Yes it is possible to have a weight problem with CF. I have always been a normal size person until I hit 30 and then eposides of prednisone treatment helped me gain weight. Now I'm between 220 & 230 with a BMI of 35.5 - miminum transplant BMI @ Loyola in Chicago is 30. I"ve been struggling for a year and a half but have only lost 10 pounds. I'm of German descent and very large boned...at 170 I start to look to thin. The least I've weighted since my 30s was 135 and that was after my first 'real' bout with pancretitis - losing 50 pounds in 8 weeks. I looked terrible when that was over!
I don't eat all that badly in the greater picture, but do have a portion control problem. I eat a lot on the run and I know that's not good for me but I sledom like to come home after a day in the office and cook a whole meal for myself. My big meal is generally lunch and that's out - forget taking time in the mornings to fix my lunch, I'm doing treatments and trying to get out the door on time!
I still have some problems with pancretitis now and then. I don't take perscription enzymes - they seem to constipate me so I take something called DigestAll which has many of the enzymes in it, just not at as high levels.
Teach your kids HEALTHY, regularly-spaced eating and snacking habits, let nature take it's course and they'll hopefully do well. I do seem to get sick faster if I weigh less and that makes me afraid to lose weight to fast, which of course leads to loss of lung functions. For me, it's a horrible cycle - one that I can't seem to break very easily. The scary part is that I've been told I'd be passed over for a transplant even if it was the 'perfect' set of lungs and I wasn't down to their maximum weight..... Makes it even more stressful! Did I mention that I know I'm a stress eater? Working on trying to control that. And weight loss drugs haven't worked. My body likes this weight range so I guess it's futile to fight it.