Thank you all for replying.
What the doctor said was that my granddaughter may have a mutated form of CF and that one of the side effects is the failure to gain weight. She stated that CeCe would have a longer life span, however, it wouldn't be as long say someone without CF. What that means, I don't know. Will she live to be 60-75, who knows? I have more questions and hopefully once CeCe has the sweat test done and my daughter requests DNA testing we will know more.
The doctor did say they always prepare parents for the worst case scenerio because that's their job and if CeCe's results come back, not what we were all expecting, let's say better, than we have been prepared.
I'm just looking for answers to some of these questions in hopes that I can enlighten my daughter and son-in-law so they are prepared in case CeCe does test positive for some form of CF.
None of us have ever had anything like this in our family. We have diabetes, but that's about it, except the complications that come with old age. On my dad's side, he's 61, my great-grandmother lived to be 90, his mother lived to be 87 and his father lived to be 85. On my mom's side, she's 61 as well, my grandmother is still alive and kicking at 93, my grandfather passed at 87, both my aunts are still alive and are in their 70's.
We currently have five (5) generations in our family: My grandmother, mother, myself, my daughter and my granddaughter. So having to accept that one of ours is sick, at such an early age, is hard. There are lot of prayers and family togetherness to work through this, on my side, and I can only hope if CeCe does have CF her other grandmother, father's side, comes together as a support group for the kids.