Mucomyst

[my65roses4me]

<span style=" font-size: x-small;">Can you please clarify for me
what mucomyst is like. I heard it smells real bad. Does it taste
bad too? Does it help you? I read Amy's blog about Dr Warwick
believing it helps more than Pulmozyme. So I was wondering if
anyone could enlighten us as to how it is taking it.<br>

 

[my65roses4me]

<span style=" font-size: x-small;">Can you please clarify for me
what mucomyst is like. I heard it smells real bad. Does it taste
bad too? Does it help you? I read Amy's blog about Dr Warwick
believing it helps more than Pulmozyme. So I was wondering if
anyone could enlighten us as to how it is taking it.<br>

 

[my65roses4me]

<span style=" font-size: x-small;">Can you please clarify for me
what mucomyst is like. I heard it smells real bad. Does it taste
bad too? Does it help you? I read Amy's blog about Dr Warwick
believing it helps more than Pulmozyme. So I was wondering if
anyone could enlighten us as to how it is taking it.<br>

 

[anonymous]

We took my kids to see Dr. Warwick last year. Sophia has been using mucomyst for a year now. She also takes hypertonic saline in the morning and pulmozyme in the night. I am beginning to think that she shouldn't be on all three of these. Anyway, we are headed back to Minn in November, so I will ask if it might be doing more harm than good. Anyway, as a mom I do not notice the smell, nor does it cause a problem for our computer equipment like I had read it might.
But, my daughter does not like the smell/taste. She complains for the first 15 seconds or so, then does the treatment fine. Basically, mucomyst is albuterol, sodium chromolyn and N-Acetyl Cysteine all combined in the neb cup. Sophia inhales it for the last 20 minutes of her vest.

It really has helped Sophia's night coughing. She had been coughing for a few weeks when I started giving her the mucomyst at bed time. Every since that first night, she doesn't wake up coughing. The four or five times we didn't give the mucomyst this year, she woke up coughing. Interesting.

Sharon, mom of Sophia, 5 and Jack, 3 both with cf

 

[anonymous]

We took my kids to see Dr. Warwick last year. Sophia has been using mucomyst for a year now. She also takes hypertonic saline in the morning and pulmozyme in the night. I am beginning to think that she shouldn't be on all three of these. Anyway, we are headed back to Minn in November, so I will ask if it might be doing more harm than good. Anyway, as a mom I do not notice the smell, nor does it cause a problem for our computer equipment like I had read it might.
But, my daughter does not like the smell/taste. She complains for the first 15 seconds or so, then does the treatment fine. Basically, mucomyst is albuterol, sodium chromolyn and N-Acetyl Cysteine all combined in the neb cup. Sophia inhales it for the last 20 minutes of her vest.

It really has helped Sophia's night coughing. She had been coughing for a few weeks when I started giving her the mucomyst at bed time. Every since that first night, she doesn't wake up coughing. The four or five times we didn't give the mucomyst this year, she woke up coughing. Interesting.

Sharon, mom of Sophia, 5 and Jack, 3 both with cf

 

[anonymous]

We took my kids to see Dr. Warwick last year. Sophia has been using mucomyst for a year now. She also takes hypertonic saline in the morning and pulmozyme in the night. I am beginning to think that she shouldn't be on all three of these. Anyway, we are headed back to Minn in November, so I will ask if it might be doing more harm than good. Anyway, as a mom I do not notice the smell, nor does it cause a problem for our computer equipment like I had read it might.
But, my daughter does not like the smell/taste. She complains for the first 15 seconds or so, then does the treatment fine. Basically, mucomyst is albuterol, sodium chromolyn and N-Acetyl Cysteine all combined in the neb cup. Sophia inhales it for the last 20 minutes of her vest.

It really has helped Sophia's night coughing. She had been coughing for a few weeks when I started giving her the mucomyst at bed time. Every since that first night, she doesn't wake up coughing. The four or five times we didn't give the mucomyst this year, she woke up coughing. Interesting.

Sharon, mom of Sophia, 5 and Jack, 3 both with cf

 

[anonymous]

I take it. I personally have never noticed the smell and it doesn't taste any worse than most of my other nebs.

I use 3CCs of the 10%

I have noticed the smell and taste varies with the brand but its never been anything like I've read of heard described. I think Intal smells worse!

 

[anonymous]

I take it. I personally have never noticed the smell and it doesn't taste any worse than most of my other nebs.

I use 3CCs of the 10%

I have noticed the smell and taste varies with the brand but its never been anything like I've read of heard described. I think Intal smells worse!

 

[anonymous]

I take it. I personally have never noticed the smell and it doesn't taste any worse than most of my other nebs.

I use 3CCs of the 10%

I have noticed the smell and taste varies with the brand but its never been anything like I've read of heard described. I think Intal smells worse!

 

[BoardkilL]

I've been using mucomyst (20%) since, as long as I can remember.
I've used Ventoline and Mucomyst with a nebuliser since I was
a little kid, and it works great. I cut down on the nebuliser quite
a few years ago, cause I'm lazy and it takes a long time. Now I use
Mucomyst  tablets in water, and heaps of them (on tube of 25
every two days, with one litre of water).<br>
<br>
The nebuliser version has some taste, but it's not bad, it's just
there. I've used both that and Pulmozyme, and they work
differently. Without the Mucomyst I'd be well and truly stuffed.
Used along with Ventoline (inhaler with the tablets or mixed in the
nebiluser with mucomyst) it works very well to clear up any goofy,
sticky mucus.

 

[BoardkilL]

I've been using mucomyst (20%) since, as long as I can remember.
I've used Ventoline and Mucomyst with a nebuliser since I was
a little kid, and it works great. I cut down on the nebuliser quite
a few years ago, cause I'm lazy and it takes a long time. Now I use
Mucomyst  tablets in water, and heaps of them (on tube of 25
every two days, with one litre of water).<br>
<br>
The nebuliser version has some taste, but it's not bad, it's just
there. I've used both that and Pulmozyme, and they work
differently. Without the Mucomyst I'd be well and truly stuffed.
Used along with Ventoline (inhaler with the tablets or mixed in the
nebiluser with mucomyst) it works very well to clear up any goofy,
sticky mucus.

 

[BoardkilL]

I've been using mucomyst (20%) since, as long as I can remember.
I've used Ventoline and Mucomyst with a nebuliser since I was
a little kid, and it works great. I cut down on the nebuliser quite
a few years ago, cause I'm lazy and it takes a long time. Now I use
Mucomyst  tablets in water, and heaps of them (on tube of 25
every two days, with one litre of water).<br>
<br>
The nebuliser version has some taste, but it's not bad, it's just
there. I've used both that and Pulmozyme, and they work
differently. Without the Mucomyst I'd be well and truly stuffed.
Used along with Ventoline (inhaler with the tablets or mixed in the
nebiluser with mucomyst) it works very well to clear up any goofy,
sticky mucus.

 

[skh]

My daughter has been using it for the past 3 yrs (since her first visit to Dr. Milla at the U of M) and she does complain about the smell. It has most definitely helped her.

 

[skh]

My daughter has been using it for the past 3 yrs (since her first visit to Dr. Milla at the U of M) and she does complain about the smell. It has most definitely helped her.

 

[skh]

My daughter has been using it for the past 3 yrs (since her first visit to Dr. Milla at the U of M) and she does complain about the smell. It has most definitely helped her.

 

[mare]

What are mucomyst tablets? Never heard of those. I don't think we have that in the US. I had to stop using in in the nebulizer as it irritated my Asthma and I had a couple of bad spells that put me in the hospital.

 

[mare]

What are mucomyst tablets? Never heard of those. I don't think we have that in the US. I had to stop using in in the nebulizer as it irritated my Asthma and I had a couple of bad spells that put me in the hospital.

 

[mare]

What are mucomyst tablets? Never heard of those. I don't think we have that in the US. I had to stop using in in the nebulizer as it irritated my Asthma and I had a couple of bad spells that put me in the hospital.

 

[BoardkilL]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mare</b></i> What are mucomyst
tablets? Never heard of those. I don't think we have that in the
US. I had to stop using in in the nebulizer as it irritated my
Asthma and I had a couple of bad spells that put me in the
hospital.</end quote></div><br>
<br>
They're tablets that dissolve in water, then you drink it. I
usually mix a 1 litre bottle with water and a tube full (25
tablets) once a day or every other day and just drink it throughout
the day.<br>
<br>
When I came to Australia and mentioned them to the doctor down here
he told me they didn't have them here either. I've got a link to
the norwegian product site, at least it has some pics. <a href=
"http://www.astrazeneca.no/preparater/mucomyst_tabletter_bilder.html">
Mucomyst Tablets (Norway)</a> They're 200mg ones, same strength as
the nebuliser stuff (200mg/ml = 20% I guess). They're great, and I
usually don't have to use the nebuliser nearly as much when I drink
that stuff. In combination with Venotline puffers they're even
better.<br>
<br>
They taste kinda like orange pop, bubbles and all. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[BoardkilL]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mare</b></i> What are mucomyst
tablets? Never heard of those. I don't think we have that in the
US. I had to stop using in in the nebulizer as it irritated my
Asthma and I had a couple of bad spells that put me in the
hospital.</end quote></div><br>
<br>
They're tablets that dissolve in water, then you drink it. I
usually mix a 1 litre bottle with water and a tube full (25
tablets) once a day or every other day and just drink it throughout
the day.<br>
<br>
When I came to Australia and mentioned them to the doctor down here
he told me they didn't have them here either. I've got a link to
the norwegian product site, at least it has some pics. <a href=
"http://www.astrazeneca.no/preparater/mucomyst_tabletter_bilder.html">
Mucomyst Tablets (Norway)</a> They're 200mg ones, same strength as
the nebuliser stuff (200mg/ml = 20% I guess). They're great, and I
usually don't have to use the nebuliser nearly as much when I drink
that stuff. In combination with Venotline puffers they're even
better.<br>
<br>
They taste kinda like orange pop, bubbles and all. <img src="i/expressions/face-icon-small-smile.gif" border="0">