I agree that we are all different, and that not everything works for everybody. I would highly recommend trying the OO in the hopes of seeing the same results that others have seen.
The type of OO I used is the P73 mycelized OO that Faust recommended, so I don't think that was a problem.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Faust</b></i>
I would recommend that you become more compliant with your regular CF regimen and stick with all your standard nebs, and also become vigilant with regards to your mucous clearance either via the vest, frequencer, or CPT of some kind...Do that for a while, get a good base line of your lung health when it is stable, and THEN try the OO in a normal, realistic way over a respectable period of time. That way you can fully 100% know what is up, and where you individually stand with it.</end quote></div>
the only inhaled meds I take normally is the GSH and hypertonic saline. I continued on all of the non-inhaled meds that I normally take. When I was doing the OO, I was very compliant and only missed about 2-3 treatments.
I'm not sure what a vest is - we don't have those in Australia - but the doctors do give us a mouthpiece that your supposed to breath into to put resistance on your lungs (don't know what it's called). During my OO "trial" I used the mouthpiece every night, so I don't see that as being an issue.
I think you are right however, in that these things work together and no single "supplement" is responsible for keeping us well. The reason I did only the OO is that I wanted to single out the effect the OO had on me. Under normal circumstances - without inhaling anything - my lung function would not have dropped anywhere near what it did on the OO.
For now though, I'm going to go back on the GSH and hypertonic saline to get my lung function up to normal levels. After this happens, i'll start experimenting with other things eg experimenting with a hyperbaric oxygen tank, and maybe try the OO again with hypertonic saline.