My Appointment Thursday :)

dramamama

New member
Hi!
Those pfts are amazing!!!!

I have one question....when is the last time they were that high? What would you consider your normal?

congratulations!!!!
mandy
 

dramamama

New member
Hi!
Those pfts are amazing!!!!

I have one question....when is the last time they were that high? What would you consider your normal?

congratulations!!!!
mandy
 

babycakes

New member
Hey good job! I don't really understand alot of this, as my little one hasn't had these tests yet. But could someone please tell me what hypertonic saline is , what is it for, how do you get it / use it.
Thanks.
 

babycakes

New member
Hey good job! I don't really understand alot of this, as my little one hasn't had these tests yet. But could someone please tell me what hypertonic saline is , what is it for, how do you get it / use it.
Thanks.
 

babycakes

New member
Hey good job! I don't really understand alot of this, as my little one hasn't had these tests yet. But could someone please tell me what hypertonic saline is , what is it for, how do you get it / use it.
Thanks.
 

princessjdc

New member
I dont remember when my pfts were that high last time, I would guess when I was a lot younger like maybe early teens. I didnt start knowing/ understanding and asking about my pfts until here recently, but Iam curious myself on how old I was when I had good pfts like that.

Hypertonic Saline is an all natural med. all it is is salt and water mixed a certain way and all you do is inhale it with a neb machine using the neb cups. I get it from my CF pharmacy they mix it just right for me and all I have to do is put it in the neb cup. Others have to mix it themselves. Hypertonic Saline raises pfts and it gives the lungs that lubrication that it needs to move the mucous around and out of the lungs, since our lungs are dry any ways. It really helps those that has pfts in high 50s or 60s and higher. I started at 65% and finally got to 90%. Maybe someone else can help explain it better than I can, hope I helped some. You can also do a search on Hypertonic Saline too.
 

princessjdc

New member
I dont remember when my pfts were that high last time, I would guess when I was a lot younger like maybe early teens. I didnt start knowing/ understanding and asking about my pfts until here recently, but Iam curious myself on how old I was when I had good pfts like that.

Hypertonic Saline is an all natural med. all it is is salt and water mixed a certain way and all you do is inhale it with a neb machine using the neb cups. I get it from my CF pharmacy they mix it just right for me and all I have to do is put it in the neb cup. Others have to mix it themselves. Hypertonic Saline raises pfts and it gives the lungs that lubrication that it needs to move the mucous around and out of the lungs, since our lungs are dry any ways. It really helps those that has pfts in high 50s or 60s and higher. I started at 65% and finally got to 90%. Maybe someone else can help explain it better than I can, hope I helped some. You can also do a search on Hypertonic Saline too.
 

princessjdc

New member
I dont remember when my pfts were that high last time, I would guess when I was a lot younger like maybe early teens. I didnt start knowing/ understanding and asking about my pfts until here recently, but Iam curious myself on how old I was when I had good pfts like that.

Hypertonic Saline is an all natural med. all it is is salt and water mixed a certain way and all you do is inhale it with a neb machine using the neb cups. I get it from my CF pharmacy they mix it just right for me and all I have to do is put it in the neb cup. Others have to mix it themselves. Hypertonic Saline raises pfts and it gives the lungs that lubrication that it needs to move the mucous around and out of the lungs, since our lungs are dry any ways. It really helps those that has pfts in high 50s or 60s and higher. I started at 65% and finally got to 90%. Maybe someone else can help explain it better than I can, hope I helped some. You can also do a search on Hypertonic Saline too.
 

babycakes

New member
Thanks Jennifer
That helps alot! Did you use it as a kid?? It would be safe for a 3 yr old, eh? Do you use it year round or just this time or year?? Sorry for all the???? Just trying to get it right ,you know! Thanks!<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

babycakes

New member
Thanks Jennifer
That helps alot! Did you use it as a kid?? It would be safe for a 3 yr old, eh? Do you use it year round or just this time or year?? Sorry for all the???? Just trying to get it right ,you know! Thanks!<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

babycakes

New member
Thanks Jennifer
That helps alot! Did you use it as a kid?? It would be safe for a 3 yr old, eh? Do you use it year round or just this time or year?? Sorry for all the???? Just trying to get it right ,you know! Thanks!<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

dude

New member
princess jdc what have you been doing to get your fev 1 so high from just 65%
apart from that steri solution
ps them results are short of amazing i didnt think it possible till i saw your chart
 

dude

New member
princess jdc what have you been doing to get your fev 1 so high from just 65%
apart from that steri solution
ps them results are short of amazing i didnt think it possible till i saw your chart
 

dude

New member
princess jdc what have you been doing to get your fev 1 so high from just 65%
apart from that steri solution
ps them results are short of amazing i didnt think it possible till i saw your chart
 

princessjdc

New member
babycakes I started to using the hypertonic saline just last year, on the chart you can tell when I started it cause my pfts were a lot higher and that was exactly one year ago this month. I would ask the doc to see if it is ok for your 3yr old.

dude, the hypertonic saline is really the only thing that has helped a bunch, plus me doing my treatments and meds every day and not missing any of it also helped. Exercising too, I just started jump roping which will be replaced with an eliptical machine. I hope that answered your question.
 

princessjdc

New member
babycakes I started to using the hypertonic saline just last year, on the chart you can tell when I started it cause my pfts were a lot higher and that was exactly one year ago this month. I would ask the doc to see if it is ok for your 3yr old.

dude, the hypertonic saline is really the only thing that has helped a bunch, plus me doing my treatments and meds every day and not missing any of it also helped. Exercising too, I just started jump roping which will be replaced with an eliptical machine. I hope that answered your question.
 

princessjdc

New member
babycakes I started to using the hypertonic saline just last year, on the chart you can tell when I started it cause my pfts were a lot higher and that was exactly one year ago this month. I would ask the doc to see if it is ok for your 3yr old.

dude, the hypertonic saline is really the only thing that has helped a bunch, plus me doing my treatments and meds every day and not missing any of it also helped. Exercising too, I just started jump roping which will be replaced with an eliptical machine. I hope that answered your question.
 

Jem

New member
Awesome! Awesome! Awesome! Keep up the awesome work Jennifer!
Congratulations!

I <img src="i/expressions/heart.gif" border="0"> Hypertonic Saline too!
 

Jem

New member
Awesome! Awesome! Awesome! Keep up the awesome work Jennifer!
Congratulations!

I <img src="i/expressions/heart.gif" border="0"> Hypertonic Saline too!
 

Jem

New member
Awesome! Awesome! Awesome! Keep up the awesome work Jennifer!
Congratulations!

I <img src="i/expressions/heart.gif" border="0"> Hypertonic Saline too!
 
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