I have an 18 month old girl with CF. She is a beautiful, healthy little girl.
At first, there were a lot of bad days -- days where the words "cystic fibrosis" wrung through my head like bells on a church tower. Now there are mostly good days, but there are still some bad. CF never goes away, but we learn to live with it. Things have come a long way for kids with CF. We are lucky to live in this day and age.
Our little ones are special -- God has given them for a reason. We have a choice to make -- We can choose to see ourselves as victims and let CF run our lives or we can choose to be strong and realize that we have a very unique opportunity to see how precious this life is. We are given the opportunity to live for today -- knowing that we don't know what tomorrow will bring.
Things do get easier - I promise. Please pm me if you need anything at all.