My friend Pseudomonas!

KrazyKat · Jul 9, 2009

Ok a question for all of you not in New Zealand, which will be pretty much everybody I imagine <img src="i/expressions/face-icon-small-happy.gif" border="0">

I have successfully over the last year or so, managed to flick my immune response to favour TH1 rather than TH2 and have pretty much stopped my cepacia being much of an issue, but as expected my Pseudomomonas are not becoming a real pain in the proverbial with one infection after another.

Is anybody with Mucoid Pseudos on oral antibiotics all the time for maintenance? If so, which ones, at what doses and do they work - as in prevent so many exacerbations requiring IV treatments?

Also, as we don't have TOBI down here in the butthole of the world, we use IV Tobra for inhalation but i understand TOBI is a very high concentration, so if anyone over there has nebulised the IV Tobra before, how much did you neb, how much did you dilute it and how often did you neb it? Month on month off? Twice daily?

Did it work to maintain the pseudo levels to a manageable level?

KrazyKat · Jul 9, 2009

Ok a question for all of you not in New Zealand, which will be pretty much everybody I imagine <img src="i/expressions/face-icon-small-happy.gif" border="0">

I have successfully over the last year or so, managed to flick my immune response to favour TH1 rather than TH2 and have pretty much stopped my cepacia being much of an issue, but as expected my Pseudomomonas are not becoming a real pain in the proverbial with one infection after another.

Is anybody with Mucoid Pseudos on oral antibiotics all the time for maintenance? If so, which ones, at what doses and do they work - as in prevent so many exacerbations requiring IV treatments?

Also, as we don't have TOBI down here in the butthole of the world, we use IV Tobra for inhalation but i understand TOBI is a very high concentration, so if anyone over there has nebulised the IV Tobra before, how much did you neb, how much did you dilute it and how often did you neb it? Month on month off? Twice daily?

Did it work to maintain the pseudo levels to a manageable level?

KrazyKat · Jul 9, 2009

Ok a question for all of you not in New Zealand, which will be pretty much everybody I imagine <img src="i/expressions/face-icon-small-happy.gif" border="0">

I have successfully over the last year or so, managed to flick my immune response to favour TH1 rather than TH2 and have pretty much stopped my cepacia being much of an issue, but as expected my Pseudomomonas are not becoming a real pain in the proverbial with one infection after another.

Is anybody with Mucoid Pseudos on oral antibiotics all the time for maintenance? If so, which ones, at what doses and do they work - as in prevent so many exacerbations requiring IV treatments?

Also, as we don't have TOBI down here in the butthole of the world, we use IV Tobra for inhalation but i understand TOBI is a very high concentration, so if anyone over there has nebulised the IV Tobra before, how much did you neb, how much did you dilute it and how often did you neb it? Month on month off? Twice daily?

Did it work to maintain the pseudo levels to a manageable level?

KrazyKat · Jul 9, 2009

Ok a question for all of you not in New Zealand, which will be pretty much everybody I imagine <img src="i/expressions/face-icon-small-happy.gif" border="0">

I have successfully over the last year or so, managed to flick my immune response to favour TH1 rather than TH2 and have pretty much stopped my cepacia being much of an issue, but as expected my Pseudomomonas are not becoming a real pain in the proverbial with one infection after another.

Is anybody with Mucoid Pseudos on oral antibiotics all the time for maintenance? If so, which ones, at what doses and do they work - as in prevent so many exacerbations requiring IV treatments?

Also, as we don't have TOBI down here in the butthole of the world, we use IV Tobra for inhalation but i understand TOBI is a very high concentration, so if anyone over there has nebulised the IV Tobra before, how much did you neb, how much did you dilute it and how often did you neb it? Month on month off? Twice daily?

Did it work to maintain the pseudo levels to a manageable level?

KrazyKat · Jul 9, 2009

Ok a question for all of you not in New Zealand, which will be pretty much everybody I imagine <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
 I have successfully over the last year or so, managed to flick my immune response to favour TH1 rather than TH2 and have pretty much stopped my cepacia being much of an issue, but as expected my Pseudomomonas are not becoming a real pain in the proverbial with one infection after another.
 
 Is anybody with Mucoid Pseudos on oral antibiotics all the time for maintenance? If so, which ones, at what doses and do they work - as in prevent so many exacerbations requiring IV treatments?
 
 Also, as we don't have TOBI down here in the butthole of the world, we use IV Tobra for inhalation but i understand TOBI is a very high concentration, so if anyone over there has nebulised the IV Tobra before, how much did you neb, how much did you dilute it and how often did you neb it? Month on month off? Twice daily?
 
 Did it work to maintain the pseudo levels to a manageable level?

MicheleGazelle · Jul 9, 2009

I apologize in advance as I know this will sound like it has nothing to do with what you asked. But I am going to very loosely reinterpret your question to be "Does anyone know of anything that might help me cope effectively with my PA infection and also be available down here in NZ?"

In answer to that (perhaps imaginary) question, this information might interest you (assuming you haven't seen it already):
<a target=_blank class=ftalternatingbarlinklarge href="http://healthgazelle.com/quinineandpseudomonas.shtml">http://healthgazelle.com/quinineandpseudomonas.shtml</a>

Good luck.

MicheleGazelle · Jul 9, 2009

I apologize in advance as I know this will sound like it has nothing to do with what you asked. But I am going to very loosely reinterpret your question to be "Does anyone know of anything that might help me cope effectively with my PA infection and also be available down here in NZ?"

In answer to that (perhaps imaginary) question, this information might interest you (assuming you haven't seen it already):
<a target=_blank class=ftalternatingbarlinklarge href="http://healthgazelle.com/quinineandpseudomonas.shtml">http://healthgazelle.com/quinineandpseudomonas.shtml</a>

Good luck.

MicheleGazelle · Jul 9, 2009

I apologize in advance as I know this will sound like it has nothing to do with what you asked. But I am going to very loosely reinterpret your question to be "Does anyone know of anything that might help me cope effectively with my PA infection and also be available down here in NZ?"

In answer to that (perhaps imaginary) question, this information might interest you (assuming you haven't seen it already):
<a target=_blank class=ftalternatingbarlinklarge href="http://healthgazelle.com/quinineandpseudomonas.shtml">http://healthgazelle.com/quinineandpseudomonas.shtml</a>

Good luck.

MicheleGazelle · Jul 9, 2009

I apologize in advance as I know this will sound like it has nothing to do with what you asked. But I am going to very loosely reinterpret your question to be "Does anyone know of anything that might help me cope effectively with my PA infection and also be available down here in NZ?"

In answer to that (perhaps imaginary) question, this information might interest you (assuming you haven't seen it already):
<a target=_blank class=ftalternatingbarlinklarge href="http://healthgazelle.com/quinineandpseudomonas.shtml">http://healthgazelle.com/quinineandpseudomonas.shtml</a>

Good luck.

MicheleGazelle · Jul 9, 2009

I apologize in advance as I know this will sound like it has nothing to do with what you asked. But I am going to very loosely reinterpret your question to be "Does anyone know of anything that might help me cope effectively with my PA infection and also be available down here in NZ?"
 
 In answer to that (perhaps imaginary) question, this information might interest you (assuming you haven't seen it already):
 <a target=_blank class=ftalternatingbarlinklarge href="http://healthgazelle.com/quinineandpseudomonas.shtml">http://healthgazelle.com/quinineandpseudomonas.shtml</a>
 
 
 Good luck.

Jeana · Jul 9, 2009