My daughter is only 9 months old

rpcvchina

New member
You may want to see if you qualify for social security benefits for health needs. You can check with your doctor to get in touch with a social worker, or even in the phone book for things like, "infant and child early intervention." You may even qualify for some preschool paid for.
 

rpcvchina

New member
You may want to see if you qualify for social security benefits for health needs. You can check with your doctor to get in touch with a social worker, or even in the phone book for things like, "infant and child early intervention." You may even qualify for some preschool paid for.
 

rpcvchina

New member
You may want to see if you qualify for social security benefits for health needs. You can check with your doctor to get in touch with a social worker, or even in the phone book for things like, "infant and child early intervention." You may even qualify for some preschool paid for.
 

rpcvchina

New member
You may want to see if you qualify for social security benefits for health needs. You can check with your doctor to get in touch with a social worker, or even in the phone book for things like, "infant and child early intervention." You may even qualify for some preschool paid for.
 

rpcvchina

New member
You may want to see if you qualify for social security benefits for health needs. You can check with your doctor to get in touch with a social worker, or even in the phone book for things like, "infant and child early intervention." You may even qualify for some preschool paid for.
 

NancyLKF

New member
Hi. My daughter is 11 months old and was diagnosed when she was 6 days old. I am so sorry that you are having to deal with this news so close to the holidays but keep your chin up - it will get better.
When Maggie was diagnosed I couldn't see anything but CF every time I looked at her and I just cried and cried and cried. I have never felt so completely helpless. But within a couple of months, with the help of our CF center and so many people on this site I started to see my daughter and her future again. It also helped that I joined our local patient and family advisory group and meet with other moms/dads every month.
If you have any questions, please private message me or just post away on this site as I did.
By the way... what state do you live in? different states have different levels of support.
 

NancyLKF

New member
Hi. My daughter is 11 months old and was diagnosed when she was 6 days old. I am so sorry that you are having to deal with this news so close to the holidays but keep your chin up - it will get better.
When Maggie was diagnosed I couldn't see anything but CF every time I looked at her and I just cried and cried and cried. I have never felt so completely helpless. But within a couple of months, with the help of our CF center and so many people on this site I started to see my daughter and her future again. It also helped that I joined our local patient and family advisory group and meet with other moms/dads every month.
If you have any questions, please private message me or just post away on this site as I did.
By the way... what state do you live in? different states have different levels of support.
 

NancyLKF

New member
Hi. My daughter is 11 months old and was diagnosed when she was 6 days old. I am so sorry that you are having to deal with this news so close to the holidays but keep your chin up - it will get better.
When Maggie was diagnosed I couldn't see anything but CF every time I looked at her and I just cried and cried and cried. I have never felt so completely helpless. But within a couple of months, with the help of our CF center and so many people on this site I started to see my daughter and her future again. It also helped that I joined our local patient and family advisory group and meet with other moms/dads every month.
If you have any questions, please private message me or just post away on this site as I did.
By the way... what state do you live in? different states have different levels of support.
 

NancyLKF

New member
Hi. My daughter is 11 months old and was diagnosed when she was 6 days old. I am so sorry that you are having to deal with this news so close to the holidays but keep your chin up - it will get better.
When Maggie was diagnosed I couldn't see anything but CF every time I looked at her and I just cried and cried and cried. I have never felt so completely helpless. But within a couple of months, with the help of our CF center and so many people on this site I started to see my daughter and her future again. It also helped that I joined our local patient and family advisory group and meet with other moms/dads every month.
If you have any questions, please private message me or just post away on this site as I did.
By the way... what state do you live in? different states have different levels of support.
 

NancyLKF

New member
Hi. My daughter is 11 months old and was diagnosed when she was 6 days old. I am so sorry that you are having to deal with this news so close to the holidays but keep your chin up - it will get better.
<br />When Maggie was diagnosed I couldn't see anything but CF every time I looked at her and I just cried and cried and cried. I have never felt so completely helpless. But within a couple of months, with the help of our CF center and so many people on this site I started to see my daughter and her future again. It also helped that I joined our local patient and family advisory group and meet with other moms/dads every month.
<br />If you have any questions, please private message me or just post away on this site as I did.
<br />By the way... what state do you live in? different states have different levels of support.
<br />
 
K

kaylee04cassidy08

Guest
I have an 18 month old girl with CF. She is a beautiful, healthy little girl.

At first, there were a lot of bad days -- days where the words "cystic fibrosis" wrung through my head like bells on a church tower. Now there are mostly good days, but there are still some bad. CF never goes away, but we learn to live with it. Things have come a long way for kids with CF. We are lucky to live in this day and age.

Our little ones are special -- God has given them for a reason. We have a choice to make -- We can choose to see ourselves as victims and let CF run our lives or we can choose to be strong and realize that we have a very unique opportunity to see how precious this life is. We are given the opportunity to live for today -- knowing that we don't know what tomorrow will bring.

Things do get easier - I promise. Please pm me if you need anything at all.
 
K

kaylee04cassidy08

Guest
I have an 18 month old girl with CF. She is a beautiful, healthy little girl.

At first, there were a lot of bad days -- days where the words "cystic fibrosis" wrung through my head like bells on a church tower. Now there are mostly good days, but there are still some bad. CF never goes away, but we learn to live with it. Things have come a long way for kids with CF. We are lucky to live in this day and age.

Our little ones are special -- God has given them for a reason. We have a choice to make -- We can choose to see ourselves as victims and let CF run our lives or we can choose to be strong and realize that we have a very unique opportunity to see how precious this life is. We are given the opportunity to live for today -- knowing that we don't know what tomorrow will bring.

Things do get easier - I promise. Please pm me if you need anything at all.
 
K

kaylee04cassidy08

Guest
I have an 18 month old girl with CF. She is a beautiful, healthy little girl.

At first, there were a lot of bad days -- days where the words "cystic fibrosis" wrung through my head like bells on a church tower. Now there are mostly good days, but there are still some bad. CF never goes away, but we learn to live with it. Things have come a long way for kids with CF. We are lucky to live in this day and age.

Our little ones are special -- God has given them for a reason. We have a choice to make -- We can choose to see ourselves as victims and let CF run our lives or we can choose to be strong and realize that we have a very unique opportunity to see how precious this life is. We are given the opportunity to live for today -- knowing that we don't know what tomorrow will bring.

Things do get easier - I promise. Please pm me if you need anything at all.
 
K

kaylee04cassidy08

Guest
I have an 18 month old girl with CF. She is a beautiful, healthy little girl.

At first, there were a lot of bad days -- days where the words "cystic fibrosis" wrung through my head like bells on a church tower. Now there are mostly good days, but there are still some bad. CF never goes away, but we learn to live with it. Things have come a long way for kids with CF. We are lucky to live in this day and age.

Our little ones are special -- God has given them for a reason. We have a choice to make -- We can choose to see ourselves as victims and let CF run our lives or we can choose to be strong and realize that we have a very unique opportunity to see how precious this life is. We are given the opportunity to live for today -- knowing that we don't know what tomorrow will bring.

Things do get easier - I promise. Please pm me if you need anything at all.
 
K

kaylee04cassidy08

Guest
I have an 18 month old girl with CF. She is a beautiful, healthy little girl.
<br />
<br />At first, there were a lot of bad days -- days where the words "cystic fibrosis" wrung through my head like bells on a church tower. Now there are mostly good days, but there are still some bad. CF never goes away, but we learn to live with it. Things have come a long way for kids with CF. We are lucky to live in this day and age.
<br />
<br />Our little ones are special -- God has given them for a reason. We have a choice to make -- We can choose to see ourselves as victims and let CF run our lives or we can choose to be strong and realize that we have a very unique opportunity to see how precious this life is. We are given the opportunity to live for today -- knowing that we don't know what tomorrow will bring.
<br />
<br />Things do get easier - I promise. Please pm me if you need anything at all.
<br />
 

randomgirl

New member
I was actually diagnosed in my moms womb. So I've been told; my older sister was diagnosed at about 9 months also. But it's GOOD that your daughter was diagnosed early so she can be treated and feel better sooner. Best of luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

randomgirl

New member
I was actually diagnosed in my moms womb. So I've been told; my older sister was diagnosed at about 9 months also. But it's GOOD that your daughter was diagnosed early so she can be treated and feel better sooner. Best of luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

randomgirl

New member
I was actually diagnosed in my moms womb. So I've been told; my older sister was diagnosed at about 9 months also. But it's GOOD that your daughter was diagnosed early so she can be treated and feel better sooner. Best of luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

randomgirl

New member
I was actually diagnosed in my moms womb. So I've been told; my older sister was diagnosed at about 9 months also. But it's GOOD that your daughter was diagnosed early so she can be treated and feel better sooner. Best of luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

randomgirl

New member
I was actually diagnosed in my moms womb. So I've been told; my older sister was diagnosed at about 9 months also. But it's GOOD that your daughter was diagnosed early so she can be treated and feel better sooner. Best of luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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