my family doesnt care if I am dying of c.f.

clinging2faith

New member
well to start with i am very greatful for all these msgs of wonderful support and well wishes. I am moved. I will come back to respond to eaxch msg. Im new here so I dont know how to use othr features but im using the forums to post and read these wonderful supporting msgs.

in actuality these last two days have helped me see the good things in my life still i have.
thank you all and i need to come back and answer (but now need to rest first).
Mary
 

clinging2faith

New member
well to start with i am very greatful for all these msgs of wonderful support and well wishes. I am moved. I will come back to respond to eaxch msg. Im new here so I dont know how to use othr features but im using the forums to post and read these wonderful supporting msgs.

in actuality these last two days have helped me see the good things in my life still i have.
thank you all and i need to come back and answer (but now need to rest first).
Mary
 

mousesmom

New member
I'm so sorry you feel so alone. When I read your msg I just wanted to hug you. I hope your hospital stay goes well and if I were nearer I would certainly visit you as I hope someone would visti Monique if I were no longer around (though I pray every day that I will always be there for her)

Thinking of you.

hope this site helps you to feel a little more positive.
 

mousesmom

New member
I'm so sorry you feel so alone. When I read your msg I just wanted to hug you. I hope your hospital stay goes well and if I were nearer I would certainly visit you as I hope someone would visti Monique if I were no longer around (though I pray every day that I will always be there for her)

Thinking of you.

hope this site helps you to feel a little more positive.
 

mousesmom

New member
I'm so sorry you feel so alone. When I read your msg I just wanted to hug you. I hope your hospital stay goes well and if I were nearer I would certainly visit you as I hope someone would visti Monique if I were no longer around (though I pray every day that I will always be there for her)

Thinking of you.

hope this site helps you to feel a little more positive.
 

JazzysMom

New member
I have been refraining from responding because my initial thought was that you were feeling sorry for yourself and at THAT time, I didnt have the patience for it. Since then I have read your posts and thought about your situation. I dont envy the situation you are in nor do I understand how/why things are the way they are with the people that are in your life. I will say that its totally unhealthy IMHO! I dont know what it would take for you to get out on your own (or at least out from your ex & the in laws). I know when you are physically & emotionally spent the last thing you want is change. In this situation I truly believe it would benefit you so much. WHat I suggest is to go into the hospital and get as well as you can. I know you dont want to go in, but in this instance I really think getting out of the house is a must even if means exposing yourself to the bacterias etc in the hospital (I know some will argue this). Once you feel better physically maybe you will be able to address the issue of your living arrangements. As far as your daughter....at this time I dont think you can exhaust what physical, emotional and mental strength you have on trying to fix it. Whether she is being unduly influenced by others or not, she will have to come around. It might be days or it might be years. Someone else has mentioned that you will get treated the way you present yourself. I agree with that. IF you are presented yourself (to anyone) weak, helpless and dying of CF then you will not get what you are looking for. IF you display a more positive attitude....it will make a difference. It will also help you handle things better even if it doesnt actually change things. I dont know if anything I am saying makes sense or is of help, but please know that I am glad you were able to come here and get feedback!
 

JazzysMom

New member
I have been refraining from responding because my initial thought was that you were feeling sorry for yourself and at THAT time, I didnt have the patience for it. Since then I have read your posts and thought about your situation. I dont envy the situation you are in nor do I understand how/why things are the way they are with the people that are in your life. I will say that its totally unhealthy IMHO! I dont know what it would take for you to get out on your own (or at least out from your ex & the in laws). I know when you are physically & emotionally spent the last thing you want is change. In this situation I truly believe it would benefit you so much. WHat I suggest is to go into the hospital and get as well as you can. I know you dont want to go in, but in this instance I really think getting out of the house is a must even if means exposing yourself to the bacterias etc in the hospital (I know some will argue this). Once you feel better physically maybe you will be able to address the issue of your living arrangements. As far as your daughter....at this time I dont think you can exhaust what physical, emotional and mental strength you have on trying to fix it. Whether she is being unduly influenced by others or not, she will have to come around. It might be days or it might be years. Someone else has mentioned that you will get treated the way you present yourself. I agree with that. IF you are presented yourself (to anyone) weak, helpless and dying of CF then you will not get what you are looking for. IF you display a more positive attitude....it will make a difference. It will also help you handle things better even if it doesnt actually change things. I dont know if anything I am saying makes sense or is of help, but please know that I am glad you were able to come here and get feedback!
 

JazzysMom

New member
I have been refraining from responding because my initial thought was that you were feeling sorry for yourself and at THAT time, I didnt have the patience for it. Since then I have read your posts and thought about your situation. I dont envy the situation you are in nor do I understand how/why things are the way they are with the people that are in your life. I will say that its totally unhealthy IMHO! I dont know what it would take for you to get out on your own (or at least out from your ex & the in laws). I know when you are physically & emotionally spent the last thing you want is change. In this situation I truly believe it would benefit you so much. WHat I suggest is to go into the hospital and get as well as you can. I know you dont want to go in, but in this instance I really think getting out of the house is a must even if means exposing yourself to the bacterias etc in the hospital (I know some will argue this). Once you feel better physically maybe you will be able to address the issue of your living arrangements. As far as your daughter....at this time I dont think you can exhaust what physical, emotional and mental strength you have on trying to fix it. Whether she is being unduly influenced by others or not, she will have to come around. It might be days or it might be years. Someone else has mentioned that you will get treated the way you present yourself. I agree with that. IF you are presented yourself (to anyone) weak, helpless and dying of CF then you will not get what you are looking for. IF you display a more positive attitude....it will make a difference. It will also help you handle things better even if it doesnt actually change things. I dont know if anything I am saying makes sense or is of help, but please know that I am glad you were able to come here and get feedback!
 

clinging2faith

New member
i come here and I find so much support, something very appreciated. I WANT TO THANK YOU ALL for the care and loving support you show. Even all the way from South Africa (Joanne thanks a million!). I will take time to send a personal msg to all who have given me their opinions here.

I know I sounded like a cry baby in my firt posts. However I do need to say that I am going through deep grief. I lost my father, a person who not only gave me life in many ways but rescued me from dying from c.f. when i was little, and the person in my life whose unconditional support was always there specially when medical crisis rose. TODAY my dad is gone and nothing since he's death has been able to give me back that part of me which i lost the day he died. I admired my father and loved him deeply and was ever so thankful for all he did for me, even when we had to live for the latter part of my life , in separate countries.
So yes I feel very sad about it and it has just made me fall apart for a few days this last week, becuase the one that followed my dad in my family member list of people who loved me, died last friday. My dad's sister and my perennial loving aunt who was a deep supporter of my never giving up.

Until now, I thought I could conquer anything even c.f. did not mean to me that i was going to die. it never did. but i see that a lot of it came from the very strength my father and aunt had instilled in me. Yes I have strength too. I have lived 44yrs , have had a daughter, will be a grandma in two months, i live in a country that has saved my life many times, I have things to give thanks for.
But today I just dont feel the same because im grieving over my most important person in my entire life being dead today. my dad.
And i forgot to mention that my oldest sister also died and its the family structure that i was always setting my foot on for foundation for antying i did, now its gone.

However I do have my bad and good days. I find it hard to be smiling when i go thorugh alot of pain or have to be bored or home bound many times. I actually have the patience of a saint, but not all the time.

I realized from Ricky123's answer, I should get a life and work towards that. Then i get mor messages that encourage me. So I started thinking about many things today. But instead of getting out of bed chocking and gasping for the neb and then dreading the next entire day, i got up and started cleaning (no id didnt eve think of the germs) and realized...I can be having a better time if I choose to do so and feel so provided Im not in pain. TODAY IM OK. So today though I have my grief, I feel I can stay more composed isntead of negative.

Which reminds me of a documentary style movie called The secret, that really speaks tons to me. If anyone has seen it , its about the law of attraction. hOw ultimately one gets what one asks for mentally. If one lives in fear, fearful tihngs come our way etc. I ve seen this movie over and over, I can see exactly what they are talking about . So I try to change my attitude, and being careful of what i think and how i tihnk, and saying things in a positive tone. Invariably not every day that works for me. Some days I just dont have the patience to think of other than 'this sucks".

THANK YOU ALL FOR YOUR MSGS OF COMFORT, LOVE, PRAYERS, YOU ARE ALL SO WELCOMED IN THIS LIFE OF MINE...I AM ALREADY PRAYING FOR ALL OF USHERE TOO.

Mary
 

clinging2faith

New member
i come here and I find so much support, something very appreciated. I WANT TO THANK YOU ALL for the care and loving support you show. Even all the way from South Africa (Joanne thanks a million!). I will take time to send a personal msg to all who have given me their opinions here.

I know I sounded like a cry baby in my firt posts. However I do need to say that I am going through deep grief. I lost my father, a person who not only gave me life in many ways but rescued me from dying from c.f. when i was little, and the person in my life whose unconditional support was always there specially when medical crisis rose. TODAY my dad is gone and nothing since he's death has been able to give me back that part of me which i lost the day he died. I admired my father and loved him deeply and was ever so thankful for all he did for me, even when we had to live for the latter part of my life , in separate countries.
So yes I feel very sad about it and it has just made me fall apart for a few days this last week, becuase the one that followed my dad in my family member list of people who loved me, died last friday. My dad's sister and my perennial loving aunt who was a deep supporter of my never giving up.

Until now, I thought I could conquer anything even c.f. did not mean to me that i was going to die. it never did. but i see that a lot of it came from the very strength my father and aunt had instilled in me. Yes I have strength too. I have lived 44yrs , have had a daughter, will be a grandma in two months, i live in a country that has saved my life many times, I have things to give thanks for.
But today I just dont feel the same because im grieving over my most important person in my entire life being dead today. my dad.
And i forgot to mention that my oldest sister also died and its the family structure that i was always setting my foot on for foundation for antying i did, now its gone.

However I do have my bad and good days. I find it hard to be smiling when i go thorugh alot of pain or have to be bored or home bound many times. I actually have the patience of a saint, but not all the time.

I realized from Ricky123's answer, I should get a life and work towards that. Then i get mor messages that encourage me. So I started thinking about many things today. But instead of getting out of bed chocking and gasping for the neb and then dreading the next entire day, i got up and started cleaning (no id didnt eve think of the germs) and realized...I can be having a better time if I choose to do so and feel so provided Im not in pain. TODAY IM OK. So today though I have my grief, I feel I can stay more composed isntead of negative.

Which reminds me of a documentary style movie called The secret, that really speaks tons to me. If anyone has seen it , its about the law of attraction. hOw ultimately one gets what one asks for mentally. If one lives in fear, fearful tihngs come our way etc. I ve seen this movie over and over, I can see exactly what they are talking about . So I try to change my attitude, and being careful of what i think and how i tihnk, and saying things in a positive tone. Invariably not every day that works for me. Some days I just dont have the patience to think of other than 'this sucks".

THANK YOU ALL FOR YOUR MSGS OF COMFORT, LOVE, PRAYERS, YOU ARE ALL SO WELCOMED IN THIS LIFE OF MINE...I AM ALREADY PRAYING FOR ALL OF USHERE TOO.

Mary
 

clinging2faith

New member
i come here and I find so much support, something very appreciated. I WANT TO THANK YOU ALL for the care and loving support you show. Even all the way from South Africa (Joanne thanks a million!). I will take time to send a personal msg to all who have given me their opinions here.

I know I sounded like a cry baby in my firt posts. However I do need to say that I am going through deep grief. I lost my father, a person who not only gave me life in many ways but rescued me from dying from c.f. when i was little, and the person in my life whose unconditional support was always there specially when medical crisis rose. TODAY my dad is gone and nothing since he's death has been able to give me back that part of me which i lost the day he died. I admired my father and loved him deeply and was ever so thankful for all he did for me, even when we had to live for the latter part of my life , in separate countries.
So yes I feel very sad about it and it has just made me fall apart for a few days this last week, becuase the one that followed my dad in my family member list of people who loved me, died last friday. My dad's sister and my perennial loving aunt who was a deep supporter of my never giving up.

Until now, I thought I could conquer anything even c.f. did not mean to me that i was going to die. it never did. but i see that a lot of it came from the very strength my father and aunt had instilled in me. Yes I have strength too. I have lived 44yrs , have had a daughter, will be a grandma in two months, i live in a country that has saved my life many times, I have things to give thanks for.
But today I just dont feel the same because im grieving over my most important person in my entire life being dead today. my dad.
And i forgot to mention that my oldest sister also died and its the family structure that i was always setting my foot on for foundation for antying i did, now its gone.

However I do have my bad and good days. I find it hard to be smiling when i go thorugh alot of pain or have to be bored or home bound many times. I actually have the patience of a saint, but not all the time.

I realized from Ricky123's answer, I should get a life and work towards that. Then i get mor messages that encourage me. So I started thinking about many things today. But instead of getting out of bed chocking and gasping for the neb and then dreading the next entire day, i got up and started cleaning (no id didnt eve think of the germs) and realized...I can be having a better time if I choose to do so and feel so provided Im not in pain. TODAY IM OK. So today though I have my grief, I feel I can stay more composed isntead of negative.

Which reminds me of a documentary style movie called The secret, that really speaks tons to me. If anyone has seen it , its about the law of attraction. hOw ultimately one gets what one asks for mentally. If one lives in fear, fearful tihngs come our way etc. I ve seen this movie over and over, I can see exactly what they are talking about . So I try to change my attitude, and being careful of what i think and how i tihnk, and saying things in a positive tone. Invariably not every day that works for me. Some days I just dont have the patience to think of other than 'this sucks".

THANK YOU ALL FOR YOUR MSGS OF COMFORT, LOVE, PRAYERS, YOU ARE ALL SO WELCOMED IN THIS LIFE OF MINE...I AM ALREADY PRAYING FOR ALL OF USHERE TOO.

Mary
 

ladybug

New member
Mary,

I cannot really add much to this, as much of what I would say has already been posted by others. I did feel compelled to post though and let you know that I'm thinking of you and hoping you get out of this "dark place" quickly. I think we all hit bottom at different times and for different reasons (be it loss or depression or what have you), whether its directly related to CF or not. I've also had people in my life who did not understand my CF and my struggles and I've certainly started to distance myself from them, as it is not healthy for me to be around people who treat me as if nothing is wrong and I shouldn't have any "bad days" cause I'm "sooo healthy with my CF" (kind of opposite what you are going through, but still effecting relationships, which is a difficult thing to deal with on top of CF). So, just know I'm thinking of you and hoping your hospital stay gives you a chance to take back control of the things you CAN control and help you feel better.
 

ladybug

New member
Mary,

I cannot really add much to this, as much of what I would say has already been posted by others. I did feel compelled to post though and let you know that I'm thinking of you and hoping you get out of this "dark place" quickly. I think we all hit bottom at different times and for different reasons (be it loss or depression or what have you), whether its directly related to CF or not. I've also had people in my life who did not understand my CF and my struggles and I've certainly started to distance myself from them, as it is not healthy for me to be around people who treat me as if nothing is wrong and I shouldn't have any "bad days" cause I'm "sooo healthy with my CF" (kind of opposite what you are going through, but still effecting relationships, which is a difficult thing to deal with on top of CF). So, just know I'm thinking of you and hoping your hospital stay gives you a chance to take back control of the things you CAN control and help you feel better.
 

ladybug

New member
Mary,

I cannot really add much to this, as much of what I would say has already been posted by others. I did feel compelled to post though and let you know that I'm thinking of you and hoping you get out of this "dark place" quickly. I think we all hit bottom at different times and for different reasons (be it loss or depression or what have you), whether its directly related to CF or not. I've also had people in my life who did not understand my CF and my struggles and I've certainly started to distance myself from them, as it is not healthy for me to be around people who treat me as if nothing is wrong and I shouldn't have any "bad days" cause I'm "sooo healthy with my CF" (kind of opposite what you are going through, but still effecting relationships, which is a difficult thing to deal with on top of CF). So, just know I'm thinking of you and hoping your hospital stay gives you a chance to take back control of the things you CAN control and help you feel better.
 
Top