usual schedule...then back off to watch soccer.....IT MADE MY DAY!!!!!!!!  It made me feel so normal.  I was so happy to be able to watch my non CF child play soccer.. Alot of times my husband and I divide and conquer meaning he'll take my son to his game and I'll stay home with my CF child and do her treatments and her activites....It doesn't seem fair to my non CF child..... But Mother's day, we did it. That was the greatest gift..But I think we freaked out a few people in the parking lot.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Rebjane

Super Moderator
For Mother's day I really wanted to have a regular day. Coffee made by the kids, a card.

My son(no CF) is on a travel soccer team. It is VERY hard for us to go to his away games all as a family because of the hour and a half drive BOTH ways and 2-3 hours of game time....We just can not fit it in with all my daughter's health needs, plus she had been really sick this winter.

For mother's day we figured it out.....I am so grateful . My Dad had bought a "converter" for my daughter to do her VEST off our car battery.... She could do her neb off it as well. We drove as a family to the game,sat outside all day..At our usual Neb and VEST time, we took my daughter to the car, my husband hooked up the converter..And she vested in the car per her usual schedule...then back off to watch soccer.....IT MADE MY DAY!!!!!!!! It made me feel so normal. I was so happy to be able to watch my non CF child play soccer.. Alot of times my husband and I divide and conquer meaning he'll take my son to his game and I'll stay home with my CF child and do her treatments and her activites....It doesn't seem fair to my non CF child..... But Mother's day, we did it. That was the greatest gift..But I think we freaked out a few people in the parking lot.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Rebjane

Super Moderator
<p>For Mother's day I really wanted to have a regular day. Coffee made by the kids, a card.
<p>
<p>My son(no CF) is on a travel soccer team. It is VERY hard for us to go to his away games all as a family because of the hour and a half drive BOTH ways and 2-3 hours of game time....We just can not fit it in with all my daughter's health needs, plus she had been really sick this winter.
<p>
<p>For mother's day we figured it out.....I am so grateful . My Dad had bought a "converter" for my daughter to do her VEST off our car battery.... She could do her neb off it as well. We drove as a family to the game,sat outside all day..At our usual Neb and VEST time, we took my daughter to the car, my husband hooked up the converter..And she vested in the car per her usual schedule...then back off to watch soccer.....IT MADE MY DAY!!!!!!!! It made me feel so normal. I was so happy to be able to watch my non CF child play soccer.. Alot of times my husband and I divide and conquer meaning he'll take my son to his game and I'll stay home with my CF child and do her treatments and her activites....It doesn't seem fair to my non CF child..... But Mother's day, we did it. That was the greatest gift..But I think we freaked out a few people in the parking lot.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

Mommafirst

Guest
AWESOME!! How hard was it to install the converter? I've been thinking about doing this too. We don't spend a lot of time in the car. . .not enough time in the morning commutes to do treatments in the car, but it would be awesomely helpful for all our family road trips that always seem to coincide with a treatment time.
 
M

Mommafirst

Guest
AWESOME!! How hard was it to install the converter? I've been thinking about doing this too. We don't spend a lot of time in the car. . .not enough time in the morning commutes to do treatments in the car, but it would be awesomely helpful for all our family road trips that always seem to coincide with a treatment time.
 
M

Mommafirst

Guest
AWESOME!! How hard was it to install the converter? I've been thinking about doing this too. We don't spend a lot of time in the car. . .not enough time in the morning commutes to do treatments in the car, but it would be awesomely helpful for all our family road trips that always seem to coincide with a treatment time.
 
R

rubyroselee

New member
What a great day! Isn't it great to feel "normal" once in awhile? And I'm sure your son was thrilled you were all there to see him play soccer. Great story!
 
R

rubyroselee

New member
What a great day! Isn't it great to feel "normal" once in awhile? And I'm sure your son was thrilled you were all there to see him play soccer. Great story!
 
R

rubyroselee

New member
What a great day! Isn't it great to feel "normal" once in awhile? And I'm sure your son was thrilled you were all there to see him play soccer. Great story!
 
C

CJPsMom

New member
The converter is a must and super easy. All you have to do is plug it into the cigarette lighter. If you have an SUV, most of them now have lighter in the back seat as well. It was a life saver for us on a recent road trip. In fact, our converter died on the trip and we bought a new, more powerful one because we use it so much.

I highly recommend getting one!
 
C

CJPsMom

New member
The converter is a must and super easy. All you have to do is plug it into the cigarette lighter. If you have an SUV, most of them now have lighter in the back seat as well. It was a life saver for us on a recent road trip. In fact, our converter died on the trip and we bought a new, more powerful one because we use it so much.

I highly recommend getting one!
 
C

CJPsMom

New member
The converter is a must and super easy. All you have to do is plug it into the cigarette lighter. If you have an SUV, most of them now have lighter in the back seat as well. It was a life saver for us on a recent road trip. In fact, our converter died on the trip and we bought a new, more powerful one because we use it so much.
<br />
<br />I highly recommend getting one!
 
You must log in or register to reply here.
Top