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My daughter was just diagnosed
- Thread starter ForeverDance
- Start date
AleksandraKaczynska
New member
Hi, and welcome
<br>I was in your shoes 4 years ago and... I nowhave two beautiful girls and a wonderfull new balerina <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br>se my blog to see photos from our life - maybe it will help you get your hopes up and enjoy the magical first monents with your little star
<br>
<br>I was in your shoes 4 years ago and... I nowhave two beautiful girls and a wonderfull new balerina <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br>se my blog to see photos from our life - maybe it will help you get your hopes up and enjoy the magical first monents with your little star
<br>
AleksandraKaczynska
New member
Hi, and welcome
<br>I was in your shoes 4 years ago and... I nowhave two beautiful girls and a wonderfull new balerina <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br>se my blog to see photos from our life - maybe it will help you get your hopes up and enjoy the magical first monents with your little star
<br>
<br>I was in your shoes 4 years ago and... I nowhave two beautiful girls and a wonderfull new balerina <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br>se my blog to see photos from our life - maybe it will help you get your hopes up and enjoy the magical first monents with your little star
<br>
AleksandraKaczynska
New member
Hi, and welcome
<br>I was in your shoes 4 years ago and... I nowhave two beautiful girls and a wonderfull new balerina <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br>se my blog to see photos from our life - maybe it will help you get your hopes up and enjoy the magical first monents with your little star
<br>
<br>I was in your shoes 4 years ago and... I nowhave two beautiful girls and a wonderfull new balerina <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br>se my blog to see photos from our life - maybe it will help you get your hopes up and enjoy the magical first monents with your little star
<br>
K
kots66
Guest
Hi, and welcome to this forum. I was in your position two months ago, when our litle girl was diagnosed at five weeks old. I know it is a very dark period, but do try to stay positive and optimistic. You will find great advice in this forum, and a lot of *wonderful* people. Be sure to check out Lisa Greene's guides, available electronically at http://www.parentingchildrenwithhealthissues.com/LivingCFPamphlets.html
K
kots66
Guest
Hi, and welcome to this forum. I was in your position two months ago, when our litle girl was diagnosed at five weeks old. I know it is a very dark period, but do try to stay positive and optimistic. You will find great advice in this forum, and a lot of *wonderful* people. Be sure to check out Lisa Greene's guides, available electronically at http://www.parentingchildrenwithhealthissues.com/LivingCFPamphlets.html
K
kots66
Guest
Hi, and welcome to this forum. I was in your position two months ago, when our litle girl was diagnosed at five weeks old. I know it is a very dark period, but do try to stay positive and optimistic. You will find great advice in this forum, and a lot of *wonderful* people. Be sure to check out Lisa Greene's guides, available electronically at http://www.parentingchildrenwithhealthissues.com/LivingCFPamphlets.html
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S
Swallowtail66
Guest
No matter what age your child is at diagnosis, it is a long and difficult adjustment. You are blessed to receive the diagnosis at such a young age. Mine were older and we had been fighting the battles without the right weapons. Remember this, keep her as healthy and as active as possible without making her an invalid. You have to keep the balance. I believe we will have a cure one day. Her body needs to be as healthy as you can possibly keep it so that when the cure comes, she gets maximum benefit. She also needs to be well adjusted and as normal as possible so that when the cure comes, she has already embraced life and has a life to enjoy. Some people think I overreact to every little cough and sneeze and maybe they are right, but I am looking for the day the cure comes and mine can enjoy it. Make CF care your norm and she will not really ever feel the difference. My oldest was 13 and really struggled to do what she needed to do. She is still not as compliant as I would like at 21. My youngest was 6 and at 14 is far more compliant and accepting. May God Bless you as you start this journey.
S
Swallowtail66
Guest
No matter what age your child isat diagnosis, it is a long and difficult adjustment. You are blessed to receive the diagnosis at such a young age. Mine were older and we had been fighting the battles without the right weapons. Remember this, keep her as healthy and as active as possible without making her an invalid. You have to keep the balance. I believe we will have a cure one day. Her body needs to be as healthy as you can possibly keep it so that when the cure comes, she gets maximum benefit. She also needs to be well adjusted and as normal as possible so that when the cure comes, she has already embraced life and has a life to enjoy. Some people think I overreact to every little cough and sneeze and maybe they are right, but I am looking for the day the cure comes and mine can enjoy it. Make CF care your norm and she will not really ever feel the difference. My oldest was 13 and really struggled to do what she needed to do. She is still not as compliant as I would like at 21. My youngest was 6 and at 14 is far more compliant and accepting. May God Bless you as you start this journey.
S
Swallowtail66
Guest
<BR>No matter what age your child isat diagnosis, it is a long and difficult adjustment. You are blessed to receive the diagnosis at such a young age. Mine were older and we had been fighting the battles without the right weapons. Remember this, keep her as healthy and as active as possible without making her an invalid. You have to keep the balance. I believe we will have a cure one day. Her body needs to be as healthy as you can possibly keep it so that when the cure comes, she gets maximum benefit. She also needs to be well adjusted and as normal as possible so that when the cure comes, she has already embraced life and has a life to enjoy. Some people think I overreact to every little cough and sneeze and maybe they are right, but I am looking for the day the cure comes and mine can enjoy it. Make CF care your norm and she will not really ever feel the difference. My oldest was 13 and really struggled to do what she needed to do. She is still not as compliant as I would like at 21. My youngest was 6 and at 14 is far more compliant and accepting. May God Bless you as you start this journey.
ForeverDance
New member
Thank you all for your encouraging words. I know we will eventually adjust to this news and we are truly blessed to have a strong, loving and supportive family. We are trying to just take each day as it comes and enjoy our beautiful baby girl. We definitely still have difficult moments but we're working through the emotions and I know that we will come out at the end of this process stronger than we were.
ForeverDance
New member
Thank you all for your encouraging words. I know we will eventually adjust to this news and we are truly blessed to have a strong, loving and supportive family. We are trying to just take each day as it comes and enjoy our beautiful baby girl. We definitely still have difficult moments but we're working through the emotions and I know that we will come out at the end of this process stronger than we were.
ForeverDance
New member
Thank you all for your encouraging words. I know we will eventually adjust to this news and we are truly blessed to have a strong, loving and supportive family. We are trying to just take each day as it comes and enjoy our beautiful baby girl. We definitely still have difficult moments but we're working through the emotions and I know that we will come out at the end of this process stronger than we were.
Welcome to the forums. I hope in a short time You'll be-able to come though all the emotional trauma of finding out your youngest is Ill. I'm currently 31 and living with CF. I'm in a place of my own and generally quite happy. Be thankful you find out sooner rather then later. The sooner you know the easier it will be on your daughter. I've always been thankful that I've known I was ill and had extra issues from as far back as a I can remember, rather then finding out once I was older. The grief and trauma your going though now will be spared greatly to your daughter. I've always looked at my CF as a dark gift of sorts, It has changed my perspective on the world, let me know whats truly impotent.
Only advice I can give you for your daughter at this age is this, if she has recently been feed, doesn't need changed, and is simply screaming. Let her scream. The lungs develop last and a good hour long scream or two a day will build her lungs up, help to clear whats in them. And in the long run provider her with a much more stable bace to stand on later in life.
Only advice I can give you for your daughter at this age is this, if she has recently been feed, doesn't need changed, and is simply screaming. Let her scream. The lungs develop last and a good hour long scream or two a day will build her lungs up, help to clear whats in them. And in the long run provider her with a much more stable bace to stand on later in life.
Welcome to the forums. I hope in a short time You'll be-able to come though all the emotional trauma of finding out your youngest is Ill. I'm currently 31 and living with CF. I'm in a place of my own and generally quite happy. Be thankful you find out sooner rather then later. The sooner you know the easier it will be on your daughter. I've always been thankful that I've known I was ill and had extra issues from as far back as a I can remember, rather then finding out once I was older. The grief and trauma your going though now will be spared greatly to your daughter. I've always looked at my CF as a dark gift of sorts, It has changed my perspective on the world, let me know whats truly impotent.
Only advice I can give you for your daughter at this age is this, if she has recently been feed, doesn't need changed, and is simply screaming. Let her scream. The lungs develop last and a good hour long scream or two a day will build her lungs up, help to clear whats in them. And in the long run provider her with a much more stable bace to stand on later in life.
Only advice I can give you for your daughter at this age is this, if she has recently been feed, doesn't need changed, and is simply screaming. Let her scream. The lungs develop last and a good hour long scream or two a day will build her lungs up, help to clear whats in them. And in the long run provider her with a much more stable bace to stand on later in life.
Welcome to the forums. I hope in a short time You'll be-able to come though all the emotional trauma of finding out your youngest is Ill. I'm currently 31 and living with CF. I'm in a place of my own and generally quite happy. Be thankful you find out sooner rather then later. The sooner you know the easier it will be on your daughter. I've always been thankful that I've known I was ill and had extra issues from as far back as a I can remember, rather then finding out once I was older. The grief and trauma your going though now will be spared greatly to your daughter. I've always looked at my CF as a dark gift of sorts, It has changed my perspective on the world, let me know whats truly impotent.
<br />
<br />Only advice I can give you for your daughter at this age is this, if she has recently been feed, doesn't need changed, and is simply screaming. Let her scream. The lungs develop last and a good hour long scream or two a day will build her lungs up, help to clear whats in them. And in the long run provider her with a much more stable bace to stand on later in life.
<br />
<br />Only advice I can give you for your daughter at this age is this, if she has recently been feed, doesn't need changed, and is simply screaming. Let her scream. The lungs develop last and a good hour long scream or two a day will build her lungs up, help to clear whats in them. And in the long run provider her with a much more stable bace to stand on later in life.
K
Kaethe108
Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Hardak</b></i>
Only advice I can give you for your daughter at this age is this, if she has recently been feed, doesn't need changed, and is simply screaming. Let her scream. The lungs develop last and a good hour long scream or two a day will build her lungs up, help to clear whats in them. And in the long run provider her with a much more stable bace to stand on later in life.</end quote></div><br><br>Excuse me, but this is really a <span style="font-weight: bold;">grandmother's myth!<br>It was already proven back in the seventies that letting a baby cry is really damaging the health of the baby. The oxygen level in the blood drops and can even result in having a low oxygen level in the brain, which can cause brain cells to die. Also the stress hormones weaken the imune system. The lungs will also not benefit from this. <br>And also letting the baby cry damages the <span>sense of basic trust, which is so important for a child to build up so it can get self confident and strong!<br>It is also proven that babys cry less if you respond to them always early. This is also logical. They don't need to make a "drama" because they know that somebody cares. <br><br>So please, NEVER let your baby cry. It has to be sure that you are always there for her/him!<br>
Only advice I can give you for your daughter at this age is this, if she has recently been feed, doesn't need changed, and is simply screaming. Let her scream. The lungs develop last and a good hour long scream or two a day will build her lungs up, help to clear whats in them. And in the long run provider her with a much more stable bace to stand on later in life.</end quote></div><br><br>Excuse me, but this is really a <span style="font-weight: bold;">grandmother's myth!<br>It was already proven back in the seventies that letting a baby cry is really damaging the health of the baby. The oxygen level in the blood drops and can even result in having a low oxygen level in the brain, which can cause brain cells to die. Also the stress hormones weaken the imune system. The lungs will also not benefit from this. <br>And also letting the baby cry damages the <span>sense of basic trust, which is so important for a child to build up so it can get self confident and strong!<br>It is also proven that babys cry less if you respond to them always early. This is also logical. They don't need to make a "drama" because they know that somebody cares. <br><br>So please, NEVER let your baby cry. It has to be sure that you are always there for her/him!<br>