I just got home after seeing my doc earlier today. I asked him if he would do a DNA test to see what mutations I have because everyone here seems to know. Is it necessary to know? Does it help with treatment? Also, is it routine to check the spouse in case you want kids? He said he would check with the insurance company but I would think that test ing the spouse for a carrier gene would be routine. I know fertility is an issue with men but I am fertile. Just wondering because he said we just treat the symptoms and there is no need to know the mutations you have.